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Topic: Stage III Cancer Survivors...15+ years and out

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Nov 22, 2015 12:02PM

weesa wrote:

Let's just see what happens here...This is a "build it and they will come" experiment. It's time.

If you are not a 15 year survivor but know the story of someone who is, please join in.

Sometimes I wonder if I am an old soul temporarily trapped in a breast cancer body. Dx 11/22/2002, IDC, 6cm+, Stage IIIA, Grade 2, 5/25 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/13/2003 Breast, Lymph nodes Hormonal Therapy 8/22/2003 Femara (letrozole) Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap
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Jan 14, 2018 12:05PM StephanieD wrote:

Hey everybody! I've been lurking every now and then and came across this thread. How encouraging! So encouraging that I'll add my two cents.

The mom of a friend of mine had BC 32 years ago. While I don't have the exact details, I know there was important node involvement and she had a year's worth of chemo and did radiation. She didn't do hormone therapy. She smoked until about 5 years ago, never exercises and her eating habits are very poor. She's had cancer in both breasts and has had two surgeries to remove portions of her lung for cancer that they are not attributing to a recurrence but a new primary cancer. I'm not holding her up as an example of how to behave after treatment only to show that there really is hope for us. She will be 82 this August.

I am on a dragon boat team of BC survivors and we have 25 and 27 year survivors on our team. There are amazing stories all over the place and we only hear a portion of them. One girl is 20 years out after having had it at age 30.

When I asked my onco about how long I would be on aromasin, she said, "in your case, 10 years and by then there will be something else..." I believe that. I attend lots of conferences and there is so much already in the works and on the horizon for us.

Fear of recurrence is always lingering, but I feel really positive about the future.

Thank you all for contributing to this site thus being a beacon for us all.

Happy Sunday!!!

Dx 1/7/2016, IDC, Right, 4cm, Stage IIB, Grade 2, 4/12 nodes, ER+/PR+, HER2- Surgery 1/27/2016 Lymph node removal; Mastectomy: Right Chemotherapy 3/22/2016 AC + T (Taxotere) Radiation Therapy 9/14/2016 Surgery 12/5/2016 Prophylactic ovary removal Hormonal Therapy Aromasin (exemestane)
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Jan 14, 2018 01:58PM LeesaD wrote:

Thank you for sharing Loya!!! I love reading posts such as yours.
Oncotype Score 3, 2/4 Sentinal Nodes micromestasis so pushed for ALND for 'peace of Mind' and surprise found 2/14 positive axillary nodes Dx 2/3/2017, IDC, Right, 3cm, Stage IIB, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 3/26/2017 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/16/2017 Lymph node removal: Underarm/Axillary Chemotherapy 5/8/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/1/2017 Hormonal Therapy 9/7/2017 Arimidex (anastrozole), Zoladex (goserelin) Surgery 11/16/2017 Prophylactic ovary removal Surgery 1/29/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Jan 14, 2018 11:31PM wallan wrote:

My friend 's GP told her that 20 years ago she had stage 4 BC (after it recurred) and was told to get her affairs in order. She took time off from her medical practice, had chemo, and then in 3 years time returned to work. She has been NED ever since and works full time as a GP.

Another woman at the cancer clinic works at the coffee shop there - she also had stage 4 BC 20 years ago and is now NED.

14 years ago, I had stage 3a BC with 7 cm tumor (IDC) and 2 positive nodes with extracapsular extension, grade 3, ER+ PR+ and her2-. Had mastectomy, chemo, rads, hormone therapy, ovaries and uterus removed. I was told by my MO then that I would likely recur within 2 years. I have not recurred.

I was 41 at the time with a 7 year old son. My son is now 21. I saw him graduated high school, college and he now has a great job.

Even though I had a new primary in other breast dx last Jan, it was small and node negative. I had mastectomy and am on arimidex. It was er+, weakly PR+ and her2-. I plan on living until I am a 100. I am pretty feisty!

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 15, 2018 08:48AM lkc wrote:

Hi Wallan. I remember you well from the old days. So happy for you. I am approaching 13 years and grateful every day. Life is a beautiful thing and so much more treasured after these experiences!


Linda K dx'd May 05 Stage IIIC erpr-, her pos, 12 pos nodes
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Jan 15, 2018 10:07AM wallan wrote:

Hi lkc:

I remember you too... its wonderful that we are here alive and kicking!

