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Mar 3, 2013 07:06PM
melrose- thanks for starting this board. It's nice to have a thread on just those getting TC.
My oncotype was 28, so I am getting 4 rounds, 3 weeks apart.
wrh58, I will share my experience after my 1st round on Feb 15. All of our bodies are different and even though we might be getting the same cocktail, we might not have the same exact experience with SE.
I took decadron twice a day, the before, the day of and the day after chemo. I also got more decadron just before the drugs as well as Zofran. The decadron is to prevent the swelling that the Taxotere can cause, and I didn't get any. The Zofran to prevent nausea.
I had no side effects at the infusion center and felt pretty normal the day of the chemo, maybe just a little tired. I did wake up at midnight the day I had the chemo and my stomach felt a little weird so I took a Zofran. But I never needed to take another.
Decadron made me very hungry, but nothing really tasted good after the chemo. It also made me moody and a I woke up a few times in the night (a bit wired).
Constipation- yep, and the Zofran really makes it worse. I tried 2 colace caps, but it wasn't enough. So I took Senokot-S and that worked in about 24 hours. After that, I needed to take it again at the end of week one. I think next time I will start the colace before chemo. I did drink lots of fluids.
Nausea- I didn't get any and I was most worried about that SE. I followed directions to eat many small meals and keep something on my stomach. That helped.
Loss of taste- my taste buds definitely checked out for week 1 and some of week 2 after chemo. Red meat tasted horrible and I couldn't really taste much of anything except sweets. I enjoyed eating oatmeal, puddings, sorbet, popsicles, greek yogurt and Carnation Breakfast Essentials. Those tasted good and helped me get the added fluids you need after the chemo and protein to help you rebuild what you lose. I could still taste chocolate so that was a nice pleasure!
Mouth sores, sore throat and thrush- I got this 2 days after chemo. I got a prescription for clotrimazole to knock out the yeast (thrush) that I sucked on 5 times per day and a mouth rinse with benadryl, antacid and lidocaine to soothe the sores. I felt much better in a few days. Others on these boards have suggested to use mouth rinse with baking soda and salt to prevent this and I think I will try that this round.
Fatigue- I got my chemo on a Friday and was tired for the first 4 days. I felt good enough to work (mostly sitting at a desk and using computer and phone) after that.
Runny nose- the chemo wipes out the hairs in your nose, so lots of dabbing with Kleenex, I still have this.
Dry skin- very dry, I keep slathering myself with Curel. I still have this too
Infection/Fever- I didn't have this problem. Your white count will be at its lowest at the end of week 1 and in to week 2. I stayed at home (I'm fortunate that I can work at home).
Hair loss- it started with just a few hairs falling out on day 12, and then it progressed to falling out in clumps by day 14. I had my mid-back length hair cut into a pixie the day after chemo. I had it shaved off on day 15 and have been wearing a wig when I go out (I hate the wig), and lots of cute head covers that I got at headcovers.com. The head covers are super comfortable and look good with a little makeup and some dangly earrings.
Neuropathy- I got tingling and numbness in my fingers and toes starting on day 9. It pretty much continued this entire week, but is mostly all gone today. Taxotere can cause this. My MO will decide whether or not to lower my chemo dose for the next round.
I thought all of my SE's were tolerable and I hope you have minimal SE's!
12/2012, IDC, 1cm, Stage Ib, Grade 2, 0/1 nodes, ER+/PR+, HER2-
07/08/2013 Arimidex (chemical name: anastrozole, class: aromatase inhibitor)
01/03/2013 Lumpectomy in one or both breasts: Lumpectomy in my left breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection)
, Lymph node removal (also called dissection) on my left side
02/15/2013 Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel)