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Jan 1, 2020 08:45AM
Hello Ladies. I have an update to my original post here. FYI- I am 66 and post menopausal. I met with the breast surgeon Monday to discuss my breast biopsy results. I went in pretty anxious but the appointment went well as doc did a good job explaining which included a lot of repetition, which I was grateful for. I need to hear things more than one time. I brought my husband and he was going to take notes for me....but doc said she would take the notes so we could just listen and ask questions. She outlined all the details for us along with drawn illustrations for me to understand what I have going on with this DCIS. My Surgical Pathology Report indicated nuclear positive Estrogen Receptor (ER) in 90% of cells. ER Primary Antibody: Leica 6F11 (just realizing that we didn't discuss this antibody so not sure if it's relevent). 4 multi-core samples were taken from left breast at 6:00. DX: ductal carcinoma in situ (DCIS) Stage "0" with focal comedonecrosis and associated microcalcifications, 1 cm in length; histologic grade 2.
Doc recommended the expanded genetics test, RNA. I meet with the genetics counselor tomorrow. It takes 2 weeks to get results of this genetic testing.
Discussed need for appointments with medical oncologist and radiology oncologist. Talked about multiple docs. I asked her who she would want her daughter to choose.
Need to stop my Hormone Replacement Therapy (HRT) I have appointment next week with my endocrinologist who treats me for osteoporosis, osteopenia, hypothyroidism and prescribes my HRT.
Discussed options for treatment but final decision will be made after I receive genetic testing result. We discussed lumpectomy, mastectomy/reconstruction, radiation therapy,and endocrine treatment. She went over latest statistics and percentages for every option version. I went with prepared questions, most of which doc answered during our discussion. Other questions came to my mind and she addressed them all with great patience and caring.
The appointment was an hour long. My impressions were that doc was highly intelligent, provided information in a way we could understand it, gave us the notes she wrote, made a list of what we had to do next. Very important, she was easy to talk to and had a sense of humor (thank you). She also said she is not offended if I choose to get a second opinion as this is my body, my decision and that her staff will make it easy to get records to any doc should I choose second opinion. Her office staff is lovely and efficient as well. I felt comfortable with her as a person and a surgeon. When my husband and I left the office I felt much less anxiety than when I arrived.
So there you have it so far... I have some important decisions to make for my surgery and treatment. All things considered, I'm feeling grateful for my attention to annual mammograms because that meant early stage diagnosis for me and great PR for committing to annual mammograms.
I would appreciate any comments.
Keeping a positive attitude with life's challenges.
12/25/2019, DCIS, Left, 1cm, Stage 0, Grade 2, ER+
2/25/2020 Lumpectomy: Left; Reconstruction (left); Reconstruction (right)
4/4/2020 Whole-breast: Breast
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)