Nice to see you on here.

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 15, 2018 10:22AM StephanieD wrote:

LeesaD, right? Glad you could take comfort in my post.

BTW, I've updated my user name to reflect my actual name. :)

Dx 1/7/2016, IDC, Right, 4cm, Stage IIB, Grade 2, 4/12 nodes, ER+/PR+, HER2- Surgery 1/27/2016 Lymph node removal; Mastectomy: Right Chemotherapy 3/22/2016 AC + T (Taxotere) Radiation Therapy 9/14/2016 Surgery 12/5/2016 Prophylactic ovary removal Hormonal Therapy Aromasin (exemestane)
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Jan 15, 2018 12:25PM DancingElizabeth wrote:

StephanieD and Wallan - I can't tell you how much your posts mean to me and others in similar situations as me...

Mine was also pretty much bad everything - as you can see by the stats below. I also had extranodular extension with cancer practically bursting out of one of my nodes and a HIGH K67.

I had several second opinions and each time the MOs kept going on about how "high risk" I am for mets. That was rough...

Hope is hard to find with my stats and hearing your experiences - is like gold..

Dx 4/13/2016, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 3/23 nodes, ER+/PR+, HER2- Surgery 5/18/2016 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Surgery 5/31/2016 Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 7/6/2016 AC + T (Taxol) Radiation Therapy 11/8/2016 Hormonal Therapy 11/9/2016
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Jan 15, 2018 03:41PM - edited Jan 15, 2018 03:44PM by StephanieD

Scared67, since my diagnosis in January 2016, I've hoped to find survivors of all types to help fuel and sustain my hope.

As I noted above, there are a lot of positive stories we don't hear about. For various reasons, people don't talk about their experiences and a lot of people just want to put the whole ordeal behind them. I'm not one of those people. I feel like I owe it to the women coming after me on this journey to be supportive and to give hope. I don't judge anyone who doesn't share that sentiment, though. The journey is as personal and unique as the cancer itself.

I've participated in two "Runs or the Cure" here in Montreal. During my first run in 2016, all I could do was look for people in the pink t-shirts...pink was reserved for survivors and white was for supporters. I tried to count the pink shirts for comfort. At one point though, it occurred to me that there were people absent that I knew to be survivors and I thought, if they are not here, imagine all the others that are not here. There are so many more survivors out there than we know with all sorts of stories. For whatever reason, we automatically hear the worst outcomes.

In July I will be participating in an International Dragon boat festival that will see 129 dragon boat teams comprised exclusively of breast cancer survivors from 17 countries converge on Florence in a celebration of life. Do you realize how many people that is and that is not even the total amount of survivors in the world.

The best way I found to fight off anxiety and fear of recurrence is to exercise, eat right, and to stay positive. I focus on what I can control and this helps me feel proactive the way I did during treatment.

Another one of my two cents.

Again, thank you all for bringing your stories to this place. We are all better for it.

xxx

Much love,

Stephanie

Dx 1/7/2016, IDC, Right, 4cm, Stage IIB, Grade 2, 4/12 nodes, ER+/PR+, HER2- Surgery 1/27/2016 Lymph node removal; Mastectomy: Right Chemotherapy 3/22/2016 AC + T (Taxotere) Radiation Therapy 9/14/2016 Surgery 12/5/2016 Prophylactic ovary removal Hormonal Therapy Aromasin (exemestane)
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Jan 15, 2018 04:48PM wallan wrote:

Hey there:

I am happy to share my experience. If it benefits even one person, I feel like my whole horror show had purpose.

Scared67: I can understand the devastation and fear that arises when oncologists highlight that you are highrisk and undermine your hope. I remember all too well my oncologist telling me that she didn't think the chemo would work and that I would be stage 4 very soon, within 2 years. I would ask her why would she say that and she said I had all the bad indications and I was in denial. I was quite distraught. My radiation oncologist though told me I had very treatable, garden-variety BC and he felt it would be eradicated. That gave me relief.

For this second primary, I did go to another medical oncologist because I did not want the doom and gloom of the first one. My journey this time has been positive and hopeful.

I hope that you get solace out of this.

