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Aug 6, 2011 08:01AM
Aug 6, 2011 08:09AM
Hi Terri. So sorry you are feeling frustrated and devastated. As others have pointed out, treating residual DCIS is not an emergency so you have time to gather all the opinions you need to feel comfortable with your choices. I chose a BMX after one failed lumpectomy, but I didn't have straight DCIS: I had a very early stage one cancer that was ER-/PR-. Also, because I'm petite, there was not much left for them to cut out. So, I have two questions for you: 1) How much breast tissue do you have available for re-excision? (Unfortunately, size does matter in this case) and 2) Are you ER/PR positive or negative? (You might make different treatment choices if you aren't a candidate for Tamoxifen to help prevent a recurrence.)
Finally, just a word of encouragement: I hope that a successful re-excision is in your future, since it's so clearly what you want, but I just want to say that, should the worst happen, there is life after mastectomy. I remember when I first found out I might need one, I cried and cried. I looked at the photos, read about it, and cried some more. I couldn't imagine having to walk this road. Now that I'm going through it, it's honestly not so bad. I sometimes mourn the loss and miss the sensation, but then my new breasts are perky and cute; my husband likes them and they turn heads like the old ones never did. Best of all, I didn't have to do radiation and I have more peace-of-mind knowing that this is less likely to return.
Good luck with your treatment. Let us know how it works out for you. -Jade
P.S. If you do ultimately need a mastectomy, this board has a private picture forum where women share their reconstruction photos and stories. Send a private message to timtam if you want to access the forum. I promise you, nothing else will help you feel more OK about mastectomy than "meeting" many great women with gorgeous results!
Dx 3/1/11: 3+ cm high-grade DCIS + T1mic (early stage 1 IBC). ER-/PR- HER2 unknown, 0/4 nodes. Lumpectomy w/ failed margins: 3/23/11, BMX w/ TEs: 5/19/11 (left NSM) Exchange: 8/8/11
3/5/2011, IDC, <1cm, Stage IA, 0/4 nodes, ER-/PR-