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Sep 30, 2021 10:43AM
Sep 30, 2021 10:46AM
A month later, here's the update: I had an appointment with a DPT at the "Lymphedema Clinic" that's part of our cancer center (is this a common thing to have? I feel lucky to have access to it!) The therapist heard my story, took one look, and said it is absolutely lymphedema. It's not just the swelling, but some discoloration and also something about my pores... She was not happy to hear that my oncologist, despite identifying it as probably lymphedema, just said not to worry about it. It was only after posting here that I called him back and asked for the referal.
So, good news is that it really is pretty minor, but of course the goal is to keep it that way. I will be getting a compression bra (she said that since the swelling goes down at night it's probably OK to take it off to sleep, but other than that it's an all day - every day - for the rest of my life - kind of thing. What a bummer. I'm coming up on a year post-op, and it seems like I should be able to relax a little and start to feel better about the situation, but no such luck. I literally had one lymph node removed so thought I'd never have to deal with this.
And those friggin' compression bras are expensive! She's talking to my insurance to see what they'll cover. She showed me two options, one of which was $80, and the other (much more appealing looking bra) was $188! I'm actuallyl thinking about bringing in all my sports bras next time I see her to determine if any of them might be an acceptable subsitute, at least part-time.
So, now I have appointments to come back once a week for 6 weeks for treatment - massage, and I don't know what else. I scheduled all of the appointments for 9:45 AM - that way there's no point going into work for 45 minutes and then leaving again, I'll just take the morning off... might as well get some tiny benefit from this.
Well, on the plus side, my arm measurements have a 0.0% difference, which she said is really unusual for anyone, even in the general population.
So, thanks everyone for chiming in and telling me not to ignore this.
p.s. - just got a call to tell me that my insurance will cover 2 bras/year with a 20% co-insurance, so that's good news too.
Diagnosis received the day after I turned 50. Happy birthday to me!
8/26/2020, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
10/21/2020 Lumpectomy: Right