ilovemymom4…
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Feb 10, 2020 02:39AM
ilovemymom4ever
wrote:
hi. Can i ask a question? Again, my mom has stage IIIB ER+/PR- HER2+ breast ca. She had 6 cycles of chemo, the tumor shrunk but not so much. Has anyone experienced this also but got operated on and NED up to now
sbelizabeth…
Colorado
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Feb 10, 2020 07:14AM
sbelizabeth
wrote:
Those of us with estrogen-receptor positive tumors rarely achieve pathological complete response (PCR) with neoadjuvant chemo. I did six cycles of TAC chemo and there were lots of cancer cells found in the lymphatic channels of my breast after the mastectomy. I've been NED since then, and that was 8 years ago.
pinkribbonandwheels.wordpress....
Dx
10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2-
Chemotherapy
12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Surgery
4/18/2012 Mastectomy: Left
Radiation Therapy
5/21/2012 Breast, Lymph nodes
Hormonal Therapy
7/19/2012 Femara (letrozole)
Surgery
4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
ilovemymom4…
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Feb 10, 2020 05:28PM
ilovemymom4ever
wrote:
thank you. Im just so scared for my mom. I would do anything for her
Flo80
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Feb 11, 2020 05:03AM
- edited
Feb 11, 2020 05:03AM
by
Flo80
I am hormone positive and did not get pcr. My oncologist told me that Harmon's positive people hardly achieve pcr. There are so many members who did not pcr but are thriving and living a healthy life. I wish good health and happiness for your mom
Dx
6/13/2019, DCIS/IDC, Left, 5cm, Grade 2, ER+/PR+
ilovemymom4…
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Feb 11, 2020 05:34AM
ilovemymom4ever
wrote:
thank you so much Flo80! She'll be having her scans tomorrow in preparation for her surgery. She just finished her neoadjuvant chemo. im hoping and praying for clear results.
NancyD
NY
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Feb 11, 2020 06:25AM
NancyD
wrote:
I had four rounds of neoadjuvant TAC, had some reduction in the size of my tumor, but not a complete response. Based on the findings after surgery, my onc recommended two additional rounds of TAC before my radiation and hormonal treatment.
I’ve been NED since then. Coming up on twelve years in a few weeks
Life is good. It's not perfect. but it's good.
Dx
2/22/2008, IDC, Left, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2-
Chemotherapy
3/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Surgery
7/11/2008 Mastectomy: Left; Prophylactic mastectomy: Right
Hormonal Therapy
9/1/2008 Arimidex (anastrozole)
Radiation Therapy
9/5/2008 Breast, Lymph nodes
Surgery
1/28/2010 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
sbelizabeth…
Colorado
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Feb 11, 2020 10:16AM
sbelizabeth
wrote:
Two more rounds of TAC chemo! Wow. My question for my onc would have been--if it didn't work that great for the first six rounds, why would it be effective for two more?
I had to talk long and hard, but I got my onc to give me six rounds of navelbine/capecitabine after surgery. It was based on recently released research.
pinkribbonandwheels.wordpress....
Dx
10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2-
Chemotherapy
12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Surgery
4/18/2012 Mastectomy: Left
Radiation Therapy
5/21/2012 Breast, Lymph nodes
Hormonal Therapy
7/19/2012 Femara (letrozole)
Surgery
4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
ilovemymom4…
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Feb 12, 2020 12:37AM
ilovemymom4ever
wrote:
she doesn't feel anything so far. She feels normal except for the fact that her right breast smells bad. She just had her abdominal ultrasound and chest CT scan. Pls help me pray for normal result
NancyD
NY
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Feb 13, 2020 05:49AM
NancyD
wrote:
sbelizabeth, the first four chemo doses didn't bring a complete response, but it was significant enough that my onc felt the two additional rounds after surgery would be beneficial. He called it a "clean-up". A subsequent PET scan a year later (before reconstruction) showed no activity.
I haven't had another PET scan in ten years. Some aches and pains that have been diagnosed as osteoarthritis.
Life is good. It's not perfect. but it's good.
Dx
2/22/2008, IDC, Left, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2-
Chemotherapy
3/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Surgery
7/11/2008 Mastectomy: Left; Prophylactic mastectomy: Right
Hormonal Therapy
9/1/2008 Arimidex (anastrozole)
Radiation Therapy
9/5/2008 Breast, Lymph nodes
Surgery
1/28/2010 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
ilovemymom4…
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Feb 13, 2020 07:59AM
ilovemymom4ever
wrote:
nancyD,
how long before you got surgery? I mean after 4 rounds of chemo, how long did you take a rest before surgery
sbelizabeth…
Colorado
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Feb 13, 2020 08:48PM
sbelizabeth
wrote:
NancyD, I understand now. I had six rounds of TAC before surgery, and the surgical path report stated "extensive tumor emboli in dermal lympahtics" in the breast. Clean margins, though. I had PET scans at years 1 and 2 following treatment completion, and I always held my breath until the report came back. Thank you, God.
Ilovemymom4ever, my last chemo was on March 31 and I had the mastectomy on April 15.
pinkribbonandwheels.wordpress....
