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Topic: Positive nodes with long term survival

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Aug 17, 2011 06:56AM - edited Jan 1, 2013 05:52AM by many

many wrote:

I WOULD LIKE TO HEAR FROM WOMEN WITH LOTS OF POSITIVE NODES AND HORMONE POSITIVE WHO ARE SURVIVORS OF 10 /15 /20 YEARS, PLZ POST

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Aug 17, 2011 09:53AM solange49 wrote:

Hi Many, your diagnosis and mine are very similar. I am still undergoing chemo and will have my BMX and rads afterward. I had a PET scan at the beginning but not certain how many positive nodes I have. My Onc said she would not be sure of the amount until my surgeon went in. Have you visited the "3+ years out" forum. I enjoy going to that one. It gives me hope for long term survival. Speaking of hope...I just finished a wonderful book that I would recommend to any woman with breast cancer. It's called "There's No Place Like Hope" written by Vickie Girard. She was diagnosed in 1992 with advanced stage IV breast cancer. Although she's no longer with us... She lived for 15 years! Her story and spirit inspired me. :) I have read several books since being diagnosed. Vickie's jouney and message was so uplifting. It brought me to tears. We need all the hope and encouragement we can get right now. There are also several good survivor stories on the Susan Komen site.

Diana

Diana Dx 5/19/2011, IDC, Stage IIIC, Grade 2, 13/15 nodes, ER+/PR+, HER2- Chemotherapy 5/30/2011 AC + T (Taxol) Chemotherapy 5/30/2011 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxol (paclitaxel) Surgery 10/24/2011 Lymph node removal: Right; Mastectomy: Left, Right Chemotherapy 11/14/2011 Carboplatin (Paraplatin), Gemzar (gemcitabine) Radiation Therapy 2/20/2012 Breast, Lymph nodes Hormonal Therapy 4/30/2012 Surgery 9/14/2012 Reconstruction (left): DIEP flap, Free TRAM flap; Reconstruction (right): DIEP flap, Free TRAM flap Dx 10/31/2012, IDC, Stage IV, Grade 2, ER+/PR+, HER2- Chemotherapy 2/27/2013 Xeloda (capecitabine) Chemotherapy 10/19/2014 Navelbine (vinorelbine)
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Aug 18, 2011 01:18PM Shanagirl wrote:

Hi Many,  I know from your previous posts that this is a lot for you to go thru with your wife.  I can tell you that with the treatment today, breast cancer is not the death sentence it used to be.  Trust in your wife's treatment plan.  Once she begins treatment you will feel a little more confident that you are more in control of this.  Just remember the SE's are tough to deal with but doable with support.  Stay connected here for the support you will need. The stage III women are all wonderful and encouraging and will help you thru this.

image

Barb

Shanagirl Dx 1/13/2009, IDC, 5cm, Stage IIIA, Grade 1, 2/18 nodes, ER+/PR+, HER2- Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)
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Aug 18, 2011 04:50PM bak94 wrote:

My sister's sister in law had alot of positive nodes and her tumor was attached to her chest wall and she is abut 9 years out. Hers was er pr positive and im not sure about the her2. I can't rmember how many nodes positive but I think it was 14.

Not really sure what stage I am-Some docs say 3C, others say stage 4. I had no auxillary nodes positive but had internal mammary nodes positive and possibly mediastinal node positive. It's just a number anyways, right? Dx 12/15/2002, IDC, 3cm, Stage IIB, Grade 3, 2/40 nodes, ER-/PR-, HER2- Surgery 1/2/2003 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 2/5/2003 Adriamycin (doxorubicin), Taxol (paclitaxel) Radiation Therapy 7/8/2003 Breast, Lymph nodes Dx 4/5/2011, IDC, 2cm, Stage IIIC, Grade 3, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 4/27/2011 AC Targeted Therapy 5/14/2011 Avastin (bevacizumab) Chemotherapy 7/29/2011 Abraxane (albumin-bound or nab-paclitaxel) Surgery 11/30/2011 Mastectomy: Left, Right Radiation Therapy 2/11/2012 Breast, Lymph nodes Hormonal Therapy 4/10/2012 Aromasin (exemestane) Hormonal Therapy 8/2/2012
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Aug 18, 2011 11:07PM kathleen1966 wrote:

Dear Many,

I am only a year out with four nodes but my oncologist has a woman who had 25 positive nodes and was also her2+ and she is going on year 10!  I also have a friend who was stage III with many nodes and she is going on year 12 year of being cancer free! Recently, when I had to get another Herceptin treatment, there was a woman sitting next to be who had metastatic breast cancer that had gone to her bones.  She was hormone postiive.  Even though her cancer was metastatic, she was in her 14th year of treatment. ...I hope this helps...

