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All TopicsForum: Stage III Breast Cancer → Topic: Stage III Cancer Survivors. Any 10 -20 years survivors?

Topic: Stage III Cancer Survivors. Any 10 -20 years survivors?

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Sep 17, 2009 11:30AM

TLF wrote:

I am newly diagnosed and afraid as can be. I just want to hear from those of you who have been there and have kicked this in the butt for 10 -20 + years. Please share.

Dx 8/17/2009, IDC, 1cm, Stage II, Grade 2, 4/26 nodes, ER+/PR+, HER2-
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Sep 17, 2009 12:27PM pabbie wrote:

Hi-I'm a 10 year surviver/thriver of colo-rectal cancer-stage 3 (Farrah's cancer). And I was dx'd with BC in Feb. 2008-stage 2.

This second cancer has knocked the wind out of my sails but my boat is still afloat.

Take care of yourself. (living one day at a time helps me)

Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Surgery 1/22/2014 Mastectomy: Right Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Hormonal Therapy 2/4/2014 Femara (letrozole)
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Sep 17, 2009 12:48PM DCMom wrote:

TLF-  GO RIGHT NOW to the Inspiring Stories Forum and click on success stories.  You will find pages of inspiring stories.  It has been up since 2003 pages and pages of survival stories.  It's a great one to read and read!  I plan on posting there myself after 10 years!!!!!   That's 8 1/2 years from now so watch for it and reply to me when YOU see it. 

Now go and take on the day! Dx 1/17/2008, IDC, 3cm, Stage IIIA, Grade 2, 4/13 nodes, ER+/PR+, HER2-
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Sep 17, 2009 09:42PM medommer wrote:

Hi TLF- I'm a 7 1/2 year Stage lll (9+ nodes) survivor.  My sister-in-law was diagnoised at age 35.   She is now 64, and a 29 year survivor.

Dx 4/2002, ILC, 5cm, Stage IIIA, Grade 1, 9/20 nodes, ER+/PR+, HER2-
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Sep 18, 2009 06:28AM KerryMac wrote:

medommer - wow, great to hear your success! thanks for posting it!

Kerry - Dx Oct 2008, Stage IIIa IDC, ER/PR+ Mx, Chemo, Rads, Ooph, Arimidex, Zometa, Tamoxifen
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Sep 19, 2009 07:04AM KerryMac wrote:

Ellen - fabulous news!!

Kerry - Dx Oct 2008, Stage IIIa IDC, ER/PR+ Mx, Chemo, Rads, Ooph, Arimidex, Zometa, Tamoxifen
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Sep 19, 2009 06:22PM TLF wrote:

Thank you everyone for your stories and input. I just received a call from my BS to tell me the resulrs of my pathology report; I have an official appointment on Thursday. The tumor for 1 cm with 5/26 nodes positive. My thoughts are, is that good? Bad? I know that based upon that information I will need chemo plus radiation.  I am just not sure how to react to the news. What questions should I ask?

Dx 8/17/2009, IDC, 1cm, Stage II, Grade 2, 4/26 nodes, ER+/PR+, HER2-
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Sep 20, 2009 06:03AM everyminute wrote:

That was almost exactly my diagnosis over a year ago (last June 5th - so 15 months ago).  I had dose dense AC+T (which means 4 doses of Adriamicin and Cytoxen together every 2 weeks followed by Taxol every 2 weeks).  I then had 5 1/2 weeks of radiation.  Pre chemo I had a bilateral mast with immediate reconstruction. 

I chose to have a full hysterectomy (less estrogen = better for me!) and am taking tamoxifen currently.  My onc would like me to do 5 yrs of tamox followed by 5 years of femara but we are watching studies to make sure that is a good plan.  Femara has shown to be slightly better in studies BUT that doesnt take into consideration that some people can not metabolize Tamox well.  I was tested and am a extensive metabolizer and I dont take any drugs that interact with it.

I chose to get 3 opinions when I started out, it made me feel very good to know that all 3 agreed on my best treatment options.  (I would have been happy with two but I was deciding between 2 docs so I ended up with 3!). 

I wish you well.  Feel free to ask questions here or private message me.

