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Aug 17, 2020 11:56AM
Aug 17, 2020 11:58AM
kathabus, it's hard to say whether the tingling and your increased LDEX score are related, or if it's the sleeve, or if it's something else. I hope they are continuing to monitor your LDEX score just in case.
Does your sleeve fit properly and comfortably?
Since you are soon out from your SLNB it's possible that is why you are feeling tingling. Lymph node biopsies are very irritating because they are done in such a sensitive area.
When my LDEX score increased, my lymphedema doctor wanted me in compression most of my waking hours. I was told that when lymphedema is still in the very early fluid stage, it can still be reversible. With compression my LDEX scores stayed in the normal range. I still wear compression regularly, because I feel that it does help me.
I think the important thing is to very be attentive to it, and look carefully for changes yourself that you can tell your doctors about immediately.
Diagnosed at 32. Local recurrences in the skin, and now dealing with MBC.
8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2-
8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2-