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Apr 14, 2019 08:11AM
I am back on this website after thinking I had aggressively treated my DCIS and it was never going to bother me again… I never even had a tumor, just calcifications that were found on a mammogram… I had a bilateral Mx February 2018 followed by reconstruction. I had totally clear margins and clear lymph nodes, but they did note very small microinvasion in addition to DCIS.
I did not have radiation after this and I chose not to go on tamoxifen due to the increased risk of uterine cancer which also runs in my family. I meditate, do yoga, exercise regularly, eat healthy do all the right things!
In February 2019, I had my yearly check ups and all went well. Literally the next morning I found a very small pea size lump right under my skin...in the same breast I had the cancer in, did an ultrasound and followed up with an excisional biopsy… Everybody thought it was just going to be fat necrosis that formed between my implant and the skin ; however, the pathology showed that it was the DCIS cancer cells once again. Devastating.
I'm trying not to look back and wish that I went on tamoxifen… Not going to waste my energy on that. However I am glad I opted for the bilateral Mx because if I didn't do that I may not have caught this this early… They say with a Mx , if the cancer comes back it goes right to your skin and you find it right away which I did.
So now my decision is do I do radiation ( they are recommending that) and do I go on one of the estrogen blocking pills. I have all of my appointments this Thursday and I'm going to ask about the DCIS oncotype test, but when I asked my doctor last year about that they said it wasn't necessary for me because I only had the DCIS and wasn't considering chemo... but now it sounds like they have a new type of test just for DCIS? It sounds like a few people here did have that test, if so did your insurance pay for it? but I guess logically… The DCIS in my body did come back so I guess my recurrence is 100% and I should just get the radiation...ugh!
Been feeling very defeated this last week since I only found out a week ago… But I'm feeling my fight spirit building and trying to prepare and be ready to deal with any treatment that I decide to do. Cancer sucks. And I have to keep saying my mantra that I said last year… "Cancer has invaded my body but it will never invade my soul"
Never be ashamed of a scar. It simply means you were stronger than whatever tried to hurt you.
12/20/2017, DCIS, Left, <1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2-
1/16/2018 Lumpectomy: Left
2/27/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
5/20/2019 Whole-breast: Breast