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Topic: pain and other sensations near the mx scar

Forum: Stage III Breast Cancer — You are not alone. Meet others who have Stage III breast cancer.

Posted on: Nov 21, 2020 01:15PM - edited Nov 22, 2020 03:59PM by TectonicShift

TectonicShift wrote:

I'm nine years out from mx. I have little twinges and vague pain - I'd call it tenderness - in the area of my mastectomy scar. Sometimes I think it's nerves regenerating or scar tissue just being scar tissue. Sometimes I have vague pains in what feels like the ribs or the muscles or cartilage. There is an area on my rib that has some pain when I press on it. Not terrible but it does feel sore.

Does anyone else here have aches and pains, burnings and twitches and twinges and tingling, feelings of tightness, etc, in the chest area at or near the scar or in the ribs undneath so far out from surgery and rads?

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Nov 21, 2020 03:52PM MinusTwo wrote:

Tectonic - I answered your same post on the other thread - PMPS

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 21, 2020 04:07PM TectonicShift wrote:

Oh thanks, MT. It's good?? to hear others with similar diagnoses and timelines have some problems too. (Not good but you know what I mean.) Happy

I'm especially interested in people farther out from surgery like you and others on Stage 3 board. Hence the double post here and on the Pain board.

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Nov 21, 2020 08:58PM Ausykaren wrote:

Hi Techtonicshift,

I know I’m not as far out as you but I have rib pain on my cancer side. I was sent for X-rays which came back fine and when I told my oncologist she said it is common and is from the radiation. I don’t poke my ribs anymore cause it makes it worse and just makes me worry.

Dx 2/2017, IDC, Right, 4cm, Stage IIIC, Grade 3, 11/19 nodes, ER+/PR+, HER2-
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Nov 21, 2020 09:27PM MinusTwo wrote:

OK - I'll copy my other post here too.

7 years out - I still have twinges & some pain mostly on the side & arm when I went back for ALND. And yes - radiation problems are forever. I try to stretch every day so the muscles don't pull back & stiffen up. I was just thinking the other day - since it's constant and not debilitating, I'm brought up short every once in awhile trying to remember what it was like before. Also I have breast & truncal lymphadema so I always have to watch that. It makes it impossible to forget BC.

Like Magiclight - I also have neuropathy in my feet that can travel up my calves sometimes and never regained full feeling in my fingers. Fortunately there isn't much pain, but it's like having dead blocks of ice for feet. I have to watch where I'm walking so I don't stumble or trip.

I guess I just try to ignore random pains - when I'm not pissed about something I can no longer accomplish.
2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 22, 2020 01:58PM sbelizabeth wrote:

It's not constant by any means, but the tissues in my chest, back, and armpit, that were unlucky enough to be in the radiation field in 2012, are very prone to cramp. All I have to do is move a certain way, reach a certain direction with that arm, and boom, agonizing cramp. It's not worrisome, just annoying.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Nov 22, 2020 05:44PM trinigirl50 wrote:

Hi Tetonicshift

I have exactly the same type of pains that you describe. I have a particularly sore spot on my ribcage above my implant. Its been 5 years. I attribute it to radiation.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/14/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Nov 23, 2020 01:00AM - edited Nov 23, 2020 01:03AM by Newnorm

Hi TechtonicShift

I'm not as far out from surgery as you are but I do have tingling and some times sharp twitches that are painful. These pains happen about every 3 months or so. I've also had two episodes of Costochondritis on my cancer side, which was really painful. Like others here I do try and stretch and rub to loosen the tightness since I never had reconstruction. As I say, BC is the gift that keeps on giving! If it's really worrying you, and lingers around or gets worse, you could always get it checked. During my last chest ultrasound they told me they can check for bone irregularities to rule out mets. Good luck.

Dx 12/23/2016, IDC, Left, 6cm+, Stage IIIB, Grade 2, 6/17 nodes, ER+/PR+, HER2- Chemotherapy 1/6/2017 AC + T (Taxol) Hormonal Therapy 7/27/2017 Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/28/2017 Lymph node removal: Left; Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Nov 23, 2020 08:08PM - edited Nov 23, 2020 08:41PM by JMouse

Hi, I'm only two years out from my mastectomy (no reconstruction), but you've perfectly described my symptoms, too. I have an achy spot near my drain scars I'm particularly concerned about. My oncologist responded to my concerns with: ribs just can be tender. My surgeon said fat deposits can become sore. I assumed she meant left-over tissue from surgery. (I had hoped by this point I'd look sleek and smooth like a seal, ;) but alas no.) Both of these conversations were frustrating.

