Apr 1, 2019 11:52PM KiwiMum wrote:
Yndorian- I haven’t had anyLE issues thankfully
Posted on: Dec 8, 2012 07:40AM
Posts 1381 - 1404 (1,404 total)
Apr 1, 2019 11:52PM KiwiMum wrote:
Yndorian- I haven’t had anyLE issues thankfully
Apr 2, 2019 08:10AM Yndorian wrote:
Thank you, I wish you many many happy years! Kisses
Apr 5, 2019 03:12PM - edited Apr 5, 2019 03:14PM by DancingElizabeth
It *really* helps to have these posts...
I am coming up on my 3rd cancerversary. It was April 13, 2016. I remember everything about that day. Including, the look on the radiologist's face...he looked as if he'd seen a ghost. His face turned white and said “it's not a cyst".
My tumor was large, ugly and very aggressive.
I honestly didn't think I would live another year.
But, I am here, alive and kicking...
I workout nearly everyday and am addicted to HIIT classes. I ran a 5K this past Sunday. And, finished in the top 1/4 of my age division.
I know this can always come back...and still have my dark moments. But, I am grateful to be able to do the things I can do.
And, wish I knew (back then) that I would still be alive today.
Apr 6, 2019 04:47PM Traveltext wrote:
DancingElizabeth, You had a diagnosis like mine, only a couple of years later. And like you, my ultrasound technician's eyes nearly popped out of her head before she dashed out to get a doctor. Hmmm, not the best way to find out, and I wish these people could be a bit more discreet, but I soon learned to toughen up and acquire the resilience necessary to handle this disease.
Best wishes to you.
Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
Jun 2, 2019 10:51AM joan888 wrote:
Just checking in after a few years of silence here. Been so busy living life! When I was first diagnosed, I never thought I would still be here NINE years later and still NED! Keep up your hope.
Jun 2, 2019 11:08AM - edited Jun 2, 2019 11:10AM by Yndorian
dancingelizabeth, traveltext, joan888: thank you for posting here the HOPE. It means so much for me and the other newers! God bless you guys!
Jun 2, 2019 11:33AM JMouse wrote:
KiwiMum, Joan888, Traveltext, DancingElizabeth, everyone here, thank you for your posts. I agree with Yndorian, your stories and perspectives help newbies like us. I hope years of NED just pile up for you all.
Yndorian, hang in there. Hey, I was diagnosed almost at the same time as you. (Does secret handshake of the club no one ever wanted to join.) The sadness and dread get to me, too. I keep hoping I can get past the treatments and scans and aches and worries and just glide for a bit. Let's both get there.
Jun 3, 2019 08:20PM 7of9 wrote:
JMouse.. gliding is good...it comes and goes...I'm 3 1/2 yrs from 10/14 nodes recurrence. Its gone for me these last few weeks, finally did nipple recon with fat grafting. Rougher than I thought. Now we are worried about husband's job this week, his company is restructuring this week and won'tknow if hes safe til end of the week. Uh oh. Always something .. life goes on. Seeing my healthy happy 9 yr old turn 10 in a few weeks. :)
Jun 5, 2019 12:54PM - edited Jun 5, 2019 02:51PM by JMouse
Congratulations on 3.5 years, 7of9. Hope your soon to be 10-yr old has a laugh-filled birthday and your husband's job is safe. I hope you can get back to that gliding soon. :)
Jun 8, 2019 02:56AM DeeMay wrote:
Just jumping in to say today is 7 years since I was diagnosed and I feel great. Apart from achy joints, thank you Arimidex, and mild lymphedema (confined to upper part of right arm) I am out in the world like any other mom, with my 18 and 16 yr old girls living life like a "nomal" person. I know, define normal😂 but, for a long time I struggled with a type of shame/guilt with getting breast cancer.... having "let my self down" not taking care of myself re diet and exercise, even though I wasn't overweight or particularly unfit when I was diagnosed. I resented my body for how it felt and looked after each surgery, after chemo, when I almost died from pneumonia. I was so angry with myself. I felt breast cancer as a stigma....I thought I stood out like a sore thumb to strangers on the street, Like someone with leprosy! I know now I didn't, obviously. But for a long time thoughts like this consumed me and although I was Oscar worthy for putting on a brave face, inwardly I felt unworthy. Sorry if this post is sounding like a moan, it's not meant to. It's just another facet to the many ways this diagnosis manifests in us. So on a happier note...I am in a much better place. Grateful and bold 7years on. Forever thankful for this forum and all the ladies who have given me hope inspiration and strength, without even knowing it.
Jun 8, 2019 02:37PM - edited Jun 8, 2019 02:40PM by Yndorian
7of9 and Deirdre (what a beautiful name) Thanks for your testimonials! I wish both of you a happy and long life!
JMouse: thanks for your words. I know you from another thread, can it be? Are you in chemo or rads now? I'm having my surgery next tuesday. I hope that we can do the secret handshake for another 40 years!
