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Topic: I'm livin' the dream: just hit LUCKY 13!

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Apr 27, 2019 04:34PM - edited Apr 28, 2019 03:44PM by sugarplum

sugarplum wrote:

Yes, here I am again, hoping to entertain you with yet another of my cheesy annual posts. In the past year I've added a new battle scar to my laundry list which began in 2006: bilateral mastectomies, port placement, oophorectomy, right then left hip replacements, and last August a defibrillator implant. However, I remain profoundly grateful that I've lived long enough to become the bionic woman that I am today!

One happy coincidence this month was being interviewed by Breast Friends for their April 17th radio episode (link is below if you want to check it out!)

https://www.voiceamerica.com/episode/114479/the-importance-of-support-in-overcoming-cancer

It contains among other things a shout-out to my wonderful peeps here at BC.org!

Hugs & hope to all - Julie

Keep calm and carry on.... Dx 4/28/2006, IDC, Right, Stage IIIC, Grade 3, 10/20 nodes, ER+/PR+, HER2- (FISH) Surgery 6/6/2006 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/30/2006 Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 12/17/2006 Arimidex (anastrozole) Radiation Therapy 1/10/2007 Whole-breast: Breast
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Apr 27, 2019 07:51PM lkc wrote:

Congratulations Julie! Isn't it wonderful, the gift of getting older?

Linda K dx'd May 05 Stage IIIC erpr-, her pos, 12 pos nodes
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Apr 27, 2019 10:38PM Lexica wrote:

Congrats!!! And thank you for coming back every year and posting!

Diagnosed at 34. Dx 7/2017, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2- (IHC) Surgery 12/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Dx 12/27/2017, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 5/11 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 1/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)
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Apr 27, 2019 11:41PM mpv459 wrote:

Sugarplum: Your story gives such hope.. and that is in short supply for me right now.. Wishing you the very best and many happy years. :)

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Apr 27, 2019 11:54PM LeesaD wrote:

Thank You so much for sharing Julie!!! Please keep coming back with updates!!!
Oncotype Score 3, 2/4 Sentinal Nodes micromestasis so pushed for ALND for 'peace of Mind' and surprise found 2/14 positive axillary nodes Dx 2/3/2017, IDC, Right, 3cm, Stage IIB, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 3/27/2017 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/17/2017 Lymph node removal: Underarm/Axillary Chemotherapy 5/9/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/2/2017 Hormonal Therapy 9/7/2017 Arimidex (anastrozole), Zoladex (goserelin) Surgery 11/17/2017 Prophylactic ovary removal Surgery 1/30/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Apr 28, 2019 02:02AM hopefour wrote:

Thank you thank you for growing older!!! Its encouragement for us all!! If I remember right you are still on a Als?? Congrats on doing so well!!


Dx 5/2011, IDC, 1cm, Stage IIIA, Grade 1, 4/22 nodes, ER+/PR+, HER2-
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Apr 28, 2019 02:13AM TectonicShift wrote:

Congratulations !! I hope to follow you to 13 eventually !

Is the defibrillator related to your past cancer treatments?


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Apr 28, 2019 07:19AM sugarplum wrote:

Thanks all! Hope, I am indeed still on Arimidex although it was quite a search to find an onc who would continue my prescription for me. Tec, Adriamycin is thought to be very likely the cause of my cardiomyopathy. I was warned before beginning treatment that there could be dire consequences down the road - but who has time to worry about that when you're fighting for your life?!

I appreciate all of you continuing to grow old with me...Julie


Keep calm and carry on.... Dx 4/28/2006, IDC, Right, Stage IIIC, Grade 3, 10/20 nodes, ER+/PR+, HER2- (FISH) Surgery 6/6/2006 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/30/2006 Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 12/17/2006 Arimidex (anastrozole) Radiation Therapy 1/10/2007 Whole-breast: Breast
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Apr 28, 2019 05:08PM Claire_in_Seattle wrote:

I'll wave to you from my bicycle this July when on my way to Portland. Congrats on lucky 13!! 

After 15+ years of turmoil which also included a career change, a cross-country move, and a divorce, I am finally in a place where I can fully appreciate my blessings and enjoy life. All my plans have worked out, other than I would love to meet someone. I also have enough income to travel, and I am in the process of upgrading my apartment to be the place I always wanted. Not a major revision, but the touches that make the difference.

Years 10-13 should be fabulous! - Claire 

Completed all treatment (AC +T, lumpectomy, radiation and 5 years of AIs - anastrazole). Now celebrating every single day for the wonderful life I have been granted. Dx 8/2009, IDC, Left, 2cm, Stage IIB, Grade 3, 1/21 nodes, ER+/PR-, HER2- (FISH)
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Apr 28, 2019 06:53PM poisedandpink wrote:

Congrats!! Thank you for coming back to continue to share your story. If gives those like me still somewhat new to the journey so much hope!

Diagnosed at 33 Dx 10/9/2018, LCIS/ILC/IDC, Left, 6cm+, Stage IIIA, Grade 2, 2/6 nodes, ER+/PR+, HER2- Chemotherapy 11/30/2018 AC + T (Taxol) Surgery 4/4/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Apr 30, 2019 05:32PM LoveFromPhilly wrote:

hi friends!

