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Jun 7, 2016 03:20PM
Kroge6, I'm so sorry that you have gotten this news of affected margins. I also had a BMX at age 37 with saline implant reconstruction (high grade, comedo necrosis, ER+/PR-). It was only about 1.5 cm but deep. I had some issues with my biopsy and my surgeon found some DCIS cells along the biopsy tract and did not get clean margins there at first. He knew this during surgery, so he took more tissue and skin and did get clean margins. The biopsy scar was not taken though.
It is now 8 years later and I have had a recurrence (thankfully DCIS again and not IDC). I found my lump while it was still about 1cm (since it was now so close to the skin), so again I have caught it pretty early. Looking back, I wish I had known to ask more about the margins. Also, they did not take my biopsy scar. I wish they would have. My recurrence is right under my biopsy scar.
Now, I have had a lumpectomy (after a mastectomy - yes, it is a thing), then a re-excision because my margins were not clear (4 focal points). I am now scheduled to have radiation and tamoxifen. The after care was a tough decision for me too. I wanted to still have a recurrence rate of 2% (because I already had the darn BMX's), but doctors think that now that I AM the 2% and now with close margins and multiple focal points that my risk is higher. So surgery alone is probably not a wise decision for me anymore.
BTW, I was tested and do not have BRCA, but my mom did have BC at 49. No other relatives with BC though.
All I can say is that DCIS is tricky. It spreads out and even a cell left behind can grow. You have been strong to make the choices you have made so far. Ask lots of questions and make the right decisions now for your long term health. Also, if you feel you need it, get 2nd opinions. Before I go forward with my treatment, I am getting an e-consult from Mayo. My RO here is setting it up for me. They are going to review all of my pathology and reports.
Diagnosed at 37 and 45 - Oncotype score 22 “Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow.” --Mary Anne Radmacher
2/6/2008, DCIS, Right, 1cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR-
3/16/2008 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant
4/22/2016, DCIS, Right, 1cm, Stage 0, Grade 3, ER+/PR-
5/3/2016 Lumpectomy: Right
5/12/2016 Lumpectomy: Right
6/15/2016, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR-
6/28/2016 Whole-breast: Breast, Lymph nodes, Chest wall
8/25/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
11/9/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)