Jun 9, 2012 04:59AM - edited Jul 5, 2012 10:44PM by vballmom
I'll be starting July 16th. Glad to see this group here!
Posted on: Jun 7, 2012 11:23AM
Posted on: Jun 7, 2012 11:23AM
Sissydi wrote:
Hey there! I didn't see a separate group for weekly Taxol treatment; thought I'd start one just so we can compare notes with each other......I always learn so much from everyone! Just finished treatment #3 this week, and so far my side effects have been loss of taste and fatigue, especially day 3-5. This has been easier on me then A/C treatment so far.
What are your experiences?
Jun 9, 2012 04:59AM - edited Jul 5, 2012 10:44PM by vballmom
I'll be starting July 16th. Glad to see this group here!
Jun 9, 2012 01:29PM Sissydi wrote:
Glad you will join us vballmom!
Jun 9, 2012 07:03PM ladyfighter wrote:
Taxol/herceptin #3, day 3, feel normal, no SE at all. Hope stays that way!
Jun 10, 2012 01:20PM jpmomof3 wrote:
OMG i hate the decadron too! I cant sleep for three days afterward and the then the crash- fatigue with mild bodyaches hits. Thankfully those symptoms go away after i sleep 10-12 hours. Ambien has been a big help to get me to sleep for the first few days after the infusion though. The fatigue has been mildly cumulative but that is not surprising. Still compared to AC treatments this stuff has been a breeze. I am getting my 10th infusion on the 12th of June. I am just glad the neuropathy hasnt been an issue yet. that was the thing I was the most scared of. I have lost one toenail and about to lose a couple more. I think it is related to the medicines stopping the nail growth and then walking 3 miles a day might contribute.
sorry to here about the bad reaction to taxol LokeKopp hope the taxotere is less trouble for you.
Jun 11, 2012 07:39AM Sissydi wrote:
Jpmomof3, that's awesome your walking three miles everyday! They say that helps with the fatigue...I got so out of shape while on the A/C, I need to gear back up with my walking! In the chair now with Taxol #4. I haven't had any trouble with nails yet, but I'm looking everyday. I do have some peach fuzz on my head though!
Jun 11, 2012 08:03AM jpmomof3 wrote:
Yay peach fuzz! its a start. I have been taking photos of my head the last three weeks, i can see the difference now when i look back. it is hard to see just day by day, its slow growth but i think it is picking up. Hopefully yours will too!
Sissydi, it looks like you have had surgery already? did you have a lumpectomy? My lumpectomy is scheduled for July 23rd. How long did it take you to recover? I have scheduled 2.5 weeks off work, hope it will be enough...
The walking helps a lot, i normally run but didnt think that was a good idea during chemo. Walking gets me out and helps keep my spirits up. I hope to start running again after surgery, but dont know if radiation will interfere too. I am thankful the fatigue from taxol hasnt been nearly as bad as with the AC.
Jun 11, 2012 06:40PM hopeful123 wrote:
Sissydi-Good to hear that you are moving along with minimal SE.
Jpmomof3- good luck with 10.
Ladyfingers-glad to hear #3 worked.
Locke-sorry to hear that Taxol didn't work for you.
vballmom- will be there with you.
One week from tomorrow I get my first TX of Taxol and herceptin. This is my good week after AC and I am enjoying it.
Question- how low did your counts go, and how careful do you have to be. Can go the store, travel etc.
Jun 11, 2012 08:19PM Sissydi wrote:
I generally stay away from big crowds, like church or Walmart, but occasionally duck in the grocery store...I might be a bit anal about it, I just know my onc said my counts are on the low end......I don't receive Nuelasta or Nuepagen however. Today was tx #4 of Taxol, so 8 more weeks!
Jun 11, 2012 08:23PM Sissydi wrote:
Jpmomof3, I had a rt. mx at the end of January...I currently have a tissue expander there now.....sometime in Febuary I will get my implant exchange, as I still have radiation to go yet!
Jun 12, 2012 05:22AM sandik wrote:
Starting taxol #1 in two weeks. Ive only had 1 crash day with my ac, so Im hoping that if taxol is easier, I don't even have that! Trying to figure out how to schedule for work. Guess I won't know until I start.