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 18, 2018 01:44PM DancingElizabeth wrote:

THANK-YOU - Stephanie and Wallen....for the precious jewels of good advice...I do get very much needed solace out of your posts.

Wallan - I can NOT believe your oncologist told you that. OMG. How can a doctor *say*!?!!? WTF. That would have made me want to stay under the covers of my bed and never come out. I'm glad you listened to your radiation oncologist. I will think about his words - as well - as your dx stats are very similar to mine....

Dx 4/13/2016, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 3/23 nodes, ER+/PR+, HER2- Surgery 5/18/2016 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Surgery 5/31/2016 Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 7/6/2016 AC + T (Taxol) Radiation Therapy 11/8/2016 Hormonal Therapy 11/9/2016
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Jan 18, 2018 07:08PM wallan wrote:

Scared67:

Hugs to you. There are alot of positive stories.

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 19, 2018 11:24AM jo6359 wrote:

I just spoke to a woman Stage 3 Grade 2 Multifocal tumors plus lymph node invovement. BMX and reconstruction. No reoccurrences. She received one year of chemotherapy using three meds. 30 years later she is living her life to the fullest.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jan 21, 2018 11:43AM - edited Jan 21, 2018 11:44AM by 7of9


On the subject of oncologist versus radiology oncologist… I have also noticed too that the radiology oncologists I've worked with (three of them) seem to be much more optimistic than just the standard oncologist. Granted my oncologist is the head of his department and he's probably 60 if hes a day. The radiology oncologist are younger and perhaps on more of the cutting edge of the technology and familiar with only the newer stats? My primary radiology oncologist had a baby last year so I missed her for two checkups. There was a younger guy I swear he was just wet behind the ears right out of med school and all he did was smile at me and just grin. It was kind of weird but I realize he was so fascinated and happy with my case that even though I had a recurrence we caught it before it spread and he said now you're cured and we were able to treat it and stop it. I was like what the hell? Here I been living on the edge since a recurrence with 10 out of 14 nodes but I'm two years out and NED with no signs of it anyplace else after several CAT scans so I'm hoping I fall into the 3C CCC category one doctor referred to me as metastatic but the others had said no we're not gonna bother restaging you and that there's no signs of any place else just go live your life ...whatever ...OK!

I would like to add that after discussing with the counselor at my last Zometa a treatment I did not know that it is known to drop your risk of recurrence of hormone positive cancer by almost 30% wow !

If you're going through hell, keep on going. You might get out before the devil even knows you're there. Dx 1/18/2012, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 6/1/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/1/2012 Reconstruction (left); Reconstruction (right) Dx 12/23/2015, IDC, Left, 2cm, Grade 2, 10/14 nodes, ER+/PR+, HER2- Surgery 1/19/2016 Lymph node removal: Left, Underarm/Axillary Surgery 1/19/2016 Prophylactic ovary removal Radiation Therapy 2/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy 4/1/2016 Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Jan 21, 2018 12:18PM Roaming_Star wrote:

Dr. Bernard Bihari, low dose naltrexone, cancer and the immune system

Hi everyone, I love this forum! Brings me hope whenever I get an update on my email :-) Keep posting ladies on your stories of triumph!

I am working with a Naturopathic oncologist and he has put me on low dose naltrexone. When I was doing research on it I came across this article. I found it very interesting and it also brought together the link btw cancer and stress as i was diagnosed after a long period of prolonged stress. Hopefully you can open this link. I wish we could attach pdf files to these posts. If it can't be opened then message me and we can exchange emails or something.

Diagnosed at age 46. Taking low dose naltrexone as 30% of cancer patients have low endorphins impacting the body's immune system to kill cancer stem cells. Dx 5/24/2017, IDC, Left, 2cm, Stage IIIB, Grade 3, ER+/PR+, HER2- Chemotherapy 6/9/2017 AC + T (Taxol) Surgery 11/24/2017 Lymph node removal: Underarm/Axillary; Mastectomy Dx 12/6/2017, LCIS/IDC/IDC: Tubular, Left, 1cm, Stage IIIA, Grade 2, 6/16 nodes, ER+/PR+, HER2- Radiation Therapy 2/5/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 3/14/2018 Femara (letrozole)
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Jan 21, 2018 01:51PM Manc wrote:

hi 7of9 what a wonderful post. I'm Grade 3 in 2 nodes and terrified of recurrence you have given me a lot of hope that newer stats are more favourable. Can I ask by the Zometa is that the six monthly infusion which may prevent bone mets. Many thanks x

