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Topic: Any long term survivors with more than 10 positive lymph nodes

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Jul 29, 2019 04:05PM

Francesca30 wrote:

I was diagnosed last February at Stage 3, with 13 positive lymph nodes and lymphovascular invasion, er pr+, her 2-, ki 40. Had a mastectomy, just finished TAC chemo, and will be on to rads in 2 weeks, breast recon+ hysterectomy scheduled in February 2020. Time has made me less anxious and depressed over my diagnosis but the fear of recurrence still comes in waves. Are there long term survivors out there with similar diagnosis?

Dx 3/14/2019, IDC, Left, 2cm, Stage IIIA, Grade 2, 13/20 nodes, ER+/PR+, HER2- Surgery 3/14/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/4/2019 TAC Radiation Therapy 8/14/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/17/2019 Prophylactic ovary removal Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery 7/31/2020 Reconstruction (left): Silicone implant
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Jul 29, 2019 04:25PM mpv459 wrote:

Read posts on Stage 3 Breast Cancer.. There are long term survivors stories there. You and I have similar stats. I also get anxious over reoccurance but have faith that we will be okay.

mpv459
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Jul 29, 2019 08:43PM sugarplum wrote:

Francesca, I hear ya - my stats speak for themselves! Sounds like they've got you on the same treatment path that I had, minus the hysterectomy (they only took my ovaries). I've been fighting a constant battle with my fear for the past 13 years - the waves/intensity do lessen as time goes by, but you never really get past it (at least I haven't). Other physical ailments have also distracted me for periods of time - 2 hip replacements and now heart disease (probably brought on by the chemo). At this point I'm still functioning pretty well, and remain grateful for all the extra time that chemo bought me. I refer to it as gravy!

Stay connected to this community - it has helped me immensely over the years and still continues to!

Best - Julie

Keep calm and carry on.... Dx 4/28/2006, IDC, Right, Stage IIIC, Grade 3, 10/20 nodes, ER+/PR+, HER2- (FISH) Surgery 6/6/2006 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/30/2006 Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 12/17/2006 Arimidex (anastrozole) Radiation Therapy 1/10/2007 Whole-breast: Breast
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Jul 29, 2019 10:00PM mpv459 wrote:

Juiie… You provide so much hope... thank you for sharing.

mpv459
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Jul 29, 2019 11:51PM - edited Jul 29, 2019 11:52PM by Francesca30

@mpv459 thank you. Most times, I seem to be ok. Then I realize the seriousness of my diagnosis and all the uncertainty. I'm so thankful for this group/ thread

@julie congratulations on 13 years! Thank you for inspiring and sharing positive vibes to newbies like me

Dx 3/14/2019, IDC, Left, 2cm, Stage IIIA, Grade 2, 13/20 nodes, ER+/PR+, HER2- Surgery 3/14/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/4/2019 TAC Radiation Therapy 8/14/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/17/2019 Prophylactic ovary removal Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery 7/31/2020 Reconstruction (left): Silicone implant
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Jul 30, 2019 10:23AM lkc wrote:

I was diagnosedwith Stage IIIC BC in 2005 , lymph & vascular invasion, 12 out of 14. Pos nodes ( my sentinel and axillary nodes were extraencapsulated into surrounding Tissue, her 2 positive, ducts lobesand nipple involvement AND no clear surgical margins after last surgery. I am totally well, living large with much gratitude.

Check out the stage III thread. There are quite s few of us long timer gals there

Linda K dx'd May 05 Stage IIIC erpr-, her pos, 12 pos nodes
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Jul 30, 2019 11:24AM IAmElaine wrote:

I am over 15 years out and had 11+ nodes with extracapsular extension. I also had TAC chemo and rads and have been on an anti-hormonal for 14 years. Because of the type of breast cancer I had, I chose to have a bilateral mastectomy. Still have my ovaries and other girlie parts.

Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes
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Jul 30, 2019 09:19PM Francesca30 wrote:

@lkc @IamElaine thank you ladies so so much

Dx 3/14/2019, IDC, Left, 2cm, Stage IIIA, Grade 2, 13/20 nodes, ER+/PR+, HER2- Surgery 3/14/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/4/2019 TAC Radiation Therapy 8/14/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/17/2019 Prophylactic ovary removal Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery 7/31/2020 Reconstruction (left): Silicone implant
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Jul 31, 2019 01:59PM - edited Aug 1, 2019 08:22AM by YATCOMW

Mine was very similar to yours.....except at least 17 nodes positive and some other bad stuff.......but this past May I hit 15 years. It's all doable.... a lot of many nodes positive success stories here. Hang in there.....it gets better with time. Really.


