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Topic: Stage III Cancer Survivors...15+ years and out

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Nov 22, 2015 11:02AM

weesa wrote:

Let's just see what happens here...This is a "build it and they will come" experiment. It's time.

If you are not a 15 year survivor but know the story of someone who is, please join in.

Sometimes I wonder if I am an old soul temporarily trapped in a breast cancer body. Dx 11/22/2002, IDC, 6cm+, Stage IIIA, Grade 2, 5/25 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/13/2003 Breast, Lymph nodes Hormonal Therapy 8/22/2003 Femara (letrozole) Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap
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Oct 18, 2016 10:26AM DancingElizabeth wrote:

Your posts really help...

My MO keeps reminding me of how high risk I am for mets and it makes me feel like I should not be hopeful.

Lately I feel that, I will be lucky if I am here in 3 years.

And, ready to dip into my retirement fund - because I can't imagine living to be 70 at this point. (I am only 49). But, reading your posts really helps (I still feel like getting into my retirement money because I want to enjoy whatever time I might have left instead of leaving it to my DH....)

Dx 4/13/2016, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 3/23 nodes, ER+/PR+, HER2- Surgery 5/17/2016 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Surgery 5/31/2016 Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 7/6/2016 AC + T (Taxol) Radiation Therapy 11/7/2016 Hormonal Therapy 11/8/2016
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Oct 18, 2016 02:59PM HelenWNZ wrote:

Hi everyone

Thought I recognised you scared67 I feel the same way - so many bad things in my diagnosis how can it be possible. My surgeon says we are going for a cure. My oncologist is trying for the 80% chance of making it past. 5 years if I follow the treatment plan. So why does my silly brain keep focussing on the 20% that won't. I'm 52 and still a wee way off from retirement.

It's good too see that the possibilities are there.

I have a 97 year old grandmother still living in her own home. Wanted it to be me.......

Helen W Dx 5/5/2016, DCIS/IDC, Left, 3cm, Stage IIIC, Grade 2, 18/22 nodes, ER+/PR+, HER2+ (IHC) Surgery 5/31/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 7/7/2016 Taxotere (docetaxel) Targeted Therapy 7/8/2016 Herceptin (trastuzumab) Chemotherapy 9/6/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Radiation Therapy 11/20/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/6/2017 Femara (letrozole)
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Nov 6, 2016 12:44PM YATCOMW wrote:

I am 12 1/2 years out......only 2 1/2 more years to post here.........and although I too am not following all the rules........I plan to be here to post. Hang in there ladies......there are quite a few ladies within years of posting the big 15. I would have killed to have seen that when I was diagnosed with all the doom and gloom in 2004.

Fists up!


Jacqueline

Dx 5/2004, ILC/IDC, 6cm+, Stage IIIC, Grade 3, 17/24 nodes, ER+/PR+, HER2-
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Nov 7, 2016 07:28AM live_deliciously wrote:

so awesome jaqueline. thanks for spreading the hope!


Dx 12/2014, IDC, Right, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 1/16/2015 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/24/2015 AC + T (Taxol) Radiation Therapy 7/6/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 8/20/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Afinitor (everolimus)
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Nov 7, 2016 09:11AM Stacyd wrote:

My sisters mother in law was estrogen + and is a 16 yr survivor.

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Nov 8, 2016 03:28PM Denise-G wrote:

Ran into my grade school friend this week by chance. Didn't recognize each other, but she was working at a floral shop, and I gave her my name to call me when a special order came in. Wow, it was great! Haven't seen each other in 45 years! Was telling her about myself, my mom and sister all diagnosed with breast cancer within 3 years. Then she told me her story.

1997 - Stage 3C, thought she was Stage 4, but didn't have great technology then. Tumor as large as an orange, 20 positive nodes, chemo, radiation, they wanted to do stem cell as they were doing back then, but her insurance would not pay. She had one of the first Tram flaps which she said was a terrible job. Single mom, 10 year old daughter at the time. SHE IS DOING GREAT. It will be 20 years in January!!

