Join Us

We are 224,476 members in 83 forums discussing 163,572 topics.

Help with Abbreviations

Topic: High number of positive lymph nodes

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Sep 13, 2020 07:39AM

Ausykaren wrote:

Can lymph node survivors please chime in here. I had 11 positive nodes,some broken open with cancer and grade 3. After 3.5 years this still really worries me every day. Would love to hear stories of long term survival.


Dx 2/2017, IDC, Right, 4cm, Stage IIIC, Grade 3, 11/19 nodes, ER+/PR+, HER2-
Log in to post a reply

Page 1 of 2 (39 results)

Posts 1 - 30 (39 total)

Log in to post a reply

Sep 13, 2020 07:50AM Spookiesmom wrote:

The first time around I had 11 positive nodes. Was stage 3, grade 3. Went a bit over 7 years NED. Found a lump on the other side, 7 positive nodes out. That made me stage 4. Currently on Ibrance/letrozole, doing well. NED. It’s not an automatic death sentence, many of us have progressed and doing well.

Watch for unusual anything, get checked if you find.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
Log in to post a reply

Sep 13, 2020 07:59AM Ausykaren wrote:

Thanks spookiesmom, were you still taking hormone blockers when you recurred?


Dx 2/2017, IDC, Right, 4cm, Stage IIIC, Grade 3, 11/19 nodes, ER+/PR+, HER2-
Log in to post a reply

Sep 13, 2020 08:29AM Still-me40 wrote:

I had 3/16 positive nodes and the tumor had created its own blood supply so.....not heaps of nodes but it was definitely travelling

I was diagnosed 2018 so I'm not too far out but am hoping for many more years cancer free. I used to think about recurrence a lot but now I think about all the things I want to do. I don't want to waste any time wondering if/when it comes back, I want to live well x


Log in to post a reply

Sep 13, 2020 10:04AM sbelizabeth wrote:

This month, September, makes it nine years since I found the signs of inflammatory breast cancer. The sentinel node was so chock-full of cancer it couldn't even take up any of the dye or radioactive tracer. Today, I have to check my signature line to even remember how many nodes were positive!

It takes time to recover from the whirlwind of treatment, and even more time for the fear and sense of doom to fade into normalcy.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIB, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Log in to post a reply

Sep 13, 2020 11:37AM Spookiesmom wrote:

Ausy

Sent a pm.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
Log in to post a reply

Sep 14, 2020 01:08AM sugarplum wrote:

Hi Karen - you know me! - just chiming in here to give others hope as well. 10 positive nodes, extracapsular extension and dermal involvement - but my surgeon did a great job cleaning up the mess. Looking back now from the vantage point of 14 years, I still don't ever want to get cocky - but I've obviously been fortunate to squeeze so many more years of life out of such a dismal diagnosis.

Hugs & hope to us all - Julie

Keep calm and carry on.... Dx 4/28/2006, IDC, Right, Stage IIIC, Grade 3, 10/20 nodes, ER+/PR+, HER2- (FISH) Surgery 6/6/2006 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/30/2006 Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 12/17/2006 Arimidex (anastrozole) Radiation Therapy 1/10/2007 Whole-breast: Breast
Log in to post a reply

Sep 14, 2020 11:38AM - edited Jul 22, 2021 09:20PM by TectonicShift

This Post was deleted by TectonicShift.
Log in to post a reply

Sep 14, 2020 01:53PM Lucca06 wrote:

I had 9 positive out of 18 after chemo. A nurse told me it was probably a lot more but it showed the chemo has worked as it was only 9 now?!! Apparently she thought she was being reassuring, clearly I freaked out! That was 9 years ago it will be 10 years since diagnosis next March for me. The only way I could cope with the fear was to just focus on each day as it came and went and tell myself that I was healthy today. No fear really now but I still do that everyday. Take care it gets easier.

Dx 3/23/2011, ILC, Right, 6cm+, Stage IIIB, Grade 2, 9/18 nodes, ER+/PR+, HER2- Chemotherapy 4/2/2011 Surgery 8/22/2011 Lymph node removal: Right; Mastectomy: Right; Prophylactic ovary removal; Reconstruction (right): Fat grafting, SGAP flap/hip flap
Log in to post a reply

Sep 14, 2020 03:15PM LillyIsHere wrote:

Lucca, have you been using anti-hormonal meds?

Spookiesmom, I have the same question if the recurrence have happen while in anti-hormonal meds.

Thank you for sharing your stories. Gives the rest of us hope :)

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/29/2019 Femara (letrozole) Targeted Therapy
Log in to post a reply

Sep 14, 2020 03:28PM Spookiesmom wrote:

I did 4 years on aramidex, severe joint pain made me quit. Did about 7 months on tamoxifen, same severe pain. Had about 2 years NED. So no, didn’t happen while taking it.