Congratulations on all your achievements and living life without letting dang cancer take over!

Question for the crew: someone I know was just diagnosed stage 3 hormone + with lymph nodes lighting up. They told me they are only being prescribed Arimidex and not doing any chemo, surgery, or rads. Is this the new normal in terms of treatment? I am happy for her and also surprised to here that there isn’t more being done.

Thank you so much for allowing me to come visit your threaded!

Philly

💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏽‍♂️ 💫 🧚🏽‍♂️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ Dx 3/25/2017, IDC, Right, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/4/2017 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Apr 30, 2019 07:13PM Fritzmylove wrote:

IChangedMyName, that doesn't sound like the standard protocol for stage 3. Typically us stage 3ers get the kitchen sink of treatment. Chemo, surgery, rads, and hormone treatment if applicable.

CHEK2+ Dx 9/19/2018, IDC, Right, 6cm+, Stage IIIA, Grade 2, ER+/PR+, HER2- Chemotherapy 9/30/2018 TAC Surgery 2/20/2019 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/4/2019 Femara (letrozole), Zoladex (goserelin) Radiation Therapy 4/22/2019 Whole-breast: Lymph nodes, Chest wall
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May 1, 2019 03:06AM LoveFromPhilly wrote:

thanks Fritz...yeah I thought that it sounded a bit under aggressive for her diagnosis.

I’m wondering if she maybe made some negotiations with her MO about treatment that she is comfortable accepting...I know how scary it is to face

💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏽‍♂️ 💫 🧚🏽‍♂️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ Dx 3/25/2017, IDC, Right, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/4/2017 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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May 10, 2019 03:15AM - edited May 10, 2019 03:16AM by Ausykaren

This Post was deleted by Ausykaren.
Dx 2/2017, IDC, Right, 4cm, Stage IIIC, Grade 3, 11/19 nodes, ER+/PR+, HER2-
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May 11, 2019 02:11AM karen1956 wrote:

Julie - I marked 13 years in February!!! Happy to be growing older...and with that comes a laundry list of Dx, but it beats the alternative

Ichanged - I don't know what current protocol is, but when I was Dx in 2006, bilat, chemo, rads, ooph, AIs - but I know that treatment is more individualized

Wishing everyone a great week-end.

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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May 19, 2019 05:06PM Misstic wrote:

It is such a thing to see a stage IIIC fellow achieve 13 years survival. Thank you!

Dx 6/26/2014, ILC, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/15/2014 Mastectomy: Left; Reconstruction (left) Chemotherapy 8/23/2014 Cytoxan (cyclophosphamide), Taxol (paclitaxel) Hormonal Therapy 3/7/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/4/2016 Reconstruction (left): Fat grafting Dx 1/5/2018, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2018 Gemzar (gemcitabine), Navelbine (vinorelbine) Radiation Therapy Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 1/10/2020 Faslodex (fulvestrant)
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May 26, 2019 10:35PM libby2002 wrote:

Julie- have you come off the hormonal treatments or are you still on them at this point?

Dx 4/19/2019, IDC, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Chemotherapy 5/5/2019 TAC
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May 27, 2019 01:16AM sugarplum wrote:

Hi libby - yes, I've been on Arimidex for the past 12 + years, although I had to go through 3 oncologists before I could find one to renew my prescription after the first 10. Have to watch my bone density as I was osteopenic even before my BC diagnosis, but other than that it's a non-issue (although I have seen my cholesterol level creeping up over the years - almost to 200 now).

The cardiologist doesn't seem to think the Arimidex is to blame for my current heart issues - he thinks Adriamycin is the likely culprit. Oh well - life is just a series of trade-offs, right?

Best to all - Julie

Keep calm and carry on.... Dx 4/28/2006, IDC, Right, Stage IIIC, Grade 3, 10/20 nodes, ER+/PR+, HER2- (FISH) Surgery 6/6/2006 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/30/2006 Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 12/17/2006 Arimidex (anastrozole) Radiation Therapy 1/10/2007 Whole-breast: Breast
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May 29, 2019 06:36PM YATCOMW wrote:

Simply awesome......the years just keep adding up!!!!

Congratulations.......I love it.


Jacqueline

Dx 5/2004, ILC/IDC, 6cm+, Stage IIIC, Grade 3, 17/24 nodes, ER+/PR+, HER2-
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May 31, 2019 07:06PM NancyD wrote:

Congratulations, Julie!!!!

Life is good. It's not perfect. but it's good. Dx 2/22/2008, IDC, Left, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Chemotherapy 3/22/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 7/11/2008 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 9/1/2008 Arimidex (anastrozole) Radiation Therapy 9/5/2008 Breast, Lymph nodes Surgery 1/28/2010 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jun 15, 2019 05:53PM victoriasecret wrote:

Congrats !

Dx 6/15/2009, ILC, 6cm+, Stage IIIC, Grade 2, 11/25 nodes, ER+/PR-, HER2- Surgery 7/30/2009 Lymph node removal: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 8/30/2009 AC + T (Taxol) Hormonal Therapy 12/31/2009 Arimidex (anastrozole) Radiation Therapy 12/31/2009 Breast, Lymph nodes

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