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Topic: Large tumour survivors

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Jun 22, 2016 08:35AM - edited Jun 22, 2016 08:37AM by LM070917

LM070917 wrote:

Hey ladies,

Just wondering how many BC survivors have had large tumours (5cm+) and how they are doing years out of diagnosis?

I was diagnosed with an 8cm tumour last sept at 34 years old. The size freaked me out, I couldn't believe how big it was. It's always been a worry, so it would be really nice to hear from others.

Dx 9/18/2015, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/14 nodes, ER+/PR+, HER2- Chemotherapy 11/1/2015 AC + T (Taxol) Surgery Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Posts 31 - 46 (46 total)

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Oct 10, 2018 09:07AM Canceribilder wrote:

Hopefully more people with large tumours finds this thread

Helena
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Oct 10, 2018 03:29PM Lottanodes wrote:

I had manual breast exam along with my annual pap in the Spring of 1995 with normal results . The lab results from my November 25, 1995 post mastectomy pathology exam indicated a 7 X 6 cm tumor with "metastatic poorly differentiated ductal carcinoma involving 22 out of 23 axillary lymph nodes with foci of extra nodal tumor extension". Going on 23 years disease free. I got it into my unscientific mind back then that my cancer was fast growing so it should also be fast dying. After re-reading the report today I decided that I'm NOT going to mow the lawn, do any laundry, or cook today. Best wishes to all.

Lotta Nodes Dx 11/21/1995, IDC, 6cm+, Stage IIIA, 22/23 nodes, ER-/PR- Surgery 11/21/1995 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/26/1995 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Radiation Therapy 8/15/1996 Breast, Lymph nodes
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Oct 10, 2018 06:36PM live_deliciously wrote:

thanks ladies for sharing all this. Mine was 6 x 5 irregular shape. 7 nodes positive with them spewing cancer out of them. Still here and doing well. 4 years since my diagnosis next month. Still a baby in this journey but planning to be around a long time

Dx 12/2014, IDC, Right, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 1/15/2015 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/23/2015 AC + T (Taxol) Radiation Therapy 7/5/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 8/20/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Afinitor (everolimus)
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Oct 10, 2018 06:52PM - edited Oct 10, 2018 06:52PM by Denise-G

Tomorrow marks SEVEN YEARS since my diagnosis with a 6.5 to 7 cm tumor, 9 positive nodes, Her 2 Pos.(was only able to have 3 months of Herceptin due to major heart damage fro the drug).

I never dreamed I would be here in 7 years, but I am!

GOOD LUCK TO ALL!!

www.denise4health.wordpress.com my BC Blog with over 200 informative posts about all aspects of BC - stop by! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2+ (FISH) Surgery 11/23/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/27/2011 AC + T (Taxol) Targeted Therapy 2/28/2012 Herceptin (trastuzumab) Hormonal Therapy 10/11/2012 Arimidex (anastrozole)
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Oct 10, 2018 11:21PM JosieO wrote:

Big congrats, Denise. Appreciate your continued commitment to sharing and informing all of us

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Oct 25, 2018 09:29PM CaliKelly wrote:

Mine was 8cm×2×2 1/2. Shrunk quite a bit after neo adjuvant TAC chemo.But 8 of 20 node still positive after chemo. Jan. 2019 my 3 year cancer free anniversary, doing awesome!

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/10/2015 TAC Surgery 1/19/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/29/2016 Arimidex (anastrozole) Surgery 6/28/2016 Reconstruction (left): Silicone implant Chemotherapy 11/2/2016 Xeloda (capecitabine) Surgery 10/6/2017 Reconstruction (left): Latissimus dorsi flap Surgery Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 27, 2018 06:37AM Newnorm wrote:

I found this thread at the very start of my journey and I have come back to it often for comfort and inspiration. Mine too was huge. Thanks for reigniting this thread. It’s so encouraging that there can be less than positive characteristics to each tumour yet the prognosis isn’t necessarily bleak. Just watching the Invictus Games closing ceremony and am so inspired by those amazing human beings. It’s helped put my own situation into perspective.

Dx 12/23/2016, IDC, Left, 6cm+, Stage IIIB, Grade 2, 6/17 nodes, ER+/PR+, HER2- Chemotherapy 1/6/2017 AC + T (Taxol) Hormonal Therapy 7/27/2017 Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/28/2017 Lymph node removal: Left; Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 27, 2018 10:44AM jenni__ca wrote:

still doing ok here too !

best of luck to all of us !

ILC, multifocal, 7+++cm, ER+, PR-, HER2-, 1/4 nodes, stage 3A ...14 years !!!!!! and counting....
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Oct 28, 2018 03:44PM - edited Oct 28, 2018 03:46PM by Kattis894

Yes mine was big too 6,5 x 4,5 cm shrunk to 2,5 x2,4 with chemo and targeted treatment Triple positive. I am still around. Incredible that no nodes nor vascular invasion was noted. My onc told me he has seen it all, small ones that act like a bully and big ones that do not. The rabbit and turtle thing. I am always scared of recurrences but still ok after my last visit this summer. Next year I will go again and pray it is still ok which would then mark 3 years NED. I really never understood why the size had such importance, if someone cares to explain I would be grateful.

