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Topic: Stage III Cancer Survivors...15+ years and out

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Nov 22, 2015 12:02PM

weesa wrote:

Let's just see what happens here...This is a "build it and they will come" experiment. It's time.

If you are not a 15 year survivor but know the story of someone who is, please join in.

Sometimes I wonder if I am an old soul temporarily trapped in a breast cancer body. Dx 11/22/2002, IDC, 6cm+, Stage IIIA, Grade 2, 5/25 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/13/2003 Breast, Lymph nodes Hormonal Therapy 8/22/2003 Femara (letrozole) Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap
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Feb 27, 2018 04:52PM IAmElaine wrote:

Mpetago, thanks for the reply! You are doing amazingly well so your treatment plan must have been just what the doctored ordered. :) I was able to get the Neulasta shot. Without it, there is no way I could have done the regimen I did. BTW, I hated that shot almost as much as I hated those dang steroids!

Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes
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Mar 1, 2018 12:22PM IAmElaine wrote:

I was diagnosed exactly 14 years ago today. I am so thankful for each day I have had.

For any newbies who have a crappy diagnosis, believe there is hope and live that hope. Don't let the cancer win by allowing it to freeze you in fear.

Something my onc said to me on my first meeting with him has always stuck with me.

"Don't be one of those people who stops living while they are still alive".


Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes
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Mar 1, 2018 12:29PM Roaming_Star wrote:

IAmElaine - Awesome! Thank you for your words of encouragement:-) Thank you for posting your anniversary date for us!

Diagnosed at age 46. Taking low dose naltrexone as 30% of cancer patients have low endorphins impacting the body's immune system to kill cancer stem cells. Dx 5/24/2017, IDC, Left, 2cm, Stage IIIB, Grade 3, ER+/PR+, HER2- Chemotherapy 6/9/2017 AC + T (Taxol) Surgery 11/24/2017 Lymph node removal: Underarm/Axillary; Mastectomy Dx 12/6/2017, LCIS/IDC/IDC: Tubular, Left, 1cm, Stage IIIA, Grade 2, 6/16 nodes, ER+/PR+, HER2- Radiation Therapy 2/5/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 3/14/2018 Femara (letrozole)
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Mar 1, 2018 12:42PM Manc wrote:

Hi IAmElaine I love your oncologist quote emotionally I've had the hardest time I'm going to try to follow this philosophy. Did you find the recurrence fears a challenge at times .

Dec 2016 36 mm Grade 3 in 2 nodes Er6 Pr 4 Her-
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Mar 3, 2018 04:42PM ck55 wrote:

Congratulations IAmElaine! What a wonderfully encouraging post for everyone on this journey.

So very happy for you!! 🌹

Cyn

DX 11/9/06 9cm ILC Stage 3A Mastectomy ER+ PR+ HR- 2/16 Nodes DD AC/Taxol Radiation
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Mar 7, 2018 07:51PM - edited Mar 7, 2018 08:00PM by Mimi321

Hi all, this month I am a 15 year survivor! I had aggressive stage 3, hormone positive bc. I had all the treatments, mastectomy, chemo, radiation and hormonal. It was tough, but I made it and happy and thankful to be here!


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Mar 7, 2018 09:12PM HoneyBeaw wrote:

Mimi

Thanks for posting, Happy for you and hoping you knock out another 15 or 20. .

Post like yours give us all hope.

Surgery 11/27/2016 Lumpectomy: Left Dx 12/5/2016, IDC, Left, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 12/25/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 1/15/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Mar 7, 2018 09:30PM LeesaD wrote:

Awesome Mimi!!! Congratulations and thank you so much for sharing! Cheers to the next 15!
Oncotype Score 3, 2/4 Sentinal Nodes micromestasis so pushed for ALND for 'peace of Mind' and surprise found 2/14 positive axillary nodes Dx 2/3/2017, IDC, Right, 3cm, Stage IIB, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 3/26/2017 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/16/2017 Lymph node removal: Underarm/Axillary Chemotherapy 5/8/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/1/2017 Hormonal Therapy 9/7/2017 Arimidex (anastrozole), Zoladex (goserelin) Surgery 11/16/2017 Prophylactic ovary removal Surgery 1/29/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Mar 9, 2018 07:55AM live_deliciously wrote:

thanks to all who take time to come back and post their success story here. You are such good inspiration to all of us.

