Jul 8, 2019 08:00PM Beesie wrote:
Luckymom, sorry you've joined us here.
To your first question, DCIS diagnoses from a biopsy are upgraded to invasive cancer about 20% of the time. The risk is greater for large areas of DCIS and high grade DCIS, and lower when there is only a small area of low grade DCIS.
To my understanding, you will have to remove your Mirena IUD because your cancer is hormone positive. I've heard that some Oncologists are okay with the Mirena because the hormone exposure is so low, but that's the exception not the norm. Make an appointment and talk to your Gynecologist about it.
A BMX is a big surgery but if you are in good shape, I don't think there is anything you need to so physically to prepare, except for getting off any meds or vitamins that are contraindicated for surgery. There is a lot to prepare your house so that it's easier for you after surgery, when you will have limited/restricted arm movement and lifting/pushing/pulling restrictions for several weeks. There are discussion threads on the board that cover that thoroughly.
Everyone has to do whatever feels comfortable with regard to telling people. I told as few people as possible - just a handful of friends, my siblings and a couple of cousins. You have no obligation to tell the world or even tell anyone. I certainly did not say anything on social media. But some people do. If you don't want to deal with the sad looks and the inevitable stupid comments, tell people on a 'need to know' basis only.