Jun 8, 2019 04:27PM JMouse wrote:
Yndorian: yes, I've seen you in the Fenbendazole thread, I think. :) Nice to meet you! I hope your surgery goes really well. Will you do radiation afterwards? How are you feeling?
I've just finished with radiation and already am on hormone suppression medication. It's weird that surgery, chemo, and radiation are now behind me. I'm worried but feeing more free.
:D Yes, I love the idea of enjoying the next 40 years! Let's do it!
Jun 8, 2019 07:01PM Yndorian wrote:
JMouse: yes, you're right. Fz thread. I'm glad that you have all your treatments behind you. Enjoy your new freedom. See you around😘
Jun 9, 2019 06:48AM Newnorm wrote:
Thanks for posting Deirdre. I understand your sentiment. I still feel permanently scarred and completely betrayed by my body. I really look forward to the day I finally forgive my body for letting me down. I’m confident I will get there soon. I too love these boards for the support. It’s amazing. Thanks for posting and providing honest feedback. Xx
Jun 9, 2019 11:17PM DeeMay wrote:
Here's to moving further away from the blame game and a complete return to good health. We owe it to ourselves.
All the best..... xx
Jun 10, 2019 10:46AM - edited Jun 10, 2019 10:47AM by santabarbarian
Re 'betrayed by my body' I want to point out that you can turn that thought around if you practice.... After all WE are HERE and so many women are not!! Many did not respond to treatment (we did) or did not withstand it (we did).
I feel this: being granted a gangbusters response to treatment and having had a fairly rapid return to normal, I get to be the person who is alive-- and I feel like being mean to myself or having animus against my body is wasting the luck I have been given. Like, if I get to be the lucky one, I ought to FEEL like the lucky one. Or I don't deserve that luck!
Your body dd not betray you. A cell went rogue. I know a never-smoker sunny happy straight edge athlete who got lung cancer!! Freak event!! Another friend who had breast cancer 20 years ago said a helpful thing to me: "You are a good apple with a brown spot. You cut out the brown spot, and you are still a good apple."
Jun 10, 2019 12:20PM JMouse wrote:
santabarbarian, you're so right, a cell just went rogue enough.
DeeMay, I don't know if this will help, but Dr Devon Lawson of the medical school at University of California, Irvine, said the following about blame and breast cancer at a metastatic breast cancer conference sponsored by Komen earlier this year:
"...breast cancer is essentially a genetic disease caused by DNA mutations that are generated during this cell division process.... [ ] ...your cancer is not your fault. It was not caused by something that you did wrong in terms of your lifestyle. It is inordinately caused by this process of cell replication which we all have to do in order to live.... [ ] ...I seem to get this question a lot about what, what did I do wrong. This is how it happens, and it's not because you did something wrong."
If you like, you can hear this part in her talk on youtube at the 32:56 min:sec mark of mets conference keynote address. (The keynote had four speakers and is almost 2 hours long. Her mini-lecture of breast biology and cell division error starts at 25:33, in case you are interested.)
Jun 10, 2019 02:48PM DeeMay wrote:
Thanks so much santabarbarian and JMouse. I will definitely watch that YouTube video. This is exactly the kind of reassurance I need when the negativity creeps in.
Thanks again for the feedback.
Jun 10, 2019 04:31PM JMouse wrote:
DeeMay: you're welcome.
The conference focused on metastatic breast cancer, so the rest of the video might inadvertently fuel old fears. If you want to be careful, the portion I quoted from (with some skips) was from 32:56 to 33:29 min:sec. :)
Jun 11, 2019 04:50AM DeeMay wrote:
JMouse thanks for the heads up🤗 That's so thoughtful of you. Hope you're doing well....I only noticed how recent your diagnosis was. All the very best x
Jun 11, 2019 08:54AM lifelover wrote:
Over 8 years since my diagnosis and I'm still doing well with no recurrence or spread.
However, I have had a cardiac arrest due to severely blocked aortic valve but following valve replacement and mitral valve repair am feeling pretty good. My heart problems were congenital and not due to my cancer treatment though.
Live each day with love
Jun 11, 2019 11:26AM - edited Jun 11, 2019 11:54AM by JMouse
Thanks, DeeMay. Yes, I'm still in the early days of panic. :) I understand what you mean by a cheery public face vs a distraught private one. For me there are what-ifs and regrets, but most of my anguish is our basic fear of recurrence. Reading about you all living 5+ years NED provides much hope. Thanks, all. :D
Congratulations, lifelover, that's fantastic! (It's especially nice to hear this from someone with lymphovascular invasion like me. Thank you for sharing that.) I'm really sorry you are suffering such heart problems. D: It sounds like you've gotten timely care at least. I hope you continue to feel better!
Jun 11, 2019 04:37PM DeeMay wrote:
JMouse I know that panic all too well, but it does get easier the further away from diagnosis and treatment we get.
8 years out is brilliant lifelover. Wishing you all the very best in the future.
I think we're all champions, so there😘