Dx 7/26/2010, IDC, 1cm, Stage IIIA, Grade 2, 4/15 nodes, ER-/PR-, HER2+ Dx 7/26/2010, DCIS, 6cm+, Stage IIIA, Grade 2, 4/15 nodes, ER-/PR-, HER2+ Dx 7/26/2010, Paget's, 1cm, Stage IIIA, Grade 2, 4/15 nodes, ER-/PR-, HER2+ Surgery 8/22/2010 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 9/6/2010 Herceptin (trastuzumab) Chemotherapy 9/6/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 2/28/2011 Breast, Lymph nodes
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Sep 7, 2011 08:38AM many wrote:

Plz come up with more inspiring stories

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Sep 7, 2011 11:03AM vmudrow wrote:

My mom is a 21 year cancer survivor. She had cancer is 22 out of 24 nodes. Not sure if she was harm one positive or not but she has been on tamoxifen for 21 years. Doctor says she has done so well on it he wants her to stay on it. She will turn 83 on Saturday!

valerie, Diagnoised 1/24/2010 with atypical lobular hyperplasia, prophylactic NSM on 5/6/10, strong family history, 40% risk of breast cancer
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Sep 8, 2011 02:51PM Pure wrote:

My oncologist has a stage 3 sister with over 21 nodes. My friend had 10 nodes and is 19 years out.

Dx 8/8/2009, IDC, ER+/PR+, HER2-
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Sep 9, 2011 12:08AM weesa wrote:

I only had five positive nodes, but they were huge, totally engulfed in tumors and matted together, and I am nine years out despite a Ki-67 of 75%.

Sometimes I wonder if I am an old soul temporarily trapped in a breast cancer body. Dx 11/22/2002, IDC, 6cm+, Stage IIIA, Grade 2, 5/25 nodes, ER+/PR+, HER2- Chemotherapy 1/20/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/14/2003 Breast, Lymph nodes Hormonal Therapy 8/23/2003 Femara (letrozole) Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap
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Sep 9, 2011 10:02AM Mamita49 wrote:

From all the stories, YOU, weesa have made my day.......

Thank you soooo much,

Carol 

small little liver buggers Dx 12/15/2008, IDC, 3cm, Grade 3, 2/7 nodes, ER+/PR+, HER2- Dx 12/2012, IDC, Stage IV, Grade 3, 0/0 nodes, mets, ER+/PR-, HER2-
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Sep 9, 2011 11:09AM orlandpark65 wrote:

Thanks for the positive stories.   I have stopped telling people "how many nodes"  I'm sick of the

"Oh my God!" comments.  I'm treating my stage and nodes as my weight   I LIE big time.  LOL... 

Dx 1/11/2011, IDC, 6cm+, Stage IIIB, Grade 2, 15/20 nodes, ER+/PR+, HER2-
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Sep 9, 2011 11:32AM - edited Sep 9, 2011 11:34AM by peggy_j

There's a woman in my healing imagery group who had mets to her lymph nodes and is a 15+ yr survivor. (I don't know more details of her case). A friend is an 11 yr survivor. Her tumor was grade 3, and it had spread to 7 nodes (and they were enlarged) and the risk of recurrence with only surgery was pretty darn scary. She did chemo and hormone blockers and now 11 yrs later is doing great. (((hugs)))

Dx 2/2011, IDC, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Sep 9, 2011 04:15PM Pure wrote:

I have 2 facebook friends..One is stage 3 witth 2 tumours and 5 nodes...The nodes were bursting with cancer. She is 9 years out. I have another friend who is 6 years out. She had 10 nodes...SHe use to come here...Years ago...She doesn't visit here anymore...

