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All TopicsForum: DCIS (Ductal Carcinoma In Situ) → Topic: Searching for recommended specialists in Sarasota FL for DIEP

Topic: Searching for recommended specialists in Sarasota FL for DIEP

Forum: DCIS (Ductal Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for DCIS.

Posted on: May 15, 2018 03:05AM

Sunflowers1234 wrote:

Newly diagnosed DCIS with strong fam history. Looking for best recommendations for surgeons and oncologists in the area.

Dx 5/11/2018, DCIS, Right, Stage 0, Grade 1, ER+/PR+
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May 15, 2018 03:28AM - edited May 15, 2018 04:38PM by SpecialK

I am in Tampa, and if I were in your shoes I would not have DIEP surgery locally - would instead travel to see Dr Klein and Dr Lee in Orlando at UF Health. They have the best rep in this area of FL, and this is a complex surgery that needs docs who are very experienced. There are some members who post here on BCO who have used them for this surgery and they have been happy with their results. I have implant recon but my local plastic surgeon would have sent me to Orlando if I had wanted DIEP.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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May 15, 2018 05:07AM Lula73 wrote:

I went to NOLA from NC. Well worth the trip. TWills here on BCO just had her recon done by the docs in Orlando that were already mentioned. And there is also Dr Marga Massey in Charleston who does superior work.

Here’s a link to a very informative video on the NOLA doc’s page about natural tissue recon. Very informative no matter where you decide to go for the surgery.

www.breastcenter.com


-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/13/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/2/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/1/2017 Prophylactic ovary removal Hormonal Therapy 1/2/2018 Femara (letrozole)
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May 15, 2018 05:34AM bella2013 wrote:

The Breast Cancer Center at M.D. Anderson in Jacksonville is excellent. I love my breast cancer team! I am 11 weeks post op for BMX with DIEP Flap Reconstruction. I am very happy with my results

Diagnosed at 60 years old. Oncotype Score=14. Dx 12/4/2017, IDC, Left, 4cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 1/4/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 2/22/2018 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Arimidex (anastrozole)
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May 16, 2018 08:45AM Sunflowers1234 wrote:

thank you for the info! Glad you are so happy with your team and results.

Dx 5/11/2018, DCIS, Right, Stage 0, Grade 1, ER+/PR+
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May 16, 2018 08:54AM Sunflowers1234 wrote:

thank you! Several family members have had diep done in ny and i think that may be where i will go. All used same surgeon and had fantastic results. How are you feeling? Did you need any radiation or chemo? Did you have mast and recon same day? How was your recovery post op? How long before you could travel back home? Where did you stay after hospital discharge? So many questions...stop me if you need to. Thank you!

Dx 5/11/2018, DCIS, Right, Stage 0, Grade 1, ER+/PR+
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May 16, 2018 08:59AM Sunflowers1234 wrote:

thank you for sharing! After meeting and talking to local docs i would agree not here. Will probably go up to practice in ny where family all had diep done. Daunting but worth it if i need fewer surgeries. Hope you're feeling well

Dx 5/11/2018, DCIS, Right, Stage 0, Grade 1, ER+/PR+
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May 16, 2018 02:01PM Lula73 wrote:

How are you feeling? I’m 1 year and 3 months out from stage 1 and 6 months out from stage 2bandvi feel great. Like my old self.

Did you need any radiation or chemo? No i didn’t. BMX with no positive nodes less than 2cm tumor meant no rads and no chemo. ER+ So i do take an anti-hormonal for 5-10 years.

Did you have mast and recon same day? Yes. I highly recommend it (if it’s an option in your particular case) to lessen the number of surgeries and tax on your body, for keeping your employer happier since you’re not out for 3+ surgeries in a relatively short time span, and for your mental/emotional health.

How was your recovery post op? Textbook. Slept a lot the first 2 weeks but when i was up i was able to be active-went out to eat, watched a Marci grad parade, etc. No major complications.

How long before you could travel back home? NOLA says 10 days minimum in town. Pre-op is day before surgery, you’re in the hospital 4 days including surgery day. Post-op appointment is 6-7 days after surgery and you’re able to travel home that same day if you wish. I chose to pad the trip on the back end out by 4 days just in case there were complications or i didn’t feel up to it. Skycap wheelchair service made the airport a breeze.

Where did you stay after hospital discharge? we rented a condo through Stayalfred for stage 1 and stayed in a hotel the second time that had a separate bedroom from the sitting area and a large bathroom (stayalfred condos were sold out).

Which dr did your family members’ DIEP flap surgeries in NY?

-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/13/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/2/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/1/2017 Prophylactic ovary removal Hormonal Therapy 1/2/2018 Femara (letrozole)
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May 16, 2018 02:19PM dtad wrote:

Sunflowers...I completely agree with your decision to have your surgery in NYC. Where you get treated is a huge portion of this journey. IMO it should be at a major university teaching hospital rather than a local community hospital. Good luck and keep us posted.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 16, 2018 04:07PM Sunflowers1234 wrote:

Sounds like you're doing great! Wonderful news! Any issues with anti hormonal? Five or so members of my family have used Peter Korn for diep and beautiful results. Will you end up removing ovaries or anything more? I definitely hope to do same day all at once. Can't imagine why these aren't the standard vs implants (unless really needed). They can do amazing things with natural tissue and less issues. Skycap definitely sounds helpful :)

Dx 5/11/2018, DCIS, Right, Stage 0, Grade 1, ER+/PR+
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May 16, 2018 04:10PM Sunflowers1234 wrote:

Thanks! Hopefully referrals and insurance and everything will align and it will work out smoothly. The plastics and breast oncology surgeon have done about five members of my family so thankfully that is less stress

Dx 5/11/2018, DCIS, Right, Stage 0, Grade 1, ER+/PR+
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May 16, 2018 05:59PM TWills wrote:

Hi sunflowers1234, I had my DIEP in Orlando like mentioned above by Dr Klein on March 2 so I’m almost 11 weeks out. I love Dr Klein and the hospital he operates out of. He has a fantastic track record and I love my results, I would recommend him all day long. I went for my Stage 2 consult yesterday and he nit picked his work as he was talking to the transcriber taking notes, his confidence is amazing. He knew exactly where we need to go from here and gave me options, i loved that. Good luck in your decision and you have to do what feels rightfor you:)

Dx 11/2016, IDC, Left, 4cm, Stage IIB, Grade 3, 1/14 nodes, ER+/PR+, HER2- Surgery 12/12/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 2/2/2017 AC + T (Taxol) Surgery 7/9/2017 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/30/2017 Whole-breast: Breast, Chest wall Surgery 8/27/2017 Hormonal Therapy 11/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/1/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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May 16, 2018 07:40PM Lula73 wrote:

sunflowers- I did have my ovaries removed during stage 2. They wouldn’t do it during stage1 because it would be ‘too much volume loss at once’. SEs on letrozole have been far fewer and less severe than with tamoxifen. They’re not the standard because: 1) most PSs are not qualified to do them - not many surgeons do the extra training to become a microsurgeon 2) the surgery takes a long time (6-12 hours) and they could’ve done at least 3 implant recons in the same amount of time 3) some feel that it’s not necessary to do a “bigger surgery” when a smaller one with implants will suffice. I’m sure there’s more but those are the first ones that get brought up.


-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/13/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/2/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/1/2017 Prophylactic ovary removal Hormonal Therapy 1/2/2018 Femara (letrozole)
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May 17, 2018 03:42AM Sunflowers1234 wrote:

TWills, that's great! So glad it all went well. Great to know about him. Thank you!

Dx 5/11/2018, DCIS, Right, Stage 0, Grade 1, ER+/PR+
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May 17, 2018 03:46AM Sunflowers1234 wrote:

Lula, yeah hopefully one day it will be more standard to handle in one big surgery. So is letrozole an option instead of tamoxifen?

Dx 5/11/2018, DCIS, Right, Stage 0, Grade 1, ER+/PR+

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