Dx 12/2014, IDC, Right, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 1/16/2015 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/24/2015 AC + T (Taxol) Radiation Therapy 7/6/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 8/20/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Afinitor (everolimus)
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Jun 15, 2018 05:00AM PreludeSing wrote:

love this thread..bump!

Dx 6/2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/24 nodes, ER+/PR+, HER2- Surgery 6/6/2017 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 6/26/2017 AC + T (Taxol) Radiation Therapy 11/27/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Jun 15, 2018 08:58AM ash123 wrote:

Thank you for the hope Mimi!


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Jun 15, 2018 02:31PM DancingElizabeth wrote:

You all who come back and post on here - have no idea - how much hope you give us!!

Heart

More than not - it's on my mind - that my BC - was not Stage 1 or 2 or Grade 1 or 2.

But, stage THREE and, HUGE and GRADE 3. Sometimes I'm Ok and can handle knowing this, but other times - I just can't seem to stop ruminating about it...

Dx 4/13/2016, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 3/23 nodes, ER+/PR+, HER2- Surgery 5/17/2016 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Surgery 5/31/2016 Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 7/6/2016 AC + T (Taxol) Radiation Therapy 11/7/2016 Hormonal Therapy 11/8/2016
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Jul 1, 2018 12:08AM ladyb1234 wrote:

Congratulations and thank you so much for sharing and coming back to be an encouragement

Once or twice in our lives, we are given the chance to find out just how much inner strength we possess. Usually we find we have far more than we ever imagined. (Phil 4:13 I can do all things through Christ which strengtheneth me). Dx 6/9/2014, IDC, Left, Grade 2, 8/18 nodes, ER+/PR+, HER2- Surgery 7/11/2014 Lymph node removal: Left, Underarm/Axillary
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Jul 1, 2018 05:23PM Lottanodes wrote:

Hello,

I haven't posted on this site in a very long time. My life is pretty busy. I'm still working at age 68 and in pretty good health despite my decadent lifestyle and non compliance with healthcare guidelines. I eat and drink whatever I want and get very little exercise except for gardening and shopping. I get a mammogram about every 18 months and have never had a colonoscopy. Prior to my diagnosis in 1995 I ate a plant based diet, exercised regularly (normal weight), and kept up with the tests that my doctor suggested. I got stage III breast cancer anyway. No one knows why.

Just as no one can say why I got it, no one can say why the treatment worked for me. Luck, I suppose.

I have lived without my left breast and with mild lymphedema for years. A young newly diagnosed woman asked me the other day how long it takes for the constant anxiety to subside. I told her that there is no timetable but it is possible to reach a point where the shadow of breast cancer is not omnipresent in your life. Worry over breast cancer has been supplanted by worry over outliving my money, cataract surgery, impending knee replacement and having to deal with crabby old people (I'm one of them). My hope is that all of you will live to embrace the "joys" of senior citizenship as I do.

One last note regarding "chemo brain". I have not met one single person who did not recover (or gain) all of their mental abilities after completing chemo.