ER+100%,, PR+85%, Her2+++100%, Ki65 30% went down to 6%, Hormon treatment 10 years, Zometa every 6 months for 3 years Dx 7/7/2016, DCIS/IDC, Right, 6cm+, Stage IIB, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Chemotherapy 7/25/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Targeted Therapy 10/2/2016 Herceptin (trastuzumab) Chemotherapy 10/2/2016 Taxol (paclitaxel) Targeted Therapy 10/2/2016 Perjeta (pertuzumab) Surgery 12/18/2016 Mastectomy: Right Hormonal Therapy 1/2/2017 Femara (letrozole) Radiation Therapy 1/17/2017 Whole-breast: Breast, Chest wall Surgery 6/18/2017 Reconstruction (left)
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Oct 29, 2018 03:28PM sherrmue wrote:

Do I have to be stage 3? Was initially diagnosed 3c.

8 years alive after 10cm left, 8cm right with all positive margins. 15 nodes positive with extension in 2010.My ILC does not show on imaging, except in bone. Docs knew I was stage IV in 2010, but could not see it. Cancer had been there for a long time.

I’m still here even with a bad start!

Fight,Fight,Fight!

Dx 7/24/2010, ILC, Both breasts, 6cm+, Stage IIIC, Grade 2, 15/30 nodes, ER+/PR+, HER2- Dx 10/2010, ILC, Both breasts, 6cm+, Stage IIIC, Grade 2, ER+/PR+, HER2- Dx 10/2014, ILC, 6cm+, Stage IV, metastasized to bone/liver/other, Grade 2, 15/30 nodes, ER+/PR+, HER2-
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Oct 31, 2018 11:15AM Jinx27 wrote:

Still here!!

Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 2, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Hormonal Therapy 8/30/2016 Arimidex (anastrozole) Chemotherapy AC + T (Taxol)
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Nov 15, 2018 11:10AM Maggie0626 wrote:

Hello Ladies! I am new to this thread and just recently diagnosed. My tumor is very large, occupying almost the entire side of my right breast, I am a B cup. I met with my BS earlier this week. She seemed very positive that this can be treated/cured. I am trying my best to hang on to that. She told me that size sometimes matters, but not always. She said that sometimes tumors are large because they only occupy the breast and do not venture outside of the breast. We can feel an enlarge lymph node under my arm, but she feels that from my biopsy, I had 10 tissue samples taken, that it may be the lymph nodes reaction to the biopsy...my breast is still really bruised from the bio the biopsy. I have a biopsy scheduled for the lymph nodes under my arm in a week. I am considering a double mastectomy due to my genetic disorder to hopefully prevent future concerns. My mastectomy won’t be until until January...man thats a LONG time to wait. Waiting is the worst

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Nov 15, 2018 12:08PM CaliKelly wrote:

The waiting is definitely the hardest part! My main tumor was very large also, like 8.5×2.5cm.And I had it in my lymph nodes, that's how I found it, I felt like a jellybean under my arm. Painless.My breast tumor I didn't identify, because my breasts were always lumpy feeling. I had chemo before surgery because of the lymph node. Shrunk the tumor way down. I had mastectomy only on my left side, then later, radiation and reconstruction. All good now, feeling Great! You have challenges ahead, but it's all do-able, you will find , step by step. Try to enjoy the holidays! I had mastectomy in Jan. 2016, on my birthday! Entire surgical team sang Happy Birthday to me as I went under 😂💖

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/10/2015 TAC Surgery 1/19/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/29/2016 Arimidex (anastrozole) Surgery 6/28/2016 Reconstruction (left): Silicone implant Chemotherapy 11/2/2016 Xeloda (capecitabine) Surgery 10/6/2017 Reconstruction (left): Latissimus dorsi flap Surgery Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Nov 15, 2018 12:17PM - edited Nov 15, 2018 12:17PM by Maggie0626

CaliKelly, that is funny. You seem like me, always trying to see the rainbow. Waiting is the worst, but I feel so much better after meeting with my BS. She was very positive and that is what I needed.I am getting more sleep and eating a little more. I am can't wait for the weekend when I can sleep in past 5:30. Lol.

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Nov 15, 2018 11:08PM HoneyBeaw wrote:

Maggie

Sorry you have to be on this board but glad you are feeling better, I was in the exact same boat have a mx days after Christmas 2016. The waiting is horrible and I refused to wait. I pushed and pushed the Dr until they agreed to do the surgery sooner, I just could not wait as I had found the lump election days 2016 and when they didn't get clear margins first time around I was a basket case. I ended with mx on the left and have not done any reconstruction yet, not sure I will. .Why are they making you wait so long for surgery are you doing chemo first ?

Please feel free to reach out if you have any questions

Huggs my dear

Surgery 11/27/2016 Lumpectomy: Left Dx 12/5/2016, IDC, Left, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 12/25/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy 1/15/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Nov 16, 2018 07:39AM Maggie0626 wrote:

honeyBeau,

Not sure. I see her again on December 11th and I am going to see if I can have it done before Christmas. I have to have some more tests done so she has some more info. I see a genetic counselor today due to family history with other cancers. I will have an MRI in about a week along with a biopsy of my lymph node that’s she felt during my exam. She feels it is swollen because of biopsy on my tumor. If that biopsy comes back positive, I will have to have chemo

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