Found a lump on the other side last year in the nodes. 7 out. Currently on letrozole and ibrance. I am tolerating the letrozole much better, so far. MO told me I could stop ibrance, stay on letrozole. He said I could reoccur on this.

I take my pills, and move on with my day. I don’t worry about what if’s. I refuse to worry about it, or let cancer rob me of enjoying my life.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
Log in to post a reply

Sep 14, 2020 05:34PM Lucca06 wrote:

Lilywashere - I took Tamoxifen to start with then had a oophrectomy 18 months after diagnosis due to a scare. Since then I have taken Exemestane (Aromasin)

The stories here gave me hope at the darkest of times, so glad to be able to do that for others.

Dx 3/23/2011, ILC, Right, 6cm+, Stage IIIB, Grade 2, 9/18 nodes, ER+/PR+, HER2- Chemotherapy 4/2/2011 Surgery 8/22/2011 Lymph node removal: Right; Mastectomy: Right; Prophylactic ovary removal; Reconstruction (right): Fat grafting, SGAP flap/hip flap
Log in to post a reply

Sep 29, 2020 07:57PM - edited Sep 29, 2020 07:58PM by YATCOMW

At least 17 positive nodes .....cancer spilling out of the nodes.....

Out almost 16 1/2 years now......life is good.;)))))))


Jacqueline

Dx 5/2004, ILC/IDC, 6cm+, Stage IIIC, Grade 3, 17/24 nodes, ER+/PR+, HER2-
Log in to post a reply

Oct 30, 2020 04:14PM faithfulheart wrote:

Hi there !!! How is everyone it’s been so long! Just passed 11 years in sept ... big 5cm tumor !! 10 positive nodes out of 17!! Was on tamoxifen for 8 and a half years ! Took a six month break .. went on Femara .. been off a couple months now of the femara it was making me depressed .... anyone want to advise me to stay on it!! I love you Karen !!! It will get easier !! We have great treatments way more then we had when I was dx.. there is lots of hope !! We have to live !! Fear is such a robber of life !! You are all my hero’s !! This journey is hard !! Some days too hard and others not at all...

God bless all the beautiful warriors !!!!

Love to you all...

Stay strong!!!?

Log in to post a reply

Oct 30, 2020 05:28PM LillyIsHere wrote:

Thank you so much for sharing your experiences.

To many other happy years to come.

wine-glass-cheers - The Three Tomatoes

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/29/2019 Femara (letrozole) Targeted Therapy
Log in to post a reply

Oct 30, 2020 09:52PM - edited Oct 30, 2020 09:52PM by Peregrinelady

Faithful, magnesium and vit D helped me combat depression caused by these drugs. I wish you many more healthyyears!

Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Surgery 5/18/2015 Mastectomy: Left Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/19/2016 Mastectomy: Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 8/1/2016 Arimidex (anastrozole) Hormonal Therapy 7/20/2020 Femara (letrozole) Hormonal Therapy 3/4/2021 Arimidex (anastrozole)
Log in to post a reply

Nov 3, 2020 09:53PM karen1956 wrote:

8/12 nodes during surgery but I had nodes tested during my second biopsy. I'm 14 years 9 months since Dx. Quit AI's in 2010 after enduring side effects for 3 1/2 years. As of my 6 month check last month I"m still dancing with NED.

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
Log in to post a reply

Nov 9, 2020 01:51AM jennaru123 wrote:

Thank you all for posting your positive stories. I'm a reader who needs them! I just finished radiation (after chemo, which happened after surgery) and the fears of recurrence is high. I had 43/43 nodes. Yup, 43/43. The drop down list when picking the number of nodes on this site doesn't even go that high (only goes to 40). I was diagnosed in my third trimester of pregnancy so we had to wait until it was safe to induce then do surgery and chemo. My oncologist says I have around a 20% lifetime risk of recurrence after surgery, chemo and hormone therapy (goserelin and letrozole) which should be lowered since I just found out my benefits cover ribociclib which I'll be starting this week along with letrozole. I have a 7 month old girl and a 2.5 year old girl. I need to live another few decades for them!

ILC Dx 3/3/2020, ILC, Right, 6cm+, Stage IIIC, Grade 3, 40/40 nodes, ER+/PR+, HER2- (IHC)
Log in to post a reply

Nov 10, 2020 05:04PM lkc wrote:

Hi Jennaru,

I am another stage IIICer, now in my 16 year and well.

the amount of nodes we all have varies from person to person. Over 40 is alot to have removed, but your surgeon did a great job in getting them all out.

there have been so many advances in BC treatment over these years especially with immunotherapy resulting in dramatically reduced recurrence rates.