Dx 8/8/2009, IDC, ER+/PR+, HER2-
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Oct 8, 2011 01:04PM - edited Jan 1, 2013 05:53AM by many

More stories plz

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Oct 8, 2011 08:25PM pupfoster1 wrote:

Many,

Can't say I'm 10+ years out, but 2 at this point! 

Best to you and your wife.

Sharon

Sharon Dx 9/17/2009, IDC, 6cm+, Stage IIIC, Grade 2, 13/15 nodes, ER+/PR+, HER2-
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Oct 8, 2011 08:29PM Jellydonut wrote:

Had three positive nodes & a nodule on top of the tumor.....9+ years out.

A friend had 11 positive nodes & is over 10 years out and doing well.

Dx 3/2002, IDC, Stage IV, 3/8 nodes, mets, ER+/PR+, HER2-
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Oct 16, 2011 01:35PM CynthiainChicago wrote:

vmudrow, Best thing I have heard all day.  May print this out!!! Thank you for sharing

Dx 2/19/2010, IDC, 1cm, Stage IIIA, Grade 2, 8/40 nodes, ER+/PR-, HER2-
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Oct 16, 2011 01:47PM Romansma wrote:

Thanks for the stories everyone!  I'm a year out from diagnosis and I needed a little inspiration to pop that tamoxifen today, go out and exercise, and eat lot's of fruits and veggies.  I hope to be one of those inspiring stories when I'm a grandma!

Hope Dx 10/22/2010, ILC, Right, 6cm+, Stage IIIB, Grade 2, 9/10 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 11/1/2010 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 4/1/2011 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide) Radiation Therapy 6/8/2011 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 11/29/2011 Prophylactic ovary removal Dx 8/2013, ILC, Stage IV, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 9/17/2013 Faslodex (fulvestrant) Targeted Therapy 1/25/2014 Afinitor (everolimus) Radiation Therapy 2/11/2014 External: Bone Chemotherapy 12/6/2014 Xeloda (capecitabine) Hormonal Therapy 2/20/2015 Femara (letrozole) Targeted Therapy 2/20/2015 Ibrance (palbociclib)
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Oct 16, 2011 01:51PM Fearless_One wrote:

Am only 2 years out, but had perinodal invasion as well (where cancer breaks out of the lymph nodes and invades nearby tissue).  

lump/chemo/rads/hyster-ooph/mastectomy/implants
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Oct 16, 2011 02:00PM cookiegal wrote:

nodes are not as strong a prognostic as they were in the past. Tumor biology is more significant, or so says my onc.

There is a school of thought that positive nodes shows the cancer was "caught".

I am not sure if that's something docs say to make us feel better, but there are node negative stage 4 women out there, so maybe there is something to it.

My friend says she thinks of it like football, the defense did it's job and blocked. 

You deserve a cookie!
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Oct 16, 2011 05:36PM - edited Oct 16, 2011 05:37PM by Paljo

WOW, WOW, WOW and WOW, again.........You ladies all just made my day!! love you all.

Dx 9/20/2010, IDC, 2cm, Stage IIIC, Grade 2, 14/19 nodes, ER+/PR+, HER2-
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Oct 16, 2011 05:55PM Patriotic wrote:

Thank you for the inspiring stories. I have a friend who was Stage III at dx at age 31. After chemo and rads concurrently, 5 years of Tamox and another 5 of AI, she is a 15-year survivor!

I am Stage III with at least 2 positive nodes. I hope to be answering this "call" next year and many more years from now. :)

Get busy living or get busy dying~Shawshank Redemption Dx 3/23/2011, IDC, 3cm, Stage IIIA, Grade 3, 3/11 nodes, ER+/PR+, HER2+
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Oct 16, 2011 09:05PM caaclark wrote:

Ok...I'll join in.  Diagnosed at age 40-no risk factors, in great shape, really did not that small lump was anything but checked it our anyway (you know the drill).  6+ nodes.  One node was 2cm large(extra-capsular extension-cancer coming out of the node!!!!).   I am over 5 1/2 years out.  My kids were 8, 6 and 4 when I was diagnosed.  They are now 14, 12 and 10.  I NEVER thought I would still be here to "enjoy" the teen years. 