SURE MADE MY DAY in more ways than one!

www.denise4health.wordpress.com my BC Blog with over 200 informative posts about all aspects of BC - stop by! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2+ (FISH) Surgery 11/22/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/26/2011 AC + T (Taxol) Targeted Therapy 2/27/2012 Herceptin (trastuzumab) Hormonal Therapy 10/10/2012 Arimidex (anastrozole)
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Nov 9, 2016 11:02AM fightergirl711 wrote:

Wow that's amazing, thank you!

Diagnosed at 44. NED after re-excision and ALND. Herceptin thru Feb. 2017. Surgery 12/11/2015 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Dx 12/14/2015, IDC/IDC: Mucinous, Left, 2cm, Stage IIIA, Grade 3, 4/4 nodes, ER+/PR+, HER2+ Dx 12/14/2015, DCIS, Left, 6cm+, Stage 0, Grade 3, 4/4 nodes, ER+/PR+, HER2+ Targeted Therapy 1/7/2016 Herceptin (trastuzumab) Chemotherapy 1/7/2016 Taxol (paclitaxel) Targeted Therapy 1/7/2016 Perjeta (pertuzumab) Chemotherapy 3/30/2016 AC Surgery 6/7/2016 Lymph node removal: Left Radiation Therapy 7/14/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 8/29/2016 Femara (letrozole) Surgery 12/30/2016 Prophylactic ovary removal
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Nov 9, 2016 10:02PM weesa wrote:

This thread keeps tripping along...what it lacks in vast numbers of responses it makes up for in the very powerful responses...which makes it so meaningful to people looking for hope. I would have given my right arm (along with its odd numbness and lymphedema, oh--and the loose fingernails) to have had this topic to read when I was first diagnosed. Thank you, all of you who have paused here to talk about 15 year survivors. You have created a wonderful gift for those starting out. Weesa

Sometimes I wonder if I am an old soul temporarily trapped in a breast cancer body. Dx 11/22/2002, IDC, 6cm+, Stage IIIA, Grade 2, 5/25 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/13/2003 Breast, Lymph nodes Hormonal Therapy 8/22/2003 Femara (letrozole) Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap
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Nov 13, 2016 08:46AM live_deliciously wrote:

good to be alive. I too appreciate all the great people that come back and post their success. it really does help so much. thank you

Dx 12/2014, IDC, Right, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 1/16/2015 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/24/2015 AC + T (Taxol) Radiation Therapy 7/6/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 8/20/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Afinitor (everolimus)
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Nov 13, 2016 07:38PM ash123 wrote:

Thank you of all the ladies who come back and fill us with hope. You are awesome, please keep coming back.

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Nov 22, 2016 10:58AM weesa wrote:

Fourteen years today...Weesa

Sometimes I wonder if I am an old soul temporarily trapped in a breast cancer body. Dx 11/22/2002, IDC, 6cm+, Stage IIIA, Grade 2, 5/25 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/13/2003 Breast, Lymph nodes Hormonal Therapy 8/22/2003 Femara (letrozole) Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap
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Nov 22, 2016 11:01AM DancingElizabeth wrote:

That's AWESOME Wessa!!! You give us all so much hope...Smile

Dx 4/13/2016, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 3/23 nodes, ER+/PR+, HER2- Surgery 5/17/2016 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Surgery 5/31/2016 Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 7/6/2016 AC + T (Taxol) Radiation Therapy 11/7/2016 Hormonal Therapy 11/8/2016
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Nov 22, 2016 03:13PM ash123 wrote:

Thank you Weesa for continuously giving us hope. we all know how hard it is to go through the initial shock and treatments. May you have many many more years .

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Nov 22, 2016 06:38PM Denise-G wrote:

Weesa - THANK YOU FOR POSTING AND CONGRATULATIONS!!!!!!!!!!!!!!!!!!!!!!!1

www.denise4health.wordpress.com my BC Blog with over 200 informative posts about all aspects of BC - stop by! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2+ (FISH) Surgery 11/22/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/26/2011 AC + T (Taxol) Targeted Therapy 2/27/2012 Herceptin (trastuzumab) Hormonal Therapy 10/10/2012 Arimidex (anastrozole)
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Nov 23, 2016 08:16AM lkc wrote:

weesa congratulations! A very happy thanksgiving to you all of our sisters

Linda K dx'd May 05 Stage IIIC erpr-, her pos, 12 pos nodes
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Nov 23, 2016 08:52AM - edited Nov 23, 2016 08:52AM by SerenitySTAT

Congratulations, weesa! Big thanks for posting!

"Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC Left IIIC 10/11 nodes ER+PR+HER2-, 12/2015 Left Mast, 2/2016 4 AC+12 Taxol, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox
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Nov 23, 2016 01:36PM sugarplum wrote:

WOOOO HOOOOO WEESA! You have been my shining star for years, as you are for all of us.

May you have a truly debauched Thanksgiving :)

Hugs from afar - Julie


Keep calm and carry on.... Dx 4/28/2006, IDC, Right, Stage IIIC, Grade 3, 10/20 nodes, ER+/PR+, HER2- (FISH) Surgery 6/6/2006 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/30/2006 Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 12/17/2006 Arimidex (anastrozole) Radiation Therapy 1/10/2007 Whole-breast: Breast
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Nov 23, 2016 01:42PM YATCOMW wrote:

Simply awesome.......celebrate it!


Jacqueline

Dx 5/2004, ILC/IDC, 6cm+, Stage IIIC, Grade 3, 17/24 nodes, ER+/PR+, HER2-
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Nov 26, 2016 06:31AM Marlenelin wrote:

I was diagnosed April 2015. Currently undergoing proton radiation. 14 extrasapsular malignant lymph nodes out of 20. 3 cm tumor. ER P + Her 2 neg. Also very fearful and at times just want to give up. Take care.

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Nov 28, 2016 06:14PM live_deliciously wrote:

weesa. you are my hero. I have my exchange surgery Thursday. it's been a long delay but finally here. BC is front and center on my mind and then I read your post..... just like an angel to help me through this next week. Sending Many blessings your way and a big thank you for remembering all of us at the beginning of the line. big hugs!

Dx 12/2014, IDC, Right, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 1/16/2015 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/24/2015 AC + T (Taxol) Radiation Therapy 7/6/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 8/20/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Afinitor (everolimus)
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Nov 29, 2016 10:39PM weesa wrote:

Will be thinking of you, LD, on Thursday.

By the way, have your noticed how similar our dx's are?

Sometimes I wonder if I am an old soul temporarily trapped in a breast cancer body. Dx 11/22/2002, IDC, 6cm+, Stage IIIA, Grade 2, 5/25 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/13/2003 Breast, Lymph nodes Hormonal Therapy 8/22/2003 Femara (letrozole) Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap
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Nov 30, 2016 07:21PM kar123 wrote:

Woo Hoo Weesa!!!

Dx 6/2010, ILC, 6cm+, Stage IIIA, Grade 2, 2/7 nodes, ER+/PR+, HER2- Chemotherapy 6/27/2010 AC + T (Taxol) Surgery 11/16/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 1/23/2011 Breast, Lymph nodes Hormonal Therapy 4/3/2011 Arimidex (anastrozole) Hormonal Therapy 4/30/2013 Femara (letrozole)
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Dec 3, 2016 11:04AM live_deliciously wrote:

thanks weesa. I did notice how similar our stats are and thankful you post to help keep me focused on the positive. I made it thru recon surgery. very sore but way more mobile and self sufficient than than the mastectomy surgery. Night and day difference. we will see how they look when the swelling goes down.......

Dx 12/2014, IDC, Right, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 1/16/2015 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/24/2015 AC + T (Taxol) Radiation Therapy 7/6/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 8/20/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Afinitor (everolimus)
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Mar 1, 2017 10:48PM ladyb1234 wrote:


Love this thread and the stories that are posted.  Weesa I followed you from the 10yr to the 15yr thread.  SillyHeart

Once or twice in our lives, we are given the chance to find out just how much inner strength we possess. Usually we find we have far more than we ever imagined. (Phil 4:13 I can do all things through Christ which strengtheneth me). Dx 6/9/2014, IDC, Left, Grade 2, 8/18 nodes, ER+/PR+, HER2- Surgery 7/11/2014 Lymph node removal: Left, Underarm/Axillary
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Mar 17, 2017 04:29PM Castigame wrote:

weesa,

Thank you for the inspiration. As a newbie who recently had the uninvited automic guest reading about your story gives me energy. My mom is ovarian stage 3 survivor of 22 yrs and BC of 10 yrs. She is 85,alive and kicking. Now I have two people to follow!