I understand your concerns. It's nice to see you're 9 years out. :D I wish you many years to come. Please let us know how you do.

Multiple tumors with lymphovascular invasion. Dx 9/18/2018, IDC, Right, 3cm, Stage IIIC, Grade 3, 16/18 nodes, ER+/PR+, HER2- (FISH)
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Dec 9, 2020 10:57AM fredntan wrote:


I have had constant post mastectomy pain.

It's in my armpit. It's just constant pulling dull ache in that area. I had a modified radical.

I let someone work on it last year. They made the pain worse.

I dont think my surgeon handled my severed nerves very well. The first year was horribly painful. She was from Sloane Kettering too.

MBC bone mets, afinitor,aromasin,xgeva Dx 8/3/2011, IDC, 2cm, Stage IIIA, Grade 2, 13/17 nodes, ER+/PR+, HER2- Surgery 9/9/2011 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 3/29/2012 Breast, Lymph nodes Surgery 10/8/2012 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 4/3/2013 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Dx 10/2013, Stage IV, mets Chemotherapy 11/20/2013 Abraxane (albumin-bound or nab-paclitaxel), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Hormonal Therapy
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Dec 13, 2020 02:35PM Scottie719 wrote:

Finding this thread today was such a relief - Thanks, all! I'm 3.5 years post MX, and have had occasional bouts of cramping on a rib near a drain scar, but last night, out of the blue, had a series [maybe 12 - 15] of REALLY sharp needle-like stabs at the site that lasted about a half-second each, over a three hour or so duration. Knock wood, but I'm just a bit tender today, no pain. I'll watch the site for signs of shingles over the next few days [had that delightful experience pre-BC] but for now am going to chalk it up to rads and/or surgery nerve damage. As with so many aspects of post-TX, it's good to know others have had a similar experience.

Dx 1/6/2017, IDC, Right, 0/12 nodes, ER+/PR-, HER2+ Chemotherapy 1/23/2017 AC + T (Taxol) Targeted Therapy 3/21/2017 Herceptin (trastuzumab) Targeted Therapy 3/21/2017 Perjeta (pertuzumab) Surgery 7/17/2017 Mastectomy: Right Radiation Therapy 9/6/2017 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Dec 25, 2020 04:27PM - edited Dec 25, 2020 04:29PM by Lotus888

This Post was deleted by Lotus888.
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Jan 3, 2021 10:09PM Shellsatthebeach wrote:

Glad I read this post today. Makes me feel less nervous seeing we are all dealing with the same issues. My scar area has been sore lately. I figured it comes with the territory. I hate that needle feeling that comes every now and then. Ribs have been sore on and off since chemo and rads. I also get that cramp.

Dx 3/2017, IDC, Left, 3cm, Stage IIIB, Grade 2, ER+, HER2- Surgery 8/28/2017 Lymph node removal; Mastectomy: Left Dx 9/15/2017, DCIS/IDC, Left, Stage IIIB, Grade 3, 6/10 nodes, ER+/PR+, HER2+ Targeted Therapy 9/24/2017 Herceptin (trastuzumab) Radiation Therapy 10/17/2017 Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxotere) Targeted Therapy Perjeta (pertuzumab)
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Jan 4, 2021 12:27AM tangandchris wrote:


I have twinges, aches, and even occasional feelings of sore breasts. The feeling that would come right before my's very odd.

The other thing that happens is if I bend down or reach in a weird direction the scar tissue on my chest feels like it moves. This can be quite painful!

My reconstruction with TE's failed...had them removed because of infection. I am still unsure of if or when I will try again. Dx 10/24/2013, IDC, 2cm, Stage IIIA, Grade 2, 6/25 nodes, ER+/PR+, HER2- Surgery 11/22/2013 Lymph node removal: Left; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/12/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/2020, Stage IV, metastasized to other, ER+/PR-, HER2-

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