Dx
10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2-
Chemotherapy
12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Surgery
4/18/2012 Mastectomy: Left
Radiation Therapy
5/21/2012 Breast, Lymph nodes
Hormonal Therapy
7/19/2012 Femara (letrozole)
Surgery
4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
scar1888
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Nov 2012
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14
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Mar 7, 2021
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Feb 16, 2020 08:41PM
- edited
Feb 16, 2020 08:44PM
by
scar1888
I had to share that as of Oct. 24, 2019, I became a 22 year breast cancer survivor! Do not ever, ever give up! There was no test for HER 2/ or dye to locate the cancerous lymph nodes or ports for chemo treatments. Just feel very very lucky! Blessings to each of you!
Dx
10/23/1997, IDC, Left, 1cm, Stage IIIA, Grade 3, 4/22 nodes, ER+
Surgery
11/24/1997 Lymph node removal: Left; Mastectomy: Left
Chemotherapy
12/6/1997 CAF
Hormonal Therapy
Radiation Therapy
Bakerstreet…
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Feb 16, 2020 09:31PM
Bakerstreet
wrote:
Your post is such a positive light for all, thank you for coming back scar1888! Many more happy and healthy years to you
Francesca30…
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Feb 16, 2020 09:34PM
Francesca30
wrote:
congratulations Scar! Feeling extra hopeful because of you.
Dx
3/14/2019, IDC, Left, 2cm, Stage IIIA, Grade 2, 13/20 nodes, ER+/PR+, HER2-
Surgery
3/14/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left
Chemotherapy
4/4/2019 TAC
Radiation Therapy
8/14/2019 Whole-breast: Breast, Lymph nodes
Hormonal Therapy
8/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
11/17/2019 Prophylactic ovary removal
Hormonal Therapy
11/29/2019 Femara (letrozole)
Surgery
7/31/2020 Reconstruction (left): Silicone implant
NancyD
NY
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Feb 17, 2020 03:52PM
NancyD
wrote:
Wow, Scar! I hope to be like you. I know that it's a day by day, year by year thing, though. As long as I can walk around without any symptoms, I consider myself a survivor and thrive-or.
Life is good. It's not perfect. but it's good.
Dx
2/22/2008, IDC, Left, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2-
Chemotherapy
3/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Surgery
7/11/2008 Mastectomy: Left; Prophylactic mastectomy: Right
Hormonal Therapy
9/1/2008 Arimidex (anastrozole)
Radiation Therapy
9/5/2008 Breast, Lymph nodes
Surgery
1/28/2010 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
NancyD
NY
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Feb 22, 2020 08:20AM
NancyD
wrote:
Time to post my annual checkin...twelve years ago I was diagnosed with breast cancer. I’m still NED, albeit a few aches and pains associated with growing older. Keep the faith!
Life is good. It's not perfect. but it's good.
Dx
2/22/2008, IDC, Left, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2-
Chemotherapy
3/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Surgery
7/11/2008 Mastectomy: Left; Prophylactic mastectomy: Right
Hormonal Therapy
9/1/2008 Arimidex (anastrozole)
Radiation Therapy
9/5/2008 Breast, Lymph nodes
Surgery
1/28/2010 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
stephilosph…
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364
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Feb 22, 2020 09:52AM
stephilosphy00
wrote:
CONGRATULATIONS!!!!!
Dx at 29. Original mass 2.5 cm. Biopsy MRI and PET/CT confirmed 1 node involved. Ki-67 score 7.5%. ER100% PR100%. Genetic testing negative. Restaged to stage IIA post surgery. Chose to do 6 cycles of Xeloda to prevent recurrence!!
Dx
11/9/2016, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2-
Chemotherapy
11/18/2016 AC + T (Taxol)
Surgery
5/10/2017 Lymph node removal: Sentinel; Mastectomy: Left
Hormonal Therapy
5/21/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy
7/11/2017 Aromasin (exemestane)
Radiation Therapy
7/12/2017 Whole-breast: Breast, Lymph nodes, Chest wall
Surgery
4/3/2018 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Hormonal Therapy
Zoladex (goserelin)
7of9
Cleveland Area, Oh
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Feb 22, 2020 02:04PM
7of9
wrote:
12 yrs!!! That would get me to my sons graduation ( from recurrence 4 yrs ago). Lead the way!!!
If you're going through hell, keep on going. You might get out before the devil even knows you're there.
Dx
1/18/2012, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Surgery
5/31/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Surgery
10/31/2012 Reconstruction (left); Reconstruction (right)
Dx
12/23/2015, IDC, Left, 2cm, Grade 2, 10/14 nodes, ER+/PR+, HER2-
Surgery
1/18/2016 Lymph node removal: Left, Underarm/Axillary
Surgery
1/18/2016 Prophylactic ovary removal
Radiation Therapy
2/10/2016 Whole-breast: Breast, Lymph nodes, Chest wall
Chemotherapy
3/31/2016 Taxotere (docetaxel)
Hormonal Therapy
Arimidex (anastrozole)
Francesca30…
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Feb 22, 2020 03:18PM
Francesca30
wrote:
congratulations Nancy! Coming up with my first year this month and stories like yours keep me strong and hopeful .