Dx 6/5/2008, IDC, Stage IIIA, ER+/PR+, HER2-
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Sep 20, 2009 06:17AM KerryMac wrote:

TLF - I had 3 rounds of FEC100 and then 3 of Taxotere. I am in Canada, so that is the standard "big gun" chemo here. Then 25 Rads, then we removed my ovaries, and I am on Arimidex for the next 5 (maybe 10?) years. My Onc actually thinks Tamoxifen is just as effective, but was quite firm on suppressing the Ovaries either through shots or surgery (I am highly ER+,100%). So, I imagine your treatment plan will be similar - Chemo, Rads, then Hormonals. It seems quite overwhelming at first, but just keep putting one foot in front of the other and you will get through it!
Kerry - Dx Oct 2008, Stage IIIa IDC, ER/PR+ Mx, Chemo, Rads, Ooph, Arimidex, Zometa, Tamoxifen
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Sep 21, 2009 02:04PM diana50 wrote:

i am not 10 years out but i am 7 and half years.  i see the 10 years coming quickly. lol

Courage is being scared to death...but saddling up anyway...John Wayne.. Dx 2/26/2002, IDC, 1cm, Stage IIIC, Grade 3, 10/12 nodes, ER+/PR+, HER2- Surgery 3/3/2002 Lumpectomy: Left; Lymph node removal: Underarm/Axillary, Left Chemotherapy 4/2/2002 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/5/2002 Hormonal Therapy 8/9/2002 Arimidex (anastrozole) Dx 8/30/2012, IDC, 1cm, Stage IV, mets, ER+/PR+, HER2- Radiation Therapy 10/1/2012 Bone Hormonal Therapy 10/14/2012 Femara (letrozole) Chemotherapy 7/7/2014 Taxol (paclitaxel) Chemotherapy 5/5/2015 Ixempra (ixabepilone)
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Sep 22, 2009 05:55PM Lindaip wrote:

I AM ALSO A 7 AND ONE HALF YEAR SURVIVOR.(STAGE III B). MY TUMOR WAS ATTACHED TO THE SKIN AND MY ONE INVOLVED LYMPH NODE WAS 3 CM. I WAS ON ARIMIDEX FOR 5 YEARS AND AM NOW ON A CLINICAL TRIAL WHERE I MIGHT BE GETTING FEMARA OR I MIGHT BE GETTING A PLACEBO

LINDA

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Oct 1, 2009 08:29PM weesa wrote:

I'll be a seven year survivor of stage 3 bc in Nov. of this year. It's been a long harrowing journey with 17 surgeries. (Long story,sometime I will pull it all together and summarize it for you guys.) I feel wonderful. Had dose dense AC then taxotere, radiation, mx. AI's for six years (that was the hardest part.) Even more wonderful--I have a friend who was diagnosed with IBC in Sept. of 2002 and she is totally fine.There are lots of long term stage 3 survivors out there,but I think sometimes they don't feel the pressing need to visit here as much as those warriors who are in the earlier, scarier times.

Sometimes I wonder if I am an old soul temporarily trapped in a breast cancer body. Dx 11/22/2002, IDC, 6cm+, Stage IIIA, Grade 2, 5/25 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/13/2003 Breast, Lymph nodes Hormonal Therapy 8/22/2003 Femara (letrozole) Surgery Lumpectomy: Right; Mastectomy: Right; Lymph node removal: Sentinel, Underarm/Axillary, Right; Reconstruction (right): Latissimus dorsi flap
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Oct 1, 2009 09:19PM , edited Oct 1, 2009 09:20PM by cakeisgreat

My dear friend who has helped me through my bc experience so far was orig DCIS then went to stage III w 12 positive nodes.  That was 13 years ago and still doing great!  (DCIS was 13 yrs, stage III was 10). 

And my other friend's aunt was stage III also...13 years ago.  Doing great!  had lump/chemo/rads.

My onc also has a patient who is stage IV.......for 20 years!!!!

~Cake (is always great!) Dx 6/9/2009, IDC, <1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR-
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Oct 1, 2009 09:26PM AnneW wrote:

My mom was Stage IIIb when diagnosed back in the 60s. She was 39. She had NO chemo back then. Just radical mastectomy and cobalt radiation. She lived 20 years before dying of colon cancer. I chalk it up to willpower, stopping smoking, and the advent of Tamoxifen 10 years into her survival.

