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Mar 4, 2020 10:09AM
As you can see from my signature, our situations are different, but I wanted to respond. Because my DCIS was ER-/PR-, and because my MRI indicated possible spread to my lymph nodes, my breast surgeon (and 2nd opinion surgeon) both recommended Mastectomy, noting that being hormone receptor negative meant we had fewer tools to fight with. I chose to go forward with bilateral because I am such a worrier and wanted to ensure I had done everything I could do at one time. Fortunately for me, the lymph node reactivity was caused by the trauma from biopsy (as my surgeon suspected), and there was no invasive cancer found. Unfortunately, the margin was close on the anterior side (close to the skin) and I chose additional surgery to remove more skin to address that.
I've had no issues from reconstruction, although the re-excision scar has given me some issues, which you will not have because they got good margins already. I do not regret my choice at all, but I encourage you to research your options thoroughly and get a second opinion if you think that would be helpful. Please also do some reading on this site to see what issues may arise from mastectomy and reconstruction, as well as from radiation.
Ingerp is absolutely correct that being at peace with your decision is very, very important. This is all hard enough without second-guessing yourself! I find comfort in knowing that I did what experts suggested and followed the standard of care (I think), but others might not find that as comforting if complications arise Most of all, I wish you the best!
Re-excision for close anterior margin 10 days after BMX.
10/31/2018, DCIS, Left, Stage 0, Grade 3, ER-/PR-
12/10/2018, DCIS, Left, 2cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR-
12/10/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap
9/13/2019 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant