Topic: Swollen arm, elbow, wrist, hand

Forum: Lymphedema — Talk with other about how to lower your risk of lymphedema and how to manage it if you've been diagnosed.

Posted on: Sep 18, 2021 10:38PM

Posted on: Sep 18, 2021 10:38PM

veeder14 wrote:

Hi I haven't had any swelling issues since surgery however I fell 4 days ago and broke my shoulder/humerous. will see orthopedics on Monday. the swelling has been moving down my arm a little bit more each day. I'm really scared about this hand swelling, its so puffy. I wonder if missing 7 lymphnodes in the arm pit is contributing to the swelling. Any one have a similar situation. Does this sound like an emergency? Keeping arm in sling.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 3/7/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy
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Sep 24, 2021 08:56PM josieo wrote:

Oh my dear friend Veeder,


So sorry about the fall on your shoulder. I fell in 2016, subsequently had breast cancer on the same side, but fortunately my shoulder healed without any threat of lymphedema. . So let me give you some words of encouragement about your recovery from surgery.

- manage your pain medication to feel comfortable. As you begin your physical therapy you will not be as dependent on strong medicine, but use Tylenol or Aleve as you are advised. You have to control your pain to be successful in your therapy.

- make sure your physical therapist has your x-rays so he/she can be aware of how to plan your therapy. Know that the therapist can also call the surgeon with any questions

- follow the exercises as they are taught to you, and if there is any equipment that you need at home, like a pulley or a ball, get it, to make it easier to replicate. I set up parts of my house to do the different exercises (like a circuit) and it kept me motivated

- take full advantage of after-exercise modalities like ice. My therapist willingly packed my shoulder with large ice packs after every session. I sat there for 10-15 minutes and when I left my shoulder felt flexible and pain free.

- I made sure my medication schedule allowed me pain relief right after my sessions

I know you can do this. But as everyone here suggests, get a referral to a lymphedema specialist.

Rooting for you,

Josi



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Sep 25, 2021 11:44PM veeder14 wrote:

Thanks JosieO

for your input and suggestions. I was evaluated by a PT lymphadema specialist shortly after my lumpectomy healed. Although I didn't have it compression garments were ordered for flying. I will contact her office on Monday for an app't. Right now I'm very limited in trying to get the swelling down by using elevation (arm/shoulder non weight bearing for 6 weeks), and definitely can't wear compression garments. I am wearing my bike glove and its tight due to my hand looking like the Pillsbury Doughboy, not sure its doing any good.

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 3/7/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy
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Sep 26, 2021 12:01PM serenitystat wrote:

Veeder - I wouldn't wear the bike glove if it's too tight. It's good to see a LE therapist to see if they have ideas. It will be hard to pull on a typical compression sleeve, but there are some that use Velcro. You can do some deep breathing exercises to improve overall circulation while you elevate your arm.

๐ŸŒป ๐Ÿ‡บ๐Ÿ‡ฆ BCO leaked our private data. ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ๐Ÿคท๐Ÿปโ€โ™€๏ธ . . . . . "Do not overlook the little joys!" (Hesse, 1905) ๐ŸถDx.11/2015.IDC.L.IIIC.10/11nodes.++- โ˜•๏ธ12/2015.L.Mast ๐Ÿ›€2/2016.4AC.12Taxol.fasted ๐Ÿ–ผ9/2016.Rads.Nodes.ChestWall.15+4boosts ๐Ÿฅ10/2016.Tamox(2.5y) ๐ŸŒฒ4/2019.Exemestane ๐ŸŽญ12/2019.Ibrance/Xgeva ๐Ÿ•Š
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Sep 26, 2021 04:34PM veeder14 wrote:

Thanks SerenityStat

Iโ€™ll put the bike glove away. Iโ€™m glad to hear that some sleeves use Velcro to close. Good idea about deep breathing. Iโ€™ve already got a my chart message to the doctor with pictures of my arm and hand requesting a referral to the LE Specialist in town

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 3/7/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy
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Sep 26, 2021 09:25PM josieo wrote:

Veeder,

Prayers for you that you will get a quick referral as well as a quick appointment.

Does your insurance require a referral? Whether it does or not, I would call over to the lymphedema specialist, get an idea of openings, and just say that you are working with your doctor to get in. It helps if they are alerted to you, and also not as easy for your doctor to not make it a priority. This way they can get your records as well as those photos in hand quickly

Please keep us all posted. Canโ€™t contribute much re lymphedema, but I know there are many experienced people here who can help.

Iโ€™ll do my best to support you with prayer, and healing thoughts.


JosieO

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Sep 28, 2021 04:04AM veeder14 wrote:

HI JosieO

Thank you for your support. My insurance doesnโ€™t require a referral but the clinic does. My primary care physician agreed on sending a referral and says he is asking staff to get it written and faxed. I emailed the therapist and she remembered me from the past, and will look out for the referral.

To any one
Can lymphadema cause nerve pain? I wonder if this burning arm pain is from that or from the surgery repair surgery or both


Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 3/7/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy
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Sep 28, 2021 05:42AM serenitystat wrote:

It could be both. Anything that pinches the nerve will cause pain. You've had a traumatic injury. You could be holding your arm in a different position that could be causing the nerve pain.

I used to have severe sciatica. A combination of meds, postural alignment exercises, and nerve flossing fixed it.

When do you see your OT?

๐ŸŒป ๐Ÿ‡บ๐Ÿ‡ฆ BCO leaked our private data. ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ๐Ÿคท๐Ÿปโ€โ™€๏ธ . . . . . "Do not overlook the little joys!" (Hesse, 1905) ๐ŸถDx.11/2015.IDC.L.IIIC.10/11nodes.++- โ˜•๏ธ12/2015.L.Mast ๐Ÿ›€2/2016.4AC.12Taxol.fasted ๐Ÿ–ผ9/2016.Rads.Nodes.ChestWall.15+4boosts ๐Ÿฅ10/2016.Tamox(2.5y) ๐ŸŒฒ4/2019.Exemestane ๐ŸŽญ12/2019.Ibrance/Xgeva ๐Ÿ•Š
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Sep 28, 2021 05:48AM veeder14 wrote:

Thanks for writing back SerenitySTAT. After my postoperative appt on 10/8. Will be 6 weeks no weight bearing so not sure how much manipulation the therapist would be able to do in the beginning

Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 3/7/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy
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Sep 28, 2021 06:34AM serenitystat wrote:

Postural alignment exercises and nerve flossing techniques are gentle and not weight bearing, but they do require some mobility. They would also help with lymphedema. My LE therapist was OK with them when I showed her.

You said you had some exercises to do at home. Does your nerve pain increase when you do them? For me that's a signal to pause to give the nerve time to relax.

You mentioned burning pain. Do you monitor your temperature? Watch for warm or red areas.

๐ŸŒป ๐Ÿ‡บ๐Ÿ‡ฆ BCO leaked our private data. ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ๐Ÿคท๐Ÿปโ€โ™€๏ธ . . . . . "Do not overlook the little joys!" (Hesse, 1905) ๐ŸถDx.11/2015.IDC.L.IIIC.10/11nodes.++- โ˜•๏ธ12/2015.L.Mast ๐Ÿ›€2/2016.4AC.12Taxol.fasted ๐Ÿ–ผ9/2016.Rads.Nodes.ChestWall.15+4boosts ๐Ÿฅ10/2016.Tamox(2.5y) ๐ŸŒฒ4/2019.Exemestane ๐ŸŽญ12/2019.Ibrance/Xgeva ๐Ÿ•Š
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Sep 28, 2021 07:09AM veeder14 wrote:

good to hear the nerve flossing, and postural alignment exercises are gentle.the ot in the hospital gave me a few stretching exercises to stretch the elbow, wrist. and to hang my arm down and do if lesto keep you shoulder from becoming frozen. Those make my arm swell some it not burn.

Canโ€™t identify what causes the burning, checking my temp and no fever,watching for redskinas Iโ€™ve had celluloid before, donโ€™t want that


Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/25/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 3/7/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy

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