Lotta Nodes Dx 11/21/1995, IDC, 6cm+, Stage IIIA, 22/23 nodes, ER-/PR- Surgery 11/21/1995 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/26/1995 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Radiation Therapy 8/15/1996 Breast, Lymph nodes
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Jul 1, 2018 06:41PM HersheyKiss wrote:

Lotta, more power to you! I admire your outlook and spunk. Crabby?!? You sound like a fun person to me! :-)

Dx 3/1/2017, ILC, Left, 2cm, Grade 1, 3/16 nodes, ER+/PR+, HER2-
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Jul 1, 2018 07:32PM PreludeSing wrote:

LottaNodes gotta Lottaspunk....really thrilled for you...🎉🎉🎉

Dx 6/2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/24 nodes, ER+/PR+, HER2- Surgery 6/6/2017 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 6/26/2017 AC + T (Taxol) Radiation Therapy 11/27/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Aug 19, 2018 06:06AM Adelozier wrote:

Bump

Dx 5/2/2017, DCIS/IDC, Right, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Aug 20, 2018 03:09PM Adelozier wrote:

I am looming for hope. though I was stage 2a last year . I found a cancerous lymph node myself 2 weeks ago. I forced them to test it. Now I'm dealing with a reoccurance in my lymph nodes only they say as my ct and bone scan were negative. I'm 38 and a mommy to the most beautiful little boy. I'm devastated. I believe this was there the whole time. I didnt know where to turn. I cant stop crying. I'm terrified of what the future holds now. My mom us dying of cancer ( another kind) I cant leave my little boy. Do I have any hope at all ???

Dx 5/2/2017, DCIS/IDC, Right, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Aug 20, 2018 08:50PM - edited Aug 20, 2018 08:55PM by Nas

Adel, I totally understand you, I am 39 years old and was diagnosed at age 38, I have a 5 year old boy who is my life, This cancer journey is so frustrating, but I believe we do have a good chance of survival, try predict , they have great statistics, whenever I feel down I go there and put all my pathology nlmbers in again and looking at 15 years survival gives me hope... we are all a big family and understanding each other.. you are not alone honey❤️❤️❤️

Dx 12/5/2017, IDC, Right, 1cm, Stage IIA, Grade 1, 1/8 nodes, ER+/PR+, HER2- Surgery 12/14/2017 Mastectomy: Left, Right Radiation Therapy 2/7/2018 Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 21, 2018 06:48AM katykaty wrote:

Lottanodes - what a wonderful post! I love the energy and life in it. You are exactly right - doing everything “right” is no guarantee against getting stage III. We do what we can and just get on with it. Thank you so much for your exuberant post. I wish you many more years battling the littling things!!

Dx 11/25/2016, IDC, Right, 3cm, Stage IIIC, Grade 3, 1/3 nodes, ER-/PR-, HER2+ Chemotherapy 12/2/2016 AC + T (Taxol) Targeted Therapy 3/24/2017 Herceptin (trastuzumab) Surgery 6/15/2017 Lymph node removal; Mastectomy Targeted Therapy 6/23/2017 Herceptin (trastuzumab) Radiation Therapy 7/25/2017 Lymph nodes, Chest wall
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Sep 9, 2018 08:42AM NancyD wrote:

Lottanodes, I think the slew of posts from recent diagnosees indicates just how important it is that long term survivors come back and post about their lives. I'm a bit over 10 years, and at the beginning this board didn't have anyone posting that was much more than five years from diagnosis. I know I hung on every year, as I'm sure we all did. Thank-you for taking the time to come back and share the encouragement we all need.

Life is good. It's not perfect. but it's good. Dx 2/22/2008, IDC, Left, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Chemotherapy 3/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 7/11/2008 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 9/1/2008 Arimidex (anastrozole) Radiation Therapy 9/5/2008 Breast, Lymph nodes Surgery 1/28/2010 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Sep 11, 2018 11:25AM wyngaardt wrote:

These are all amazing stories and give me alot of hope for my wife. We are waiting on a CT scan to determine what stage she is on. She initatially had Stage 3 Breast Cancer, it has not spread to her neck, chest wall and arm pits. Can this be regarded as Mets?

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Oct 11, 2018 11:42AM Adelozier wrote:

bump

Dx 5/2/2017, DCIS/IDC, Right, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Oct 12, 2018 10:47AM wallan wrote:

This is always an inspirational wonderful board.