Mimi Dx 1/11/2017, IDC, Left, <1cm, Stage IA, 0/2 nodes Dx 1/11/2017, IDC: Papillary/IDC: Cribriform, Right, 3cm, Stage IIIA, Grade 2, 4/17 nodes, ER+/PR+, HER2- (IHC) Surgery 2/15/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal Chemotherapy 3/21/2017 Radiation Therapy 7/31/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 10/30/2017
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Mar 24, 2017 03:27PM IAmElaine wrote:

Weesa, I just went back and read your thread here. I see you are working on year 15!!!! Congratulations!

I hit my 13th anniversary on the first of this month so my onc likes to say I am working on year 14. I like the way the man thinks!

Anyway, I love to prove my surgeon, Dr. Doom, wrong. He thought I had a couple of years left when I was diagnosed. It was really that bad. I had some skin involvement, extracapsular extension and was totally inoperable without doing chemo first. My surgeon and my onc are down the hall from each other so I usually try to make a point of popping my head in at my surgeons office and giving him a smile. ;)

Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes
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Mar 24, 2017 05:19PM Denise-G wrote:

IAmElaine - LOVE your story - congratulations and thanks for the encouragement! I would venture to say they rarely did chemo first when you were diagnosed.

LOVE that you pop your head in and smile at your surgeon! You taught him a lot!!

Appreciate the HOPE you bring to all of us! Here is to 13 more years and then some!

www.denise4health.wordpress.com my BC Blog with over 200 informative posts about all aspects of BC - stop by! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2+ (FISH) Surgery 11/22/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/26/2011 AC + T (Taxol) Targeted Therapy 2/27/2012 Herceptin (trastuzumab) Hormonal Therapy 10/10/2012 Arimidex (anastrozole)
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Apr 8, 2017 06:33AM - edited Apr 8, 2017 06:33AM by Tinkerbells

ladies, popping in to tell you about my beautiful friend who is 15 years out this year! Stage 3, ER+, PR-, Her2+++, 9 positive nodes!

That diagnosis was a recurrence- they did not give her herceptin for her first dx. She sure got it afterwards and it worked!

She has lymphedema but is otherwise beautiful, healthy, and enjoying her grandchildren.

I want to be like her when I grow up

Keep the faith.

Xoxo

Contains some artificial additives and preservatives. Dx 2/25/2014, IDC, 1cm, Stage IIA, Grade 3, 1/2 nodes, ER-/PR-, HER2+ Dx 2/25/2014, DCIS, Grade 3, ER-/PR-, HER2+ Surgery 3/1/2014 Mastectomy: Left, Right Chemotherapy 4/10/2014 AC Targeted Therapy 6/1/2014 Herceptin (trastuzumab) Targeted Therapy 6/1/2014 Perjeta (pertuzumab) Chemotherapy 6/1/2014 Taxol (paclitaxel)
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Apr 8, 2017 10:22PM fondak wrote:

Tinkerbells Thank you for sharing that! That's very inspiring!

Dx 8/5/2011, IDC, 5cm, Stage IIIA, Grade 2, 9/9 nodes, ER+/PR+, HER2-
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Apr 8, 2017 10:34PM shelly56 wrote:

Yatcom & Weesa: Just curious to know if either of you are on AI's still, either Tamox or the others? I'm on year 8 out from dx, taking Femara. I usually get lots more headaches than I did on Tamoxifen. But the tamoxifen gave me bad leg cramps every day. At least I'm over half way to 15 yrs out !! You two are inspiration.

Shelly

"Courage is resistance to fear, mastery of fear - not absence of fear." Dx 1/26/2009, IDC, 5cm, Stage IIIA, 4/15 nodes, ER+/PR+, HER2-

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