Dx
3/14/2019, IDC, Left, 2cm, Stage IIIA, Grade 2, 13/20 nodes, ER+/PR+, HER2-
Surgery
3/14/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left
Chemotherapy
4/4/2019 TAC
Radiation Therapy
8/14/2019 Whole-breast: Breast, Lymph nodes
Hormonal Therapy
8/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
11/17/2019 Prophylactic ovary removal
Hormonal Therapy
11/29/2019 Femara (letrozole)
Surgery
7/31/2020 Reconstruction (left): Silicone implant
ilovemymom4…
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Nov 2019
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42
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Feb 3, 2021
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Feb 22, 2020 11:42PM
- edited
Feb 22, 2020 11:43PM
by
ilovemymom4ever
Hi.
there were many lymph nodes removed from my mom's surgery. Im scared about how many ppl can survive when there are numerous lymph node involvement. :( she became stage IIIC
Artista928
CA
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Jun 2015
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Feb 23, 2020 10:26AM
Artista928
wrote:
I've seen people here with a lot of nodes removed. They're ok. She shouldn't have blood pressure or any type of needle on that arm. I've had 4 removed and give my right arm for IV, blood draws if they can't use my port, blood pressure. I don't wear tight sleeves either. Read about lymphedema in the forums for more info. People who have it are talking about it there.
Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now.
Dx
6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL)
Surgery
8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Chemotherapy
11/3/2015 AC + T (Taxotere)
Radiation Therapy
5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Hormonal Therapy
2/14/2017 Femara (letrozole)
Hormonal Therapy
3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
ilovemymom4…
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Feb 23, 2020 01:09PM
- edited
Feb 23, 2020 01:09PM
by
ilovemymom4ever
@Artista928,
im not really worried about the lymphedema, but im worried about how advanced the cancer may be. That's what im worried about
mpv459
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Feb 23, 2020 04:15PM
- edited
Feb 23, 2020 04:27PM
by
mpv459
I was diagnosed and had surgery almost a year ago. How many lymph nodes did they remove and how many had cancer?? I had 14/31.. So far, so good.
mpv459
ilovemymom4…
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Feb 24, 2020 05:59AM
ilovemymom4ever
wrote:
mpv459
The surgeon said nothing about how many lymph nodes, but he said he took out many and hoping not all will be positive :(
mpv459
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Feb 24, 2020 04:15PM
mpv459
wrote:
Keep me updated and best wishes.. My diagnosis did not look good but I take each day...squeeze everything I can out of it and pray for the next. I had 8cm tumor and 14 lymph nodes. Hardly gets any worse than that. The cancer was isolated to the lymphnodes so far. I had surgery, occupational therapy, 16 rounds of chemo, 30 rounds of radiation and I am currently on hormone blockers and zometa... Its rough but I am 60 and I made it through all of it. Your mom will too. She needs lots of positive vibes and love and a great team. I am sure she has all of those. I am a week short of a year from diagnosis, walking 4 miles a day, exercising and living. Keep your chin up. Sorry to put this on the 10 year page.. Hopefully I will belong here some day with the rest of the brave ladies.
mpv459
NancyD
NY
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Feb 24, 2020 07:05PM
NancyD
wrote:
ilovemymom4ever, women have differing numbers of lymph nodes. Some have a lot, so it might sound scary if they say they removed a lot. Don't let that scare you. While they only took ten out when I had my mastectomy, four of those showed signs of cancer and one was actually bursting with cancer cells. That scared me more than anything else.
Life is good. It's not perfect. but it's good.
Dx
2/22/2008, IDC, Left, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2-
Chemotherapy
3/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Surgery
7/11/2008 Mastectomy: Left; Prophylactic mastectomy: Right
Hormonal Therapy
9/1/2008 Arimidex (anastrozole)
Radiation Therapy
9/5/2008 Breast, Lymph nodes
Surgery
1/28/2010 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
ilovemymom4…
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Feb 3, 2021
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Feb 25, 2020 04:26AM
- edited
Feb 25, 2020 04:27AM
by
ilovemymom4ever
@mv459, Sure i 'll keepyou updated. Do you mind if i ask what stage were you after surgery? God bless you!
@NancyD, thank you for being positive
ilovemymom4…
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Feb 25, 2020 04:47AM
ilovemymom4ever
wrote:
mom's CT scan prior to surgery showed internal necrosis of the breast tumor. What does that mean
mpv459
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Feb 25, 2020 07:54PM
- edited
Feb 25, 2020 08:00PM
by
mpv459
I was Stage 3C. Internal necrosis refers to dead cancer cells in the breast tissue. Probably because she had chemo first. I had surgery first, then chemo. Sending good wishes and prayers to you and your mom. In time it really does all get better.
mpv459
ilovemymom4…
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Feb 25, 2020 08:02PM
ilovemymom4ever
wrote:
mvp459, thank you. God bless you!