Anne

2002 IDC stage 1, grade 1, rads & AI Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Oct 2, 2009 08:34AM Pure wrote:

I met a girl through facebook who had 6 positive nodes with tumours coming out of the nodes and she is 10 years.

I met another girl thorugh facebook who is 5 years out and she had advanced breat cancer (spread to her collar bone)  She was hr positive.She did chemo/radiation and hormonals. She said from the minute she got the cancer she decided she was a survivor.

Dx 8/8/2009, IDC, ER+/PR+, HER2-
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Oct 2, 2009 01:07PM everyminute wrote:

I have a friend who is 9 1/2 years out - stage 3, huge tumor and 5 postive nodes.

Dx 6/5/2008, IDC, Stage IIIA, ER+/PR+, HER2-
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Oct 4, 2009 07:41PM janine007 wrote:

Hello!

I was diagnosed w/ stage 3 in March. Just finished chemo and then a mastectomy. I had the same wonder as you. During the last 7 months, I have met numerous wonderful, courageous women who have lived 10+ years and far, far beyond.

 I met a lady in a retirement home a few weeks back that says she was stage 3 and out 60+ years. She was 95 years old. It's baffling, but she is a light and I really believe her. She gives testimonies at cancer support causes.  

Good Luck w/ your treatment. Prayer is powerful and I have found it to REALLY WORK....My prayers are with all you women. God Bless You ALL!

Dx 3/30/2009, IDC, 6cm+, Stage IIIA, Grade 3, 0/8 nodes, ER+/PR+, HER2+
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Oct 5, 2009 01:22AM lexislove wrote:

There are a lot of Stage 3 woman out 10+ years.....but you won't find them on here! Most woman on these boards are newly diagnosed or going through active treatment, so you see only this side.

Thank god for the woman who come back after finishing to offer support and answer questions.

Dx:2007, 2B, Triple+, June 2008:Lupron,Zometa,Tamox.Jan 2010:Poor metabolizer of Tamox switch to Femara.Feb 2010: cyp2d6 test reliable? Back to Tamox. Ooph soon.
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Oct 5, 2009 07:44AM Pure wrote:

Also, dont look at the stats. The stats calculatator that docs use and produce those lovely graphs dont includeherceptin, don't seperate hr positive and hr negative, don't account for post masectomy radiation, and don't account for the newer drugs like zometa.

Dx 8/8/2009, IDC, ER+/PR+, HER2-
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Oct 5, 2009 08:54AM Pure wrote:

There was a lady on fox news this morning. She was diagnosed at age 31 with stage 3 and lymph node involvement. This year is 10 years for her. And just think 10 years ago I don't think they had some of the drugs we have today nor did they have zometa.

Dx 8/8/2009, IDC, ER+/PR+, HER2-
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Dec 7, 2010 07:08AM umesh wrote:

I am writing on behalf of my sister who is 43 years old and is diagnosed with Stage 3C breast cancer. She is very disappointed with the entire news and I have no clue how to encourage her to take on this. I am reading some stories here which is helping a bit but it would nice to hear more or to find some links to some good inspirational stories. She starts her Chemo tomorrow and I want to give her something that she can read and get motivated. Cant see her dying before she absolutely looses it medically.

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Dec 7, 2010 12:38PM Cat123 wrote:

It's great to hear the long term survivor stories.  I'm curious....for women who survived 10 to 20 years, would they have used CMF chemo?  Was that the only one available then or were other ones around too? 

Cat123 Dx 7/29/2010, IDC, 6cm+, Grade 3, 4/17 nodes, ER+/PR+, HER2-
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Dec 8, 2010 01:31PM Pure wrote:

We have whats called 3rd generation chemo. So we definitly have an advantage based on what they would have had.

Dx 8/8/2009, IDC, ER+/PR+, HER2-
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Feb 8, 2012 02:59PM , edited Jan 1, 2013 07:56PM by TectonicShift

This Post was deleted by TectonicShift.
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Feb 9, 2012 12:02PM oaktownmom wrote:

I have a friend who is 14 years out from a Stage IIIc, triple negative diagnosis!  She was diagnosed in her late twenties.  She's doing fantastic!

