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Topic: Is this Lymphedema?

Forum: Lymphedema —

Talk with other about how to lower your risk of lymphedema and how to manage it if you've been diagnosed.

Posted on: Oct 4, 2021 01:48PM

macdebbie wrote:

I have a call into my BCS but just curious about this...

I noticed some swelling from my underarm area to the top of the lymph node incision last week. The area is tender, and hasn't gone down despite increased activity so I called the BCS today to see if I could get in on Wed (her non-surgery day).

They said they wanted to see me today, so I saw the PA. She did an ultrasound and said the swollen area I am concerned about is NOT a seroma as I suspected, but "edema". Does that mean that I have Lymphedema? My arm is not swollen at all, just from the underarm to the lymph node incision.

She did discover a fairly large seroma in my breast, but they don't have the type of numbing agent I need (without Epi) so it couldn't be drained. She said that should re-absorb.

I'm more worried about this "edema" now though.

Should I request a referral to a lymphedema PT? She told me I could massage the area myself, but I don't want to cause harm. She also told me to try some warm (not hot) compresses for both the underarm area and the breast area to try and get things moving. I have been doing some gentle exercises with my arm as well.

Dx 7/29/2021, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery 9/13/2021 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy
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Oct 4, 2021 01:59PM exbrnxgrl wrote:


Regardless of what is causing your current problem, I think seeing a PT who specializes in lymphedema is always a good idea after surgery. If I were you, I would definitely seek a referral. I have mild LE and I believe that the sessions I had with a PT and learning how to do manual lymphatic drainage have been a major part of keeping it mild.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Oct 5, 2021 06:00AM Rah2464 wrote:

I concur with exhrnxgrl. Get a referral to a lymphedema PT and that way you are in front of any potential issues. Please update us on what you decide and how it goes.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 5, 2021 03:25PM MinusTwo wrote:

My LE is breast and truncal - so yes, do at least get an initial measurement & training in drainage.

Check out this site for more information & references.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Oct 20, 2021 09:10AM CarlyVirginia wrote:

I am currently waiting a scan for fluid build ip at the bottom left of my right breast,I had two ops for Intermediate DCIS.First one didnt have adequate margins and the second was a tight margin.I had whole breast radiotherapy,My bra distorts the shpe of this fluid filled area no matter how hard I try different Bras.My left breast is and always was larger than the right.After scan I will see a lymphodemas.Is there anything I can do to help while waiting.

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