Hello, I just found out that despite my mother having breast cancer three times and just dying of pancreatic cancer, that I don't have any cancer genes out of the 84 they tested me for at least. I was inclined to get a bilateral prophylactic mastectomy, assuming I had cancer genes, since my mother's great aunt also had a female reproductive cancer, and her half brother throuhgh her mother died of pancreatic cancer. I have 9 cm of not totally resected DCIS after lumpectomy. The surgeon I first talked with said I need a mastectomy on the right side with the DCIS.
I thought to avoid further troubles, do a bilateral mastecomy.
However, now, I'm not as inclined to do both sides, except for the Tamoxifen angle. I watched my mother get a hysterectomy and endure a lot of suffering on Tamoxifen. If one gets both breasts off, one would not need to take that, is what they told me.
They prescribed it and I'm not taking it so far.
I saw something else called "extreme oncoplasty," if I get that right, and sometimes it is done to conserve the breast despite multiple large lesions in lieu of mastectomy. I'm hoping to talk with a surgeon for a second opinion, but until now, assumed after watching my mother suffer so much, that I would need to do the bilateral mastectomy.
If I do the bilateral mastecomy, they said I would not have to take Tamoxifen with the DCIS.
In any case, I guess the question is: with DCIS, has anyone been swayed in how to treat it, knowing you have no cancer genes, or I guess the opposite as well??
I thought for sure I had these genes due to the family history of cancer on my mother's side, but the genetic counselor said I apparently got non-carrier genes from my mother and non-carrier genes from my father. (if I understand right).
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