Carol Clark- Author of WHEN OUR MOM HAD CANCER Diag.1/06 at age 40, 1.6cm, 6+nodes, stage IIIa, er/pr+, her2-, chemo, mast. rads, no recon
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Oct 17, 2011 12:50AM Ihopeg wrote:

I'm joining in too. Diagnosed 11/06 with multi focal tumors in rt breast. 19/20 nodes positive... Next month will be 5 years out!!!!!!!!!!

I Dx 11/11/2006, ILC, Right, 3cm, Stage IIIC, metastasized to bone, Grade 2, 19/20 nodes, ER+/PR+, HER2- Surgery 11/28/2006 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic ovary removal Chemotherapy 1/6/2007 Chemotherapy 1/9/2007 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/29/2007 Breast, Lymph nodes Hormonal Therapy 8/18/2007 Femara (letrozole) Dx 10/5/2018, ILC, Stage IV, metastasized to brain/bone, 20/21 nodes, ER-/PR-, HER2-
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Oct 17, 2011 01:07AM Juliebell22 wrote:

Love these stories!! Thank you all for sharing!

juliebell Dx 4/13/2011, IDC, 6cm+, Stage IIIA, Grade 2, 3/12 nodes, ER+/PR+, HER2-
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Oct 17, 2011 11:55AM lkc wrote:

12 nodes Positive, out over 6 yrs!!!

Linda K dx'd May 05 Stage IIIC erpr-, her pos, 12 pos nodes
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Oct 17, 2011 11:59AM lvtwoqlt wrote:

My mom had 8 positive nodes and she is 10 years out!

Women are like tea bags, we don't know how strong we are until we were thrown into hot water. Eleanore Roosevelt Diagnosed ADH Feb 2005, ADH Sept 2006 Surgery 2/11/2005 Lumpectomy: Left Surgery 9/9/2006 Lumpectomy: Right Hormonal Therapy 10/11/2006 Dx 4/27/2007, DCIS, Stage 0, Grade 1, 0/7 nodes Surgery 5/31/2007 Mastectomy: Left, Right
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Oct 17, 2011 12:13PM bevdurrant wrote:

hi ladies, thank you for posting these inspirational stories, i have two tumours one was found after my double mastectomy in the other breast, didnt show on scans or mamos, the tumour in the left side was almost 5 cm, the second 2 cm, micro mestasis to two of three lymphnodes, all scans clear.................i have been feeling very down thinking the worst lately, i have had my chemo and had problems with my TE so they were removed and now i have a wound vac on one side to heal my chest so that i can continue with radiation i am her2 neg.  It is easy to become obsessed with this site, whilst it is a good place to come it can also bring anxiety, but reading your messages has been uplifting, i wish you all a happy future.  thank you again Bev :)

Dx 3/2011, IDC, 5cm, Stage II, Grade 3, 2/3 nodes, ER+/PR+, HER2+
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Oct 17, 2011 12:28PM orlandpark65 wrote:

Thank you!  Need these stories

Dx 1/11/2011, IDC, 6cm+, Stage IIIB, Grade 2, 15/20 nodes, ER+/PR+, HER2-
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Oct 18, 2011 05:09AM KiwiMum wrote:

Wow. Thanks ladies for sharing. I love these stories and the pick me up they give us.

Dx 3/2/2011, IDC, 2cm, Stage IIIC, Grade 2, 12/24 nodes, ER+/PR+, HER2- Surgery 3/14/2011 Lymph node removal: Right; Mastectomy: Right Chemotherapy 4/19/2011 AC + T (Taxol) Radiation Therapy 10/25/2011 Breast, Lymph nodes Hormonal Therapy 11/1/2011 Surgery 2/1/2013 Reconstruction (right): DIEP flap Surgery 7/1/2013 Reconstruction (right): Nipple reconstruction Hormonal Therapy 10/17/2014 Aromasin (exemestane) Surgery Prophylactic ovary removal
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Oct 18, 2011 09:57AM Shanagirl wrote:

Such great stories.  I had once read on another forum about a stage IV girl who is 17 years out and still NED.  I love these stories.

image

Barb

Shanagirl Dx 1/13/2009, IDC, 5cm, Stage IIIA, Grade 1, 2/18 nodes, ER+/PR+, HER2- Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)

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