Lottanodes, you seem fun, energetic, and hilarious. I like you already. I hope your remain cancer-free and you are giving hell at 100 years old and that you have money flow to you...LOL

You inspire me... and thanks for the note about chemobrain. I find my memory is shot and my brain gets stressed if I have too much challenging thinking to do... I was told I had chemobrain when I finished chemo first time and to be gentle with myself. And then of course, Arimidex this time does not help. So I will be gentle with myself and live it up.

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 22, 2018 09:14AM weesa wrote:

Today is my 16th anniversary. How fitting it would fall on Thanksgiving Day. I have acquired a few gray hairs and two darling granddaughters. I have watched my children, who swore they would never get married, marry well. I have watched saplings planted in my front yard grow to towering trees. My snazzy car that I bought when I was done with chemo, radiation, and 17 surgeries to reward myself has gotten battered and gnarly. I feel good most of the time.

Still, I have uneasy moments of concern. Have made peace with the shadow behind me, though. Probably a good thing to know the beast could return. Makes life sweeter.

Wish I had some secret formula to pass on, but I don't. Love and admiration to all, Weesa

Sometimes I wonder if I am an old soul temporarily trapped in a breast cancer body. Dx 11/22/2002, IDC, 6cm+, Stage IIIA, Grade 2, 5/25 nodes, ER+/PR+, HER2- Chemotherapy 1/19/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/13/2003 Breast, Lymph nodes Hormonal Therapy 8/22/2003 Femara (letrozole) Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap
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Nov 22, 2018 10:02AM Nas wrote:

weesa, congratulations, wish you many many more years of love and health❤️❤️

Dx 12/5/2017, IDC, Right, 1cm, Stage IIA, Grade 1, 1/8 nodes, ER+/PR+, HER2- Surgery 12/14/2017 Mastectomy: Left, Right Radiation Therapy 2/7/2018 Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 22, 2018 09:13PM - edited Nov 22, 2018 09:13PM by LeesaD

Weesa- THANK YOU for sharing your story and congratulations on this milestone😘! Reading posts like yours is so encouraging.I wish you at least 16 more years of continued health!!

Oncotype Score 3, 2/4 Sentinal Nodes micromestasis so pushed for ALND for 'peace of Mind' and surprise found 2/14 positive axillary nodes Dx 2/3/2017, IDC, Right, 3cm, Stage IIB, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 3/26/2017 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/16/2017 Lymph node removal: Underarm/Axillary Chemotherapy 5/8/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/1/2017 Hormonal Therapy 9/7/2017 Arimidex (anastrozole), Zoladex (goserelin) Surgery 11/16/2017 Prophylactic ovary removal Surgery 1/29/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Nov 22, 2018 09:38PM SerenitySTAT wrote:

Congratulations, weesa! “Makes life sweeter.“ Maybe that helps?

"Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC Left IIIC 10/11 nodes ER+PR+HER2-, 12/2015 Left Mast, 2/2016 4 AC+12 Taxol, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox
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Nov 23, 2018 02:05PM lkc wrote:

Weesa,

cheers and happy sweet 16!

How wonderful is the gift of getting older.

wishing you lots and lots of more memories over many many more years.

Linda K dx'd May 05 Stage IIIC erpr-, her pos, 12 pos nodes
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Nov 23, 2018 09:19PM StephanieD wrote:

Weesa! Thank you so much for sharing this. What a beautiful post. Happy Birthday of sorts! and Happy Thanksgiving to all my American fellow pink sisters.

xxx

Stephanie

Dx 1/7/2016, IDC, Right, 4cm, Stage IIB, Grade 2, 4/12 nodes, ER+/PR+, HER2- Surgery 1/27/2016 Lymph node removal; Mastectomy: Right Chemotherapy 3/21/2016 AC + T (Taxotere) Radiation Therapy 9/13/2016 Surgery 12/5/2016 Prophylactic ovary removal Hormonal Therapy Aromasin (exemestane)

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