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Aug 21, 2020 01:02PM
I posted previously on the thread and have a very similar “beginning” story as you in terms of only being able to find DCIS in biopsies although the surgeon and radiologist highly suspected an invasive component because DCIS typically does not present in a palpable lump (which is what brought me in for a mammogram in the first place which lead to an ultrasound, biopsy, etc).
My surgeon left the lumpectomy vs mastectomy decision in my hands but talked through both options with me thoroughly. I ultimately chose a bilateral mastectomy for a few reasons 1) lumpectomy would have been disfiguring 2) I wanted bilateral to try to achieve symmetry with fewest number of surgeries if possible 3) I wasn’t attached to my 36DD’s and was able to go smaller (which I love). My plastic surgeon was great and talked through all options (flat, implants, expanders, DIEP, etc) and I settled on direct to implants and have been happy with my outcome so far.
Post BMX my pathology came back with 7cm mass of DCIS and 1/3 sentinel nodes with 3mm of er+/pr+ her2+ IDC, which sent me down the marathon treatment path of chemo, rads, targeted treatment, and hormone treatment. I’ve already left enough of a novel here for now :) , but if you ever want to reach out and ask questions about anything send me a PM. I’d love to help give any insight or answer any questions I can!
12/2019, DCIS, Left, 6cm+, Stage 0, Grade 2
1/2020, IDC, Left, <1cm, Stage IIA, 1/3 nodes, ER+/PR+, HER2+
Aromasin (exemestane), Zoladex (goserelin)
Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Carboplatin (Paraplatin), Taxotere (docetaxel)
Whole-breast: Breast, Lymph nodes, Chest wall