Much much reason to have lots of hope. Wishing you well.



Linda K dx'd May 05 Stage IIIC erpr-, her pos, 12 pos nodes
Log in to post a reply

Jan 9, 2021 07:22PM 7of9 wrote:

I am 9 yrs this spring. First time 0/2 nodes, 3 yrs later 10/14. Not sure how I missed this thread earlier. Recurred on Tamoxifen then had complete hysterectomy, rads, chemo, Arimidex ever since. Zometa 2x yr for 5 yrs. I swear its back but nothing conclusive so still rollin....just keep rolling. Back aches, lymphedema, (probably) stress eye strain, tinnitus from coming off of Attivan and heaven knows what. Working on the hiking merit badge with my 11 yr old and husband. He was 2 when diagnosed ( kid, not husband 😒 lol). We did the 5 mile one a few weeks ago, today another 4.2 mile hike to prep for our 10 miler next week! 2 more 10s, a 15 and a 20. Some women on here run marathons. Others count down days til son/ daughter goes to kindergarten, middle school, graduates...it doesn't matter....just set goals. Conquer. Repeat!

If you're going through hell, keep on going. You might get out before the devil even knows you're there. Dx 1/18/2012, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 6/1/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/1/2012 Reconstruction (left); Reconstruction (right) Dx 12/23/2015, IDC, Left, 2cm, Grade 2, 10/14 nodes, ER+/PR+, HER2- Surgery 1/19/2016 Lymph node removal: Left, Underarm/Axillary Surgery 1/19/2016 Prophylactic ovary removal Radiation Therapy 2/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy 4/1/2016 Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Jan 11, 2021 06:17PM AB45 wrote:

Hi All

I just received my pathology for my lupectomy. I thought i was a stage 1 and when pathology came back from.surgery, I am now a stage 111 due to the lymph nodes being positive. I am scared to death, especially about chemo. Need some encouragement from any stage 3 survivors

Thanks

Log in to post a reply

Jan 12, 2021 02:45PM - edited Jul 22, 2021 09:10PM by TectonicShift

This Post was deleted by TectonicShift.
Log in to post a reply

Jan 12, 2021 03:18PM AB45 wrote:

Thank you,I am struggling so much and can't seem to move today. I am going to try. Did they order a CT scan for you after surgery to determine treatment plan? Had the lymph nodes metastasized anywhere else or did the node trap it from.moving to the bone? Sorry if too personal, just wondering and scared

Log in to post a reply

Jan 12, 2021 07:09PM - edited Jul 22, 2021 09:08PM by TectonicShift

This Post was deleted by TectonicShift.
Log in to post a reply

Jan 14, 2021 12:15PM AB45 wrote:

Thank you so much! With encouraging stories and faith I am learning stage 3 does not mean death. Stage 1 does not mean it will not reoccur. I read all the stats and realized that every person is different but one thing is the same, we are all struggling.

Log in to post a reply

Jan 14, 2021 02:50PM - edited Jul 22, 2021 09:03PM by TectonicShift

This Post was deleted by TectonicShift.
Log in to post a reply

Jan 14, 2021 06:10PM AB45 wrote:

I am awaiting chemo apt but was wondering what type of chemo was suggested for hormone positive cancer stage 111 IDC. I saw somewhere someone said chemo injections instead of IV, is that a thing? Totally new to the chemo world.

Thanks in advance

Log in to post a reply

Jan 14, 2021 06:27PM moth wrote:

AB45, the only common cancer injections are hormone treatments.

Chemo is intravenous (IV). It is given either by putting an IV in your arm/hand or through a port, which is an access device surgically implanted on your chest, below the clavicle. Chemo has to go in the vein because it will burn other tissues. In a vein the blood dilutes and spreads it quickly throughout the body.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Jan 14, 2021 07:44PM AB45 wrote:

Thank you! I am assuming most people get a port? Do they out you to sleep for that?

Log in to post a reply

Jan 14, 2021 07:58PM moth wrote:

I wouldn't say most. It really seems to depend on the region/healthcare system/MO and the patient. I didn't have one in 2018 and was 6 months into treatment in 2020 before I got mine. At my treatment center most people do not have a port. They inserted mine under conscious sedation.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

May 28, 2021 01:58AM jduvallsmith wrote:

I had at least 9 positive lymph nodes and some were clumped together to 3 cm. I am now 11 years out (!) and have had no problems... I believe in the concept of not worrying unless I develop symptoms of recurrance.

Page 1 of 2 (39 results)