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Topic: STOPPING TAMOXIFEN after 4 1/2 years

Forum: DCIS (Ductal Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for DCIS.

Posted on: Aug 7, 2020 02:09AM

adina65 wrote:

Hi everyone ,

Well I had Stage II BC , slow growth diagnosed in November 2015. Double mastectomy Jan.2016. Onco was moderate score so no chemo or radiation. Had reconstruction a few times. I was first put on Letrozole, which I took for about 9 months, couldn't handle that, then I took Exemestane for a couple of years and that really gave me hot flashes, sweats, fatigue, bone pain . Oh I had a small heart attack. Don't know if it was from the Exemestane or not. Took a bout a 3 month break, but I knew that I had to be on something, since I had 9 nodes removed from right arm and one had some cancerous cells even though all margins were clear. Okay I went on Tamoxifen and for about 8 months it was just okay. All of a sudden I started getting horrific leg cramps ,but infrequently, Night sweats and very frequent day hot flashes. My oncologist wants me to be on it for another 4 years. Yikes! I just made the decision to stop all of it. At least for about 6 months so I can feel normal again. I'm "70" but extremely healthy, at least till this all happened. Ha! If anyone has quit their medication, but still afraid , join the club. I guess we will always be looking over our shoulder, or should I say at our breasts.

Diagnosed 11/11/15, Stage IIB, Low Grade, rt. breast, bilateral mastectomy 1/5/16, 1 auxiliary node positive ,ER+ PR+ HR2-,OncotypeDX21 Dx 11/11/2015, IDC, Right, 2cm, Stage IIB, Grade 1, 1/9 nodes, ER+/PR+, HER2-
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Aug 7, 2020 01:05PM Cowgirl13 wrote:

I'm wondering why you haven't been put on Arimidex? A lot of people do well on it, they are not just posting here.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/17/2009 Chemotherapy 8/2/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/22/2010 Arimidex (anastrozole)

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