We are 227,534 members in 83 forums discussing 159,323 topics.

Help with Abbreviations

Topic: First post, newly diagnosed!

Forum: DCIS (Ductal Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for DCIS.

Posted on: Mar 25, 2020 12:24PM

slobiblio20 wrote:

Hi people...

I am 54 and was diagnosed last week with DCIS high-grade (grade 3), segmental distribution, solid type with necrosis. I don't know much more than that; the pathology report was not very detailed. I do not even yet know the estrogen/progesterone receptor status. I'm supposed to have an MRI very soon and am meeting with a breast surgeon next Monday.

My partner (45) was diagnosed last year with intermediate-grade DCIS and underwent the standard lumpectomy/radiation combo, now on Tamoxifen. Her sister died (also in 2019) of invasive metastatic BC at age 41. While there's a great deal I don't know about my own situation, I do know that I want the most aggressive treatment possible. So I'm thinking bilateral mastectomy and would just prefer to go flat. I also had a CABG x 2 last year (2019-2020 have just been great years... wow!) which left me with permanent scarring. What's a couple more scars? I welcome any and all advice/guidance/thoughts. Thanks.

DCIS, grade 3, solid type with necrosis
Log in to post a reply

Page 1 of 1 (2 results)

Posts 1 - 2 (2 total)

Log in to post a reply

Mar 25, 2020 08:49PM Beesie wrote:

Welcome, but sorry you've had to join us!

It sounds as though you have a good handle on your situation, thanks to having gone through this so recently with your partner. Not the best of coincidences, but it does mean that you are ahead of the game as compared to most people when they are newly diagnosed. You even know about hormone receptors, even if you don't know yours yet!

Lots of people here to offer advice and suggestions if you decide to go with the BMX. Check out the Surgery Forum and the "Living Without Reconstruction After a Mastectomy" Forum.

Good luck with the MRI - hopefully it shows nothing new. Let us know as the rest of the information about your diagnosis comes in.

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
Log in to post a reply

Mar 30, 2020 09:28PM slobiblio20 wrote:

Thank you. The MRI showed extensive DCIS in the left breast (7 cm) and there are two suspicious areas in the right breast. So I will have an MRI-guided biopsy on the right one this week. My mastectomy (whether unilateral or, preferably, bilateral) will have to be postponed until May or June because my hospital is currently a COVID-19 "war zone". Ugh! This timing is just not good at all. But I'm trying to stay positive. It could be so much worse, I know. Anyway, in the meantime I'm being put on anastrozole while I await surgery. Thanks again for the informative and supportive comment.

DCIS, grade 3, solid type with necrosis

Page 1 of 1 (2 results)