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Topic: Stage III

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Nov 13, 2007 12:33AM - edited Nov 13, 2007 12:33AM by 010407

010407 wrote:

Anyone there?

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Posts 1 - 30 (31 total)

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Nov 13, 2007 09:33AM Bugs wrote:

Yes, we are here!  Are you newly diagnosed?  How can we help you?

Bugs

Dx 2/1/2006, IDC, 6cm+, Stage IIIA, Grade 3, 3/16 nodes, ER+/PR-, HER2-
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Nov 29, 2007 10:27PM SpunkyGirl wrote:

We're here when you need us!

Bobbie

"Gratitude is the fairest blossom which springs from the soul."
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Nov 30, 2007 09:22PM - edited Nov 30, 2007 09:30PM by AprilOdo7

Help! I was recently diagnosed with IDC in August of this year.

My initial diagnosis was just prior to the surgical oncologist acknowledging that a wire from a previous 'biopsy' that went wrong was still inside my breast. What was then a 1 cm lesion now presents as a 6 - 8 cm cancer.      

A subsequent MRI revealled that I had a 6 - 8 cm lesion presenting in both breast. I was given the option of bilateral masectomy. I was devestated.

Since I could not feel the lesion on the right breast, I found myself literally running from the said diagnosis in preference of finding a second and/or third opinion. My second opinion revealled nothing in the right breast despite my strong feeling that 'something' was actually present there: I had been told as much.... The doctors seemed to have issue with the initial MRI. Yet, a third opinion revealled something that both startled me as well as diminished my faith in what I have come to place my hope in: doctors and modern medicine; for my third opinion, in attacking the findings of the first MRI, revealled that there was nothing whatsoever presenting in my right breast in the form of a 6 - 8 cm mass. It was discovered then that the MRI individual, a radiologist by profession, had deliberately transposed my MRI to give the false positive of something being there AFTER I argued in defense of my referring physician that what I was sent in for a diagnostic mammogram for was the fact that the Doctor referring me stated emphatically that this was a solid mass with no definable boarders and that I would stand by her prognosis ..until proven otherwise. She, being a radiologist, I said, was literally stepping out of her boundaries in diagnosing my condition: She demanded that all I had was a 1.3 cm cyst and that she would be recommending that it be asperated else that I be seen in one year for follow-up evaluation only. This deception has taken some four months away from the proper diagnosis of my disease and its ultimate treatment. 

Further deception was this place telling me that there was no lymph node involvement in the left axilla. There was swelling and pain ...yet on ultrasound biopsy of the left breast at the surgeon's order, a rather large lymph node presented itself directly adjacent to the 6 - 8 cm mass. When I asked what this was, the radiologist conducting the biopsy stated, "That is a lymph node." When I asked if he was going to do a biopsy of the node as the doctor had requested in his referral notes, he stated, "No...we are not gonna touch that." Later I hear from my doctor that they say that there is NO lymph node involvement, of which they electronically place in my medical file.

 Also,  when the first MRI needed further evaluation on the right, due to what had presented itself, she herself volunteered to do the biopsy, thus taking another doctors place that afternoon.  She entered just under my right breast, and into the fasia tissue between the breast and the breast muscle, and removed tissue from there to present to the pathologist: a place that was certain to reveal nothing there, as the MRI was maliciously transposed and nothing would have been found anyway. 

My total lack of faith in the ability of this organization as a whole in unbiased treatment of my ailment is without warrant. I feel afraid for myself and my family....wondering if I have a fighting chance to beat this thing...at least for my husband and children's sake. My husband states that I should go with this organization, dispite  what had happened, and that the cancer is 'getting larger and spreading' and that I need systemic chemotherpy immediately, that he loves me and that he doesn't want to lese me. I think, with these people? What a wad of crock! Are you serious? Never the less here I am...Undecided...yet still wary and undecided.

I have started neoadjuvant chemotherphy in an effort to, first of all, shrink the mass so as to try for breast conservation surgery at a later date. But, I do not know as of yet whether or not this my cancer is actually  responsive to this treatment: I just want to have this thing out as well as the enlarged lymph nodes as well, several now, that now present themselves in both left axilla. 

The medical oncologist (chemo doctor) now states that the surgical oncologist has stated that he will be doing a lumpectomy sometime in December, as well as a lymph node dissection. I am hurting here....emotionally.

Any suggestions on how to navigate this rough terrain I now find myself and my family travelling upon will be much appreciated. Thank You.  

“Your belief determines your action and your action determines your results, but first you have to believe.” -Mark Victor Hansen Dx 8/30/2007, IDC, 6cm+, Grade 3, mets, ER-/PR-, HER2-
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Nov 30, 2007 09:33PM AprilOdo7 wrote:

OK...

I guess I am venting...else talking to myself, right?

I'm sorry....

“Your belief determines your action and your action determines your results, but first you have to believe.” -Mark Victor Hansen Dx 8/30/2007, IDC, 6cm+, Grade 3, mets, ER-/PR-, HER2-
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Nov 30, 2007 09:49PM - edited Nov 30, 2007 09:50PM by Fitztwins

My dear, this is not an interactive board, like a conversation. We all check in now and then, so responses to your post may not be immediate.

Now, you are in the throws of shock and I am sure scared beyond your wildest imagination.

If you don't trust your medical care team, find another. I think we spend a lot a time second guessing ourselves. I found that this board was an excellent resource and the treatment that I received was compariable to others.

I did not have chemo before. I had a left mast, then chemo, then rads. I wonder if the lymph node you are speaking to is a mamm lymph node and not one under the arm?

please come back with other question you might have. We have other conversations that may be more specific to what you are going through. Like "going through treatement"..

Janis

Enjoy Every Sandwich. Dx 12/12/2004, IDC, Left, 3cm, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+, HER2+ (FISH) Surgery 1/18/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 1/31/2005 AC + T (Taxol) Radiation Therapy 4/30/2005 Breast, Lymph nodes Targeted Therapy 5/31/2005 Herceptin (trastuzumab) Hormonal Therapy 12/31/2005 Femara (letrozole) Hormonal Therapy 6/1/2008 Aromasin (exemestane) Targeted Therapy 6/30/2008 Herceptin (trastuzumab) Hormonal Therapy 6/14/2013 Arimidex (anastrozole) Targeted Therapy 9/4/2015 Perjeta (pertuzumab)
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Nov 30, 2007 10:18PM maryannecb wrote:

That is quite a story April. Sorry you are dealing with this and that you are so distressed right now.

Like Janis said this is a discussion board so often your question or comment may take time to generate some reponses.

Trust is the basis of your relationship with the medical team. If you do not trust your caregivers ,start looking elsewhere.

Many women on this board have had neoadj chemo and many have had great reponses. Although it is hard to wait for the proof that the chemo is working for you, thati s just what you have to do... Wait...and this is a great place to do it as many of us have been in a similar spot.

Fists up!

Fists up! Dx 9/20/2005, IDC, 6cm+, Stage IIIA, Grade 2, 2/14 nodes, ER-/PR-, HER2+
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Nov 30, 2007 10:43PM Hattie wrote:

I had chemo to shrink my mass, then had surgery and it was a lumpectomy, not a mastectomy. Write down your questions and collect copies of your reports (surgery, pathology, etc). You can do this (even tho you don't want to).

take care,
--Hattie

life is good
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Dec 1, 2007 01:32PM - edited Dec 1, 2007 01:48PM by AprilOdo7

Thank you Janis, Maryannecb and Hattie.

I DO understand that this is not an interactive board inthe sense of your typical chat forum. Lol...I promise to do better next time...<smile>

I think with all cancer patients, at least it is with me, that there is a need for understanding in all things pertaining to our experience.  In my need to know, I find that I am getting the short side of the deal here, and it would be best I did go with my gut feeling to seek out a more trustworthy team for my medical care.

I went into this thing when symptoms of this condition started to show (pain and discharge with a lump that seemed to increase in size with every "monthly plague")...TOTALLY trusting and dependently leaning solid on the shoulders of my current medical team: thus far I feel a let down....

I totally agree that the answer is to look elsewhere, at least in the direction of  an National Institue of Health affiliated organization specializing in womens Breast Care--I am currently located in the desert region of Southern California where the doctors are either foreigners or 'shipped out' from the inner cities and surrounding surburban areas to 'make a difference' here. $$$...who knows....

My second and third opinions were had along the coastal regions of Southern California, Irvine, CA and Newport Beach, CA where the quality of care as well as the positive outcomes for women experiencing breast cancer are phenomenally better. (That care is some 55 miles away...and expensive to get to as well, but initially, I was willing to travel.)

Hattie, I HAVE ALL of my medical records so far,as well as all MRI's, CAT scans, diagnostic mammograms, bone scans, lung scans, brain scans, etc. Mind you, apart from the initial MRI, I had to come out of pocket in paying for many of them while in Irvine and Newport Beach. The reports and x-rays seem to tell a story of medical neglect and/or malpractice.