Jacqueline

Dx 5/2004, ILC/IDC, 6cm+, Stage IIIC, Grade 3, 17/24 nodes, ER+/PR+, HER2-
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Jul 31, 2019 05:10PM Francesca30 wrote:

thank you Jacqueline! What an inspiration. Looking forward to 15 years too and beyond

Dx 3/14/2019, IDC, Left, 2cm, Stage IIIA, Grade 2, 13/20 nodes, ER+/PR+, HER2- Surgery 3/14/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/4/2019 TAC Radiation Therapy 8/14/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/17/2019 Prophylactic ovary removal Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery 7/31/2020 Reconstruction (left): Silicone implant
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Aug 8, 2019 05:21PM - edited Jul 26, 2020 06:31PM by TectonicShift

This Post was deleted by TectonicShift.
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Aug 8, 2019 06:24PM fredntan wrote:

I am hormone positive. started out with 13 positive nodes in 2011. advanced in 2013 to stage 4

MBC bone mets since 2013 Dx 8/3/2011, IDC, 2cm, Stage IIIA, Grade 2, 13/17 nodes, ER+/PR+, HER2- Surgery 9/9/2011 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 3/29/2012 Breast, Lymph nodes Surgery 10/8/2012 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 4/3/2013 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Dx 10/2013, Stage IV, mets Chemotherapy 11/20/2013 Abraxane (albumin-bound or nab-paclitaxel), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Hormonal Therapy
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Aug 14, 2019 09:03AM - edited Aug 14, 2019 09:05AM by IAmElaine

I am 15 years out and was er+ with 11 positive nodes, most with extracapusular extension. I had a bit of skin involvement as well.

EDIT: Oops. I had already posted to this thread. Oh well. It's a good way to bump it!

Diagnosed March 1, 2004 with stage 3C ILC, 7cm tumor with 11+ nodes
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Sep 7, 2019 07:31PM 7of9 wrote:

7 1/2 yrs out. Recurrence at just under 3. 10/14 extra extensive. NED on arimidex after hysterectomy. Plan plan planning Disney vacatioms and anyplace warmer than Ohio. Never did get off sleep meds and attivan 2-3 x a week. Stay busy and exercise. Remember Ferris Bueller..." Life moves pretty fast...if your not careful, you could miss it". Boy don't we know that! Make the most of every day. So many people walk around like zombies and never grasp that concept.

If you're going through hell, keep on going. You might get out before the devil even knows you're there. Dx 1/18/2012, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 6/1/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/1/2012 Reconstruction (left); Reconstruction (right) Dx 12/23/2015, IDC, Left, 2cm, Grade 2, 10/14 nodes, ER+/PR+, HER2- Surgery 1/19/2016 Lymph node removal: Left, Underarm/Axillary Surgery 1/19/2016 Prophylactic ovary removal Radiation Therapy 2/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy 4/1/2016 Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Sep 8, 2019 03:17AM Francesca30 wrote:

thank you so much 7of9, IamElaine, Fredntan, and textonicshift for the constant reminder that there is hope. Thank you for the positive motivation and reminding me to keep busy instead of constantly thinking about this horrible disease

Dx 3/14/2019, IDC, Left, 2cm, Stage IIIA, Grade 2, 13/20 nodes, ER+/PR+, HER2- Surgery 3/14/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/4/2019 TAC Radiation Therapy 8/14/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/17/2019 Prophylactic ovary removal Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery 7/31/2020 Reconstruction (left): Silicone implant
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Oct 2, 2019 10:30PM goutlaw wrote:

Are you on any hormonal Therapy?

Dx 4/2013, IDC, 6cm+, Stage IIIA, Grade 2, 3/19 nodes, mets, ER+/PR+, HER2+ Chemotherapy 6/4/2013 AC + T (Taxol) Surgery 12/19/2013 Mastectomy: Left Targeted Therapy Herceptin (trastuzumab)
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Oct 3, 2019 05:30AM Spookiesmom wrote:

11nodes removed the first time, 7 removed 7 years later on the other side. Went yesterday with a friend while she looked for a new dog. Do I think about it every day? No. I’m too busy having fun. Currently on ibrance/letrozole and NED. It does get better with time. oh, she did find a new fur baby.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Oct 5, 2019 12:54AM Francesca30 wrote:

@spookiesmom so glad you’re doing well. Thanks for replying and giving me hope

Dx 3/14/2019, IDC, Left, 2cm, Stage IIIA, Grade 2, 13/20 nodes, ER+/PR+, HER2- Surgery 3/14/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/4/2019 TAC Radiation Therapy 8/14/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/17/2019 Prophylactic ovary removal Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery 7/31/2020 Reconstruction (left): Silicone implant
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Oct 10, 2019 05:58PM pupfoster1 wrote:

Hey Darlin,

Just saw your PM today. 13 out of 15 positive nodes with extracapular extension. UGHHHH. Long road, but being diagnosed September of 2009 I AM STILL HERE. Hang in there Francesca. PM me if I can help. I'll try to check my inbox more often.

Sharon

Sharon Dx 9/17/2009, IDC, 6cm+, Stage IIIC, Grade 2, 13/15 nodes, ER+/PR+, HER2-
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Oct 17, 2019 11:08AM Beatthis wrote:

Francesca30 - Im so glad you have asked this question as i like you have been diagnosed with multiple nodes! My diagnosis is 2cm idc with vascular invasion and 10 out of 30 positive nodes her2 negative er8, pr8, ive had a left mastectomy, chemo docetaxel and cant recall the other one, with radiotherapy and now letrozole and bisphosphonates infusions and on the add aspirin trial! i am just coming up to 2 years following diagnosis in Nov 17! It has given me great comfort reading other ladies out there surviving well with a similar diagnosis as you say it is so scary for us newbies and these ladies help to focus on living life instead of constantly worring about a recurrence! If there are any more ladies out there with a similar diagnosis i would love to hear from you, it really does give a lift and hope to us, thanks Debbie

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Nov 5, 2019 02:29PM Francesca30 wrote:

@goutlaw yes, currently on tamoxifen. will be having total hysterectomy soon and will shift to femar

Dx 3/14/2019, IDC, Left, 2cm, Stage IIIA, Grade 2, 13/20 nodes, ER+/PR+, HER2- Surgery 3/14/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/4/2019 TAC Radiation Therapy 8/14/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/17/2019 Prophylactic ovary removal Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery 7/31/2020 Reconstruction (left): Silicone implant
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Nov 5, 2019 02:32PM Francesca30 wrote:

thank you so much @pupfoster and @beatthis ! i just had my pet/ct scan yesterday , all clear! thank god!!

Dx 3/14/2019, IDC, Left, 2cm, Stage IIIA, Grade 2, 13/20 nodes, ER+/PR+, HER2- Surgery 3/14/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 4/4/2019 TAC Radiation Therapy 8/14/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/17/2019 Prophylactic ovary removal Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery 7/31/2020 Reconstruction (left): Silicone implant
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Nov 22, 2019 02:03PM 7of9 wrote:

Just shy of 4 yrs from recurrence 10 out of 14 nodes. 2cm extra capsular whatever... mild lymphedema showed up this year and more new aches and pains which always scare the sh out of me..but excercise and vacations from desk job helps. Scary shit...but keep going forward ladies. Such happiness awaits!

If you're going through hell, keep on going. You might get out before the devil even knows you're there. Dx 1/18/2012, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 6/1/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/1/2012 Reconstruction (left); Reconstruction (right) Dx 12/23/2015, IDC, Left, 2cm, Grade 2, 10/14 nodes, ER+/PR+, HER2- Surgery 1/19/2016 Lymph node removal: Left, Underarm/Axillary Surgery 1/19/2016 Prophylactic ovary removal Radiation Therapy 2/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy 4/1/2016 Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Nov 22, 2019 05:21PM SSInUK wrote:

Good to see you keepin’ on trucking 7of9. We both crawled through the terror of recurrence and here we both are - today at least. I’ll take it x

Dx 11/2014, IDC, Left, 5cm, Stage IIIA, Grade 2, 5/17 nodes, ER+/PR+, HER2+ Dx 3/30/2016, IDC, Left, Stage IIIC, 2/2 nodes, ER+/PR+, HER2- Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lymph node removal: Underarm/Axillary Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Left Chemotherapy AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Surgery Reconstruction (left): DIEP flap Hormonal Therapy Femara (letrozole) Radiation Therapy External: Lymph nodes
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Aug 19, 2021 08:30PM beth1965 wrote:

I had 17 positive nodes 2012

Still here ❤️🥰

Looking for hope Dx 1/18/2012, ILC, Left, 6cm+, Stage IIIC, Grade 3, 17/29 nodes, ER+/PR-, HER2- Surgery 2/13/2012 Mastectomy: Left, Right Chemotherapy 3/5/2012 AC + T (Taxol) Radiation Therapy 8/12/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/18/2012 Arimidex (anastrozole) Dx 8/8/2021, ILC, Stage IV, metastasized to bone Hormonal Therapy 8/19/2021 Faslodex (fulvestrant) Targeted Therapy 10/14/2021 Kisqali Targeted Therapy

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