Dec 2016 36 mm Grade 3 in 2 nodes Er6 Pr 4 Her-
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Feb 18, 2018 02:08PM mpetago wrote:

I'm almost here! Today is 14 years since diagnosis and I'm doing fine! Turning 50 this year, and I was 35 when diagnosed. I'll be back next year to post again 😊


Dx 2/18/2004, IDC, 6cm+, Stage IIIA, Grade 3, 1/11 nodes, ER+/PR-, HER2- Surgery 2/22/2004 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): DIEP flap Chemotherapy 4/1/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 10/15/2004 Breast Hormonal Therapy 1/1/2005
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Feb 18, 2018 02:14PM StephanieD wrote:

Thank you for this post, mpetago!

Are you still taking hormone therapy? What did you take?

Happy Sunday!

Dx 1/7/2016, IDC, Right, 4cm, Stage IIB, Grade 2, 4/12 nodes, ER+/PR+, HER2- Surgery 1/27/2016 Lymph node removal; Mastectomy: Right Chemotherapy 3/22/2016 AC + T (Taxotere) Radiation Therapy 9/14/2016 Surgery 12/5/2016 Prophylactic ovary removal Hormonal Therapy Aromasin (exemestane)
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Feb 18, 2018 02:19PM - edited Feb 18, 2018 02:20PM by mpetago

No, I only took tamoxifen for 5 years, 2005-2010. Still have my ovaries, and only taking high potency vitamin D.

Oops lol and thank you Stephanie, Happy Sunday to you as well!!

Dx 2/18/2004, IDC, 6cm+, Stage IIIA, Grade 3, 1/11 nodes, ER+/PR-, HER2- Surgery 2/22/2004 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): DIEP flap Chemotherapy 4/1/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 10/15/2004 Breast Hormonal Therapy 1/1/2005
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Feb 18, 2018 02:41PM StephanieD wrote:

Fantastic! Onwards and upwards I always say!!

Dx 1/7/2016, IDC, Right, 4cm, Stage IIB, Grade 2, 4/12 nodes, ER+/PR+, HER2- Surgery 1/27/2016 Lymph node removal; Mastectomy: Right Chemotherapy 3/22/2016 AC + T (Taxotere) Radiation Therapy 9/14/2016 Surgery 12/5/2016 Prophylactic ovary removal Hormonal Therapy Aromasin (exemestane)
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Feb 18, 2018 04:58PM beauz wrote:

Hi mpatego, well done for 14 years. Thank you for bringing me hope.

Dx 01/Dec/2017, invasive carcinoma of mixed type. Mixed no special type(60%) and micropapillary type(40%). High grade DCIS present within and beyond invasive carcinoma. Right, 5cm, Stage IIIB, Grade 2, 3/15 nodes, ER+/PR-,Her2- Dx 5/2017, IDC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR-, HER2- Chemotherapy 6/27/2017 AC + T (Taxol) Surgery 11/28/2017 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 1/10/2018 Xeloda (capecitabine) Radiation Therapy 4/17/2018 Whole-breast: Breast Hormonal Therapy 9/18/2018 Femara (letrozole)
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Feb 19, 2018 11:15AM IAmElaine wrote:

Mpatego, congratulations on the 14 years! I am right behind you. I notice your stats say you received taxotere, cytoxin and Adriamycin. I did as well. Can you share how that was given to you? I received TAC x 6. The reason I am curious is that it was just out of trials at the time I received it. I do still see they are using it for stage 3 in some cases.

Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes
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Feb 19, 2018 01:29PM sugarplum wrote:

Hi Elaine - I too received TACX6 - was also offered the standard 4XAC + 4XT but I decided that 6 infusions would be less traumatic than getting 8! Have never regretted my decision...

