Jul 17, 2019 04:51PM SandiBeach57 wrote:
Hi. I don't know if this info will help you as my DCIS was ER+ PR+.
I was diagnosed with DCIS in 2006 and had bilateral mastectomy. DCIS returned in 2007 and I had radiation to the chest wall and placed on tamoxifen for 5 years.
10 years later in 2016, I was diagnosed with Stage IV, mets to liver, ER+, PR-, HER2-.
I was vigilant with my yearly check ups, blood work and tumor marker, CA 15.3. There were no red flags during this time.
My MO thinks some cells probably evaded detection early on 2006-2007.
My advice, keep monitoring yourself. If you have symptoms that are not explainable, ask for CT scan, bone scan or MRI. (MRIs are best for brain and liver evaluations.) Find a MO that you trust.
I was diagnosed as I had trouble breathing. The liver mets had traveled to my lung arterioles (tumor emboli syndrome).
Don't be afraid to continue enjoying your life, just keep monitoring, okay?