True. Again, I DO need to look elsewhere for my care...as well as seek out a legal professoinal for further assist.

Ok...No more venting here. I need to start reading the board,...listening....so as to understand...lol...and not give sacrifice by talking too much,hmm?

Blessings ladies.

And thanks for responding to little ol' me. 

AprilOdo7

“Your belief determines your action and your action determines your results, but first you have to believe.” -Mark Victor Hansen Dx 8/30/2007, IDC, 6cm+, Grade 3, mets, ER-/PR-, HER2-
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Dec 1, 2007 01:35PM - edited Dec 1, 2007 01:48PM by AprilOdo7

Hattie.

If I may ask....

Just how sizable was your mass?

You sound like you were in the same boat as I am...yet no long afraid. I know I am...Cry

“Your belief determines your action and your action determines your results, but first you have to believe.” -Mark Victor Hansen Dx 8/30/2007, IDC, 6cm+, Grade 3, mets, ER-/PR-, HER2-
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Dec 1, 2007 01:36PM - edited Dec 1, 2007 01:48PM by AprilOdo7

Oh Dear!

My poor sig line...better.

“Your belief determines your action and your action determines your results, but first you have to believe.” -Mark Victor Hansen Dx 8/30/2007, IDC, 6cm+, Grade 3, mets, ER-/PR-, HER2-
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Dec 6, 2008 11:45AM Carol00 wrote:

My suggestion is to immediately join a nearby Breast Cancer Support Group.  My Kaiser Support Group telling me about their experiences has helped to alleviate my worrying.  I have met a half dozen women who have survived more than 10 years!  I have hope.  My Group also gave me the strengths and weaknesses of various Oncologists, causing me to switch Oncologists.

I  e-mail questions to the appropriate physician.  For example with my Plastic Surgeon I asked how many Reconstructed Breasts with TRAM FLAPS he had done and how many were failures.   With his answers I felt much more confident going into the surgery the next day. I also do internet searches on parts of answers that are confusing.

My most recent enlightenment has been the discovery that Chemotherapy is an ART not a SCIENCE.

I hope this helps.  Take what you like and leave the rest.

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Dec 6, 2008 11:46AM Carol00 wrote:

My suggestion is to immediately join a nearby Breast Cancer Support Group.  My Kaiser Support Group telling me about their experiences has helped to alleviate my worrying.  I have met a half dozen women who have survived more than 10 years!  I have hope.  My Group also gave me the strengths and weaknesses of various Oncologists, causing me to switch Oncologists.

I  e-mail questions to the appropriate physician.  For example with my Plastic Surgeon I asked how many Reconstructed Breasts with TRAM FLAPS he had done and how many were failures.   With his answers I felt much more confident going into the surgery the next day.

 I also do internet searches on parts of answers that are confusing.

My most recent enlightenment has been the discovery that Chemotherapy is an ART not a SCIENCE.

I hope this helps.  Take what you like and leave the rest.

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Dec 8, 2008 12:14AM Annaanne wrote:

Just checked in and saw your post.  I had my surgery (lump after neo adjuvant chemo) at the Joyce Keefer Breast Center, St. John's Hospital in Santa Monica, CA.  I still have my checks there (3 years later) and I think they are fantastic.  I don't know your insurance situation, etc, but I highly recommend them if you are looking for a surgeon.  If you want more specific info, let me know.  I know this is even further than Irvine, but might be worth it. I traveled there from Oregon and am so glad I did.

Annaanne 

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Jan 27, 2009 02:44PM Riariv wrote:

Hello,

I am advocating for a friend of mine who was recently diagnosed with Breast Cancer Stage III. On 1/30 she is having her left breast and lymp nodes removed. In November she noticed a lump and had a mammogram/ultrasound and the lump measured 2cm, then in December she got a second opinion and the lump grew to over 4 1/2 cm. I believe 1 to 2 lymph nodes tested positive for cancer. She will recieve chemo in 4wks and will have chemo treatments for 3months. I myself was diagnosed with cancer in 2007 (leiomyosarcoma) and knowing what I know about chemo treatment I am guiding her through this dark moment of her life. My question is what is the recovery time for a masectomy? What are the chances of reccurence and survival? What can she expect in the couple of days after her surgery? Is it difficult to care for the drainage tubes? Thank you soo much for your input and knowledge. Love, Maria/Indiana Smile

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Jan 27, 2009 03:16PM Celtic_Spirit wrote:

April,

My insurance/treatment is with Kaiser of Southern California (San Diego, to be specific). I double-checked everything my oncologist recommended, and believe me, I received gold-standard treatment. They didn't scrimp on anything. I don't know if you're with Kaiser, but if so, I can't say enough good things about the treatment I received here in SD. My surgeon and onc were absolutely wonderful, and the nursing staff amazing. Perhaps you could use the SD facilities? Send me a PM if you need further info.

Dx 2/8/2008, IDC, Stage IIIA, Grade 3, 9/30 nodes, ER+/PR+, HER2-
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Oct 26, 2009 08:10PM - edited Oct 27, 2009 10:02PM by iharris

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Oct 27, 2009 09:45AM Pure wrote:

The drainage tubes are very simply. Mine were out within 7 days.I am not sure of her age or level of health. I had masectomy and full auxillary disection. once she has the surgery she will have so much more information. Stats-don't look at them there updated and don't help you with anything but stress.

Dx 8/8/2009, IDC, ER+/PR+, HER2-
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Oct 30, 2009 09:54PM Elaine_1234 wrote:

Hi,

First time on line. Her-2+ wondering if it will come back.

Elaine

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Oct 30, 2009 10:00PM lexislove wrote:

Elaine,

A womans pronosis depends on many different factors. The main ones being: tumor size,number of positive lymph nodes,ER & Her2 status, tumor grade.

Since you are Her2+ I assume you have had Herceptin? Herceptin has greatly changed the stats for Her2+ woman. Best person to ask is your onc about your individual diagnosis Smile

Dx:2007, 2B, Triple+, June 2008:Lupron,Zometa,Tamox.Jan 2010:Poor metabolizer of Tamox switch to Femara.Feb 2010: cyp2d6 test reliable? Back to Tamox. Ooph soon.
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Oct 30, 2009 10:23PM Elaine_1234 wrote:

Hi,

So glad to connect with someone who is Her-2+ as well. I had stage III, 5cm, all lymph were neg,ER neg, grade III. I had surgery 4-08 mastectomy, one year of Herceptin, 28 Rads as well. I completed my treatment last month. I have recently been contacted for a trial research for Neratinib. Sometimes I get it on my mind and I become anxious. I have had 3 oncs (2 moved to different areas) I feel that everything I read indicates that Her-2 will return. The oncs do not say so because I am sure that they do not really know. My surgeon said that the kind of cancer I have tends to return in 2-5 years. The oncs seen a little more optimistic. I have not found anyone with Her-2 to talk to. I wondered what others felt about recurrence, among other things that I know we all have in common.

Peace,

Elaine

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Oct 30, 2009 10:45PM lexislove wrote:

Elaine,

The is a whole Her2 forum on these boards...just scroll down the forums list to find. We are similar to diagnosis, only Im ER+ and my tumor was larger, 8cm. Both my onc and surgeon are optimistic about my future.

Your onc would be the one to listen to regarding your breast cancer. And yes...Her2 disease is most likely to recur in the first 2-3 years....after 3 years recurrence rates drop quite considerably.

Dx:2007, 2B, Triple+, June 2008:Lupron,Zometa,Tamox.Jan 2010:Poor metabolizer of Tamox switch to Femara.Feb 2010: cyp2d6 test reliable? Back to Tamox. Ooph soon.
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Oct 31, 2009 07:15AM KerryMac wrote:

Elaine - don't listen to your Surgeon, they are notoriously "Doom and Gloom." If your Onc is encouraging, I would go with that.

Come here or to the HER2 forum for support - there are lots of great survivor stories!

Kerry - Dx Oct 2008, Stage IIIa IDC, ER/PR+ Mx, Chemo, Rads, Ooph, Arimidex, Zometa, Tamoxifen
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Oct 31, 2009 10:00AM Brenda_R wrote:

Elaine, the Her2 forum is here-

http://community.breastcancer.org/forum/80

Dx 12/12/2006, IDC, 3cm, Stage IIIA, Grade 3, 1/17 nodes, ER-/PR-, HER2+ Surgery 12/29/2006 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 1/28/2007 AC Radiation Therapy 5/1/2007 Breast Targeted Therapy 7/10/2007 Herceptin (trastuzumab)
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Oct 31, 2009 02:02PM Elaine_1234 wrote:

Hi,

Why are you on these other drugs? I completed treatment and the oncs say there is no further treatment plan for me. I am suppose to be cancer free at this point?!!! What do you think about the new trial drug Neratinib? I feel a responsibility to go thru this, but I am so very tired of all of this. I think that I am coming to the conclusion that once you have cancer that it is so inertwined with all of your life that you can never pretend that it did not happen. You can never go back to the way life was. Cancer is always going to be a big part of your life. We all have pivitol points in our lives, things that change us forever. Cancer is one of ours.

Peace,

Elaine

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Nov 3, 2009 03:00PM - edited Nov 3, 2009 03:02PM by fame4545

Hi Elaine,

You're not alone. I was diagnosed with an invisive ductal C stage 111c breast cancer in April 1,2009. I had 2 surgeries lumpectomy and masectomy. I just finished my 6 treatments of chemo and still have 8 more months to go for the Herciptin. I had 18 lymph nodes removed and 1 node under my arm was positive. I have met a lot of breast cancer patient but none what I have. I was so scared for my life. My Onc. didn't mention Neratinib drugs. I will ask, in my next visit. I was told that with out this Herciptin drugs with my prognosis, I have 3 months to live. I give a lot of credits to the researcher for their hard work. Laughing

Good luck Elaine

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Nov 3, 2009 08:44PM - edited Nov 3, 2009 08:44PM by Elaine_1234

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Nov 3, 2009 08:48PM Elaine_1234 wrote:

Hi Fame,

So glad to hear form you. I have reconstruction surgery on Thurs and not enough time to get all the things done I need too. We have lots to discuss. You will hear from me soon.Please keep the courage.

Peace, Elaine

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Nov 4, 2009 10:17AM - edited Nov 4, 2009 10:18AM by fame4545

Hi Elaine,

Good Luck to you on Thursday. I'll keep you in my prayers.

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Jan 22, 2011 05:35PM sharder1123 wrote:

Hi, I saw your post and I am wondering how you are doing? Your post is from a couple of years back and I have just been diagnosed with the same stage and am finishing up my treatment. I must admit I am feeling a little lost. Ever since the diagnosis my cancer team and I have been in emergency mode. Now that I have completed having my ovaries and tubes removed (no cancer found) chemotherapy followed by a double mastectomy (cancer only in rt breast but family history involving both breasts elected to remove both) and now radiation I am sort of wondering what to expect now. Do I just sit and wait for a reoccurance, can I feel confident that it won't come back? I feel I have done everything I can do at this point to rid myself of this disease but feel like as soon as I relax it will come back. What are your thoughts? I will be having reconstruction surgery as well and feel a little worried about that! Are you still out there?

Dx 4/20/2010, IDC, 5cm, Stage IIIC, ER-/PR-, HER2-
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Mar 23, 2011 04:09AM ChristyS wrote:

Hi,

I hope someone can help me. I have had two mammograms in my life. Just about 9 months after my last mammo I began to feel pain in my right breast. I asked for an ultra sound. I am with an HMO and they have given me false reports in the past on an injury I had so I'm a bit concerned on whether or not I can trust their reports. That said, I had a friend who's survived breast cancer sit in on the ultrasound and she said that there was a kidney bean shaped cyst/lump/etc and two normal looking round ones. I requested a copy of the actual ultra sound.

On the ultra sound cd image itself, there are measurments of all 3 cysts. The kidney bean shaped cyst measurment  is numbered 1L  & 2L  On the 1L measurement it says 8.05cm and on the 2L it says 3.32cm. The two yellow lines cross each other.

On the other two cysts the measurements are: RT OV LNG/TRV A) 1. 2.88cm   2.1.80cm  and B) 3. 2.82 cm. On A they cross and on B it's just a straight yellow line.

 Now here's where it gets weird. On my ultrasound report it reads the following:

Right breast appears to show a cyst at 12 o clock measuring 0.99 x 0.64 x 0.70 cm, and two cysts are noted at 6 o clock measuring 0.49 x 0.7 and 0.55 x 0.46 cm.

Can someone please tell me why the report doesn't match what's on the actual ultrasound? Am I missing something here?

I'm really worried. My Dr. said despite the fact that I have pain, and my report reveals nothing more than cysts, he is going out of his way to send me to a surgeon for  a biopsy because I'm the ONE special patient he has.  Which by the way hasn't happened yet b/c the one he sent me to isn't accepting anymore patients. Any suggestions or advice is greatly appreciated.

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