Julie

Keep calm and carry on.... Dx 4/28/2006, IDC, Right, Stage IIIC, Grade 3, 10/20 nodes, ER+/PR+, HER2- (FISH) Surgery 6/6/2006 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/30/2006 Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 12/17/2006 Arimidex (anastrozole) Radiation Therapy 1/10/2007 Whole-breast: Breast
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Feb 19, 2018 06:15PM Denise-G wrote:

mpetago - thanks for the encouragement and congratulations!

www.denise4health.wordpress.com my BC Blog with over 200 informative posts about all aspects of BC - stop by! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2+ (FISH) Surgery 11/23/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/27/2011 AC + T (Taxol) Targeted Therapy 2/28/2012 Herceptin (trastuzumab) Hormonal Therapy 10/11/2012 Arimidex (anastrozole)
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Feb 21, 2018 06:26PM IAmElaine wrote:

Julie, when I was diagnosed my onc didn't go over the other chemo options at the time. He just told me he was hitting me with this new protocol out of UCLA. He had his reasons for wanting me to have it and went into great detail on how this protocol attacked the cancer cells at the three different stages of the cell life. Like you, I never regretted it. It was tough but so worth it.

Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes
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Feb 23, 2018 03:33PM aleelight wrote:

Thank you to all who post these encouraging accounts. I really needed it today! Diagnosed 7/17, did chemo, mastectomy, about to start radiation. I’ve managed to remain optimistic until recently. Feel like I’m wearing down emotionally, so your stories help tremendously

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Feb 23, 2018 04:14PM Wonderwoman386 wrote:

Alee- I hit the wall round 7 of chemo, you lasted longer than me! I visit this feed often, it really does help. I can’t wait until we can post our survivor stories, I’ve got a doozy

Dx 7/14/2017, IDC, Left, 4cm, Stage IIIB, Grade 3, 6/23 nodes, ER+/PR-, HER2- (FISH) Surgery 9/6/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Chemotherapy 10/4/2017 AC + T (Taxol) Radiation Therapy 1/23/2018 Whole-breast: Breast, Lymph nodes, Chest wall
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Feb 23, 2018 05:34PM DancingElizabeth wrote:

These stories really help!! I'm coming up on my 2 year cancer-anniversary...dx with ALL the bad stuff!!! (I can't believe I'm still alive!!)

Dx 4/13/2016, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 3/23 nodes, ER+/PR+, HER2- Surgery 5/18/2016 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Surgery 5/31/2016 Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 7/6/2016 AC + T (Taxol) Radiation Therapy 11/8/2016 Hormonal Therapy 11/9/2016
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Feb 24, 2018 01:58AM sbelizabeth wrote:

Dancingelizabeth, I'm coming up to seven years out in September, and I had more nodes removed, and more that were positive for cancer, than you. I'm hanging in there, still working full time, still loving life. Still NED. Don't lose HOPE.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Feb 24, 2018 12:02PM Roaming_Star wrote:

IamElaine My MO didn't go over chemo options either. Wish he would have cause it didn't do anything for my axilla cancer and the cancer spread through my lymphvascular axilla area including another tumour outside of lymphnodes. My allred score is 8/8 for both ER & PO - why he thought chemo would have been helpful is beyond me. We have no access to PET/CT scans here in British Columbia for regular diagnostic procedures like breast cancer....

This is why I love this thread so much. I need hope that women like me can live WELL and longer than a decade....

Diagnosed at age 46. Taking low dose naltrexone as 30% of cancer patients have low endorphins impacting the body's immune system to kill cancer stem cells. Dx 5/24/2017, IDC, Left, 2cm, Stage IIIB, Grade 3, ER+/PR+, HER2- Chemotherapy 6/9/2017 AC + T (Taxol) Surgery 11/24/2017 Lymph node removal: Underarm/Axillary; Mastectomy Dx 12/6/2017, LCIS/IDC/IDC: Tubular, Left, 1cm, Stage IIIA, Grade 2, 6/16 nodes, ER+/PR+, HER2- Radiation Therapy 2/5/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 3/14/2018 Femara (letrozole)
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Feb 26, 2018 11:55PM mpetago wrote:

Hi Elaine,

I received the 'old school' regimen, much to my dismay at the time. 4 AC given once every three weeks, followed by 12 taxotere given once a week for three weeks, then one week off. Oncologist said insurance wouldn't pay for neulasta, so dose dense wasn't an option for me.

Dx 2/18/2004, IDC, 6cm+, Stage IIIA, Grade 3, 1/11 nodes, ER+/PR-, HER2- Surgery 2/22/2004 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): DIEP flap Chemotherapy 4/1/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 10/15/2004 Breast Hormonal Therapy 1/1/2005

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