Jan 24, 2019 02:23PM Polly413 wrote:
You don't say how old you are but I had DCIS at age 55 in 2000. My DCIS was 1mm and I got wide clean margins: that is, for this group of calcifications that were the size of a ballpoint pen tip, the surgeon took out a golf ball sized ball of flesh. The DCIS was too small to be tested for hormones but was probably estrogen positive because I had been on HRT for 10 years when I was diagnosed. I was "offered" radiation and tamoxifen (I was post menopausal but at that time there were no AIs as far as I know). I declined both radiation and tamoxifen and I have had no recurrence locally on that side or mets for 19 years.
That said, I am currently on letrozole for IDC (Stage IIA, Grade 2) in the other side and have been for a year and I have not had bad side effects at all except hair thinning and some joint stiffness. Because I had chemo and am over 70 I declined radiation with my oncologist's support. The IDC was hormone positive. So that is my experience.
I am not encouraging you to forego hormone treatment for your DCIS but I have been okay without it.