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Mar 13, 2013 11:22AM
Thanks Beesie for your response. Appreciate you repeating your answer again. ( I know you mentioned all these stats in one of your other posts to help people like us, thanks once again)
Update on Biopsies:
- Let me start with a scenario: There was one doctor (very nice) who performed my Ultrasound, Mammogram and biopsy but when I went for my MRI she was not available to read my report (as she was on vacation) so she gave report to some other doctor to read who was working remotely at that time. That other doctor suggested that "Mildly suspicious non-mass-like clumped area in left breast other that what I already have which is biopsy proven) and Moderately suspicious non-mass-like clumpped area in right breast." This was at the extreme end of both breasts (meaning right most for right breast and left most for left breast)
- When surgeon read this she ordered these 2 biopsis.
- When we actually went for biopsis the doctor who performed Ultrasound, Mammo and Biopsy was available and fortunately she was assigned to perform this biopsis (She looked like she was not in agreement with the doc who read my MRI). She clearly mentioned that in younger woman while performing MRI, MRI machine itself has some clips to hold breast in certain position and because those clips are tight sometime that area does not get blood and appear as suspicious area in final MRI ans she said this is very much possible in younger woman and with dense breast. She said if I see those are myself and only if I am satisfied I will perform biopsis otherwise it is not at all required. She also mentioned that there is no corresponding calcification in mammogram.
- Finally she updated me that in the left breast that area does not even appear so she did not perform left biopsy (it was anyways mildly suspicious) and because the other doctor was moderately suspicious about right breast I took biopsy for that breast but it is very well possible it comes as benign. She added if it was me and patient was not going for surgery (in my case I am for that 4 CM DCIS area) I would ask patient a 6 month follow up for something like this.
- So over all we got a relief with doctors favoring words. And she works closely with breast surgon.
About stanford status:
- Doc definitely said that there is no Chemo for pure DCIS but doc added "very likely they will find some invasive part because of my grade 3, age and tumor size." She also talked about Chemo because my receptors are -VE and tamoxifen is not going to work on me.
- In a way doc was very open and wanted to let us know that because I am young and looking at DCIS properties she wanted some aggressive treatment. Again doc did not jump on any treatment plan before biopsy results are out.
- We already saw a fertility specialist yest as we were planning a baby later this year ( and unfortunately this came along). He did some basic test with ultrasound and said I am healthy for baby and there should not be any problem unless you are getting Chemo.
- After my biopsy results are out we will consult Surgeon (my initial doc) and see what doc has to say about treatment and if required we will have second opinion if there is too much of difference. Because nothing is certain until I have surgery and have pathology report.
- Considering my breast are too dense and larger size even with 4 CM of tumor she said lumpectomy will be possible. That was even mentioned by Stanford DOC but very cautiously.
- Only one other biopsy is performed in right breast (result awaited). Left breast has already 4 CM DCIS. After results are out we will consult surgeon and will perform sergery. as of now with just one biopsy my ER, PR and HER2/neu are -VE
- While browsing, I could not find lot of DCIS cases with >= 4 CM of area (althouhg you ladies suggected me not to suft I could not stop myseft). Is is not so common? I know beacon800 mentioned she had seen someone at Stanford with big area and just DCIS and also Beesie you had large DCIS.
- Doc did not perform another biopsy for left breast (she looked very confident) and said not required. Doc did check the area in MRI and did not feel so. Is it OK ? I really trust this doctor. Its the same who first found about my DCIS and the same who did my first biopsy without even authorization because things looked suspicious.