Join Us

We are 224,435 members in 83 forums discussing 163,550 topics.

Help with Abbreviations

Topic: advice re: flat knit sleeves and gloves

Forum: Lymphedema —

Talk with other about how to lower your risk of lymphedema and how to manage it if you've been diagnosed.

Posted on: Sep 24, 2021 11:11AM

mzg wrote:

Hi, all, I've mainly been lurking, but have been finding this group so helpful. Thanks for all the great info and support everyone gives each other. My lymphedema has been fairly mild but I've been dealing with a flareup, and my PT think I may need to move to a garment that's more containing than my Medi Harmony, which I've ben using for 3 years.Besides, the glove has been giving me trouble

My issue: I'm very petite, and have short arms, and very sensitive skin, especially in the webbing area between my thumb and index finger. This has been a problem with the Medi, though it's worked well otherwise until now. I've been wondering if anyone else has had those issues and found a custom flat knit sleeve and glove that works for you? (fortunately, my new insurance covers one set!) I know some brands offer a silk lining in their sleeves and gloves. Might those work for me? One Juzo glove mentions a "comfort patch" for the thumb area, but I'm not sure what that is.

Any thoughts, comments, experiences, suggestions would be most welcome!

Thanks.

mzg


Log in to post a reply

Page 1 of 1 (7 results)

Posts 1 - 7 (7 total)

Log in to post a reply

Sep 24, 2021 12:08PM ThreeTree wrote:

Helllo mzg - I have Juzo glove and sleeve. The glove really bothers the webbing in my fingers and makes my thumb ache. I just pretty much don't wear the glove, because of that, and because I have to take it off every 5 minutes to do something in the kitchen or bathroom, etc. So far, so good. My hand gets slightly swollen every once in awhile, but I'm pretty much OK without the glove, as long as I wear the sleeve regularly. I have thought of asking for a gauntlet rather than glove to see if that makes any difference. I guess that's my experience and "solution" if you will. Good luck - these sleeves and gloves are a real pain!

Log in to post a reply

Sep 25, 2021 01:29AM navy1305 wrote:

Hi mzg,

I've used Medi Harmony products, both the very old kind where the gloves had seams as well as the seamless gloves, and also Juzo. I greatly prefer the Juzo.

I currently use a custom Juzo glove and an off-the-shelf Juzo soft (not flat knit) for the sleeve. Both my glove and sleeve are class II compression since the class I was not doing it for me. I also get irritation in the webbing between my thumb and index finger, but you can use A+D ointment (I think it is usually used as some kind of diaper rash cream since I found it in the baby aisle, but I found it also works really well on chapped lips) to put on the irritated area. My lymphedema specialist is the one who recommended the A+D.

My custom Juzo glove has seams and the "comfort patch", which is like a smooth material sewn in the inside of the glove in the webbing area to cover the seams so the seams don't rub. The Juzo seams are not like the Medi seams; the Medi seams were pretty terrible and seemed to get snagged on every little thing. The construction quality of the Juzo products far exceeds the quality of the Medi products, and the Juzo soft sleeve is much softer and less coarse/rough of a material than the Medi Harmony products. Plus, you can just toss the Juzo stuff in the washer and dryer so it is a lot less time consuming than needing to wash it by hand. The Juzo sleeve does not have the elbow thingy that the Medi has, but TBH, this is actually better because you don't need to worry about lining things up in a certain way like you do with the Medi.

Overall, I would definitely recommend the Juzo products, but in order to get Juzo stuff, you need to go through a DME provider because unlike other brands, Juzo does not sell direct to consumers.

Log in to post a reply

Sep 25, 2021 02:59PM mzg wrote:

Thanks so much, ThreeTree. I couldn't agree with you more. A real pain. And they've only been working on LE treatments for almost 100 years! You'd think they could have come up with a more user-friendly system by now. ;)



Log in to post a reply

Sep 25, 2021 02:59PM mzg wrote:

Thanks so much, Navy1305, this is really helpful! I'll mention it to my PT.


Log in to post a reply

Sep 25, 2021 03:21PM MinusTwo wrote:

The seams of my gauntlets are on the outside. It looks like they're turned inside out, but they're not. Wonder if you would try turning your gloves inside out?

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Sep 25, 2021 05:03PM mzg wrote:

Thanks, MinusTwo. That's a smart way to make them. My Medi glove is actually seamless. But my skin is so sensitive that the spot where all the pieces meet—which is in the thumb webbing area—gets very irritated just from the weight of the compression. I've tried all types of padding, but, if I don't get it exactly right, the padding gets smushed by the glove and just makes matters worse. I'm hoping the comfort patch that navy1305 has might take care of that problem. Fingers crossed!


Log in to post a reply

Sep 26, 2021 06:43AM Rah2464 wrote:

I am so glad you mentioned this issue mzg because I have the same problem and though I was just a little nuts or too delicate. I will also be trying that patch to see if it helps me. This community is such a source of great information.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Page 1 of 1 (7 results)