Mar 30, 2018 12:38AM Marena wrote:
I’m a bit earlier in the process than you -diagnosed on 3/14 following a biopsy, just had breast MRI last week & awaiting my first mtg with BS/team next week on 4/5, but I secured copies of my pathogy & imaging reports and have become a mad researcher, looking into potential tx options while enduring oh so many sleepless nights over the past couple of weeks, preparing for this meeting.
I’m in a high anxiety state, still not wanting to face the reality of having a cancer dx, but alas, I realize I have no choice but to figure out how to face this life changing (however unwanted) event.
In exploring the likely tx options I find myself increasingly filled with dread. With a medium-high grade & a solid shape with evidence of dead cells, my DCIS is considered aggressive. Although no evidence of invasion as of yet, there is risk for sure. I do want to ask about Oncotype genetic test, but guessing lumpectomy, tamoxifen & radiation will most likely be recommended, and I’m not feeling good about any of those options. Lumpectomy alone could be tolerable, although I am small breasted & the malignant area is 3.5cm so could be cosmetically difficult & the concern of recurrence potentially high. Tamoxifen side effects seem too much to me - I’ve had a history of depression and insomnia myself & generally medication averse...the impact of radiation seems intolerable to me as well....
All this being said & not having fully wrapped my head around it all, it almost seems like the “best” option would be MX. I can’t believe I’m even saying that at this juncture, but I keep returning to it in my mind even though it’s the last thing I can imagine going through!
So I get some of where you are coming from & feeling very shakey too!
I know I “should” be grateful that I have a treatable form of BC that was found early, and may be jumping too far ahead of where things are at in my process right now, but treatment options just seem so bleak to me in this moment...
I’ll be interested to hear what you decide as I head into being presented with options and choices myself.