Dx 6/23/2011, IDC, Stage IIIA, 6/14 nodes, ER+/PR+, HER2- Surgery 7/11/2011 Mastectomy: Right; Lymph node removal: Underarm/Axillary, Right; Prophylactic mastectomy: Left Chemotherapy 8/15/2011 AC + T (Taxol) Hormonal Therapy 1/1/2012 Radiation Therapy 2/7/2012 Surgery 11/13/2012 Prophylactic ovary removal Hormonal Therapy 1/1/2013 Femara (letrozole)
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Feb 9, 2012 12:29PM clariceak wrote:

Remember, bc org hasn't been around for ten years so you will only hear second hand stories.  There are probably many many women who are doing great that will never be acccounted for on this board.

My aunt had a masectomy in the 1970's and ovarian cancer in the 1980's.  She's in her 80's and going strong.,

Chemo, rads, Femera, Zometa, Ooph Dx 9/8/2009, IDC, Stage IIIC, 9/35 nodes, PR+, HER2- Chemotherapy 10/6/2009 Adriamycin (doxorubicin), Taxol (paclitaxel) Radiation Therapy 3/24/2010 Breast, Lymph nodes Hormonal Therapy 5/10/2010 Femara (letrozole) Surgery Mastectomy: Left; Lymph node removal: Underarm/Axillary, Left; Prophylactic mastectomy: Right; Prophylactic ovary removal
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Feb 9, 2012 01:51PM CherylinOhio wrote:

I love hearing these stories as I am having a bad day today.

Lstreett, good to hear about your friend!!

Some days there won't be a song in your heart...sing anyways. Emory Austin Dx 3/29/2011, 4cm, Stage IIIC, Grade 3, 17/23 nodes, ER+/PR+, HER2- Chemotherapy 5/24/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 9/21/2011 Breast, Lymph nodes Surgery 3/18/2012 Reconstruction (right): Latissimus dorsi flap Surgery 9/17/2012 Mastectomy: Left; Reconstruction (left); Reconstruction (right) Surgery 12/19/2012 Prophylactic ovary removal Hormonal Therapy 1/1/2013 Arimidex (anastrozole)
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Nov 25, 2012 10:05AM , edited Sep 11, 2013 10:16AM by Kheng

Glad to know that you are stage 3 and grade 3!
We share the same boat!
Mine is ER+
Currently on Arimidex
Are you on Arimidex or Femara?
ASCO journal had done a research on 5000 patients on Femara
50% suffer stroke and heart attack while taking Femara!

Thank you for posting that encourages me!

Can you share on your diet and lifestyle!
I abstain from soya beans products as well as barbecue foods , deep fried oily foods!


Most people around me are negative including my oncologist Ng Chee Hui from Canada but I am very sure that I can survive for another 22 years!

Praise God for his tender mercy and faithfulness!

Kheng from Singapore
DX Aug 2011 MX. DCIS STAGE 3A grade 3 8/18+ nodes ER+
AC X 2 Paclitaxel 12 weekly Rad 25 weeks of 50 grays! 1 mg Arimidex 500mg lingzhi/yunzhi daily 500mg calcium with vitamin D3 Kordel glucosamine with chondroitin and msm to fight bone and joint pains Ester-C to fight infection

plus 22 varieties of herbal tea that I brew daily prescribed by TCM professor oncologist in Singapore
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Dec 2, 2012 09:24PM lightandwind wrote:

Kheng, Can you share the link that said that 50% of people on femara experience stroke or heart attack? I looked for this and could not find any such data.

The article i read said that 1.1 percent experience stroke and 6 % cardio event.

http://www.medicalnewstoday.com/releases/63499.php

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Dec 6, 2012 03:21AM Momine wrote:

Lightandwind, same here. 

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/19/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/12/2011 Mastectomy: Left, Right Radiation Therapy 1/8/2012 Surgery 3/7/2012 Prophylactic ovary removal Hormonal Therapy 3/31/2012 Femara (letrozole)
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Dec 7, 2012 10:21PM waitingtoexhale_26 wrote:

well when I see my oncologist that could be 1 of the questions I ask him ...I take femara I have taken it since last February 2011 ..

fear is worring about something that isn't as though it is Hormonal Therapy 1/31/2011 Femara (letrozole) Dx 4/2011, IDC, 3cm, Stage IIIA, 9/21 nodes, ER+/PR+, HER2-

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