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Oct 28, 2021 08:57AM
I’ve read a few ppl post about cold caps. I think for weekly taxol they are much more effective then AC. I’m not cold caping but I have around 50% of my hair half way through my 12 weeks. The loss is pretty evenly distributed. There’s a link a couple pages back that discuss hair loss with weekly taxol - it rarely causes grade 4 hair loss. Most ppl end up between grade 2 & 3 without cold caps. I’m shaving it tomorrow bc the roots ache.
I do ice my hands and feet for neuropathy and so far it seems to work. I wear thin mittens and hold ice gel packs. I wear thin socks and slip long ice gel packs into big comfy socks and I periodically suck on ice chips during the infusion as recommended by my MO.
Gamzu: I’m sorry to hear about your liver enzymes! Keep us posted. It’s scary worrying about delay in treatments. Also, I almost always have a slightly crusty/bloody nose now. It’s not to bothersome. My nose runs more frequent just a wee bit and it’s usually pink tinged.
KotchAJ: you just have finished #9 by now! That means your 3/4 done!!!! So very exciting to be on the finish line!!! I went and got Emla cream this week. I had been thinking about it since my first couple of pokes since the site was tender. I’m glad I did!!! It did help! Thanks for mentioning it!
Mel42: my counts are back up! I’m sure my counts drop with vaccines bows- my counts dropped right after my Moderna booster and now right after my flu shot. Makes me feel good that my body is sending the troupes out to check the vaccines out. Lol. My monocytes and lymphocytes are low, but everything else bounced back.
Week 5 was fine- same old, same old. Peaks and valleys of being tired, a wee bit of nausea. I ended up getting a migraine on day 6 of week 5 which was no fun. I’m noticing more headaches lately. I actually think I’m eating to much sugar - Halloween Candy 😬. I’m going to reign myself in and see if that helps. I am still having a bit of gut trouble but now I eat all bran buds and it seems to bulk things up a bit so less diarrhea. I had an allergic reaction to tape last week and broke out in itchy vestibules around (but not on) my port site. That was a big pain last week. I did notice my heart racing a few times while I was resting. My baseline heart rate is up 10 beats, which is fine but then I notice it gets up into the 90’s when I’m just laying down. I don’t feel anxious at the times, but it’s noticeable pounding. I did tell the on call physician when I was at the infusion Center. I’m getting a follow up call today and I think it’s about that. Prob a better assessment???
Infusion 6 out of 12 finished yesterday! I’m happy about that. They switched my appointment to 11:30am instead of 9am and I really struggled with sleep last night. I’m a bad napper so I’ll just lay around most of the day until I need to care for the kids. My middle kid was sick all this week so he actually stayed with his grandma to prevent me getting sick, which was super kind. It’s so hard balancing little kids, school, colds and Covid. I cannot wait until my 8 year old can be vaccinated in a few weeks! I still have my 4 year old unvaccinated but hoping things slow down here. I think we’re on the decline of the fourth wave.
I was worried a bit about weight when I started treatments but so far I’m bang on the same. I started around 140lbs and I go up and down in one week, but I weighted myself this am and am 140.4lbs. I don’t feel like the steroids (8mg dexamethasone) does a ton to my appetite. I usually have 2 days of a mediocre appetite and then it comes back to normal. I’m still walking on the treadmill 30-40 min a day, but not much else exercise. I do intermittent fast and only eat from 11am-6pm, but I still eat my normal 3 meals. They just end up being weirder times except supper.
Sorry for the long post! I tried to post mid week and accidentally deleted it so I stuffed it all in here. Lol.
7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+
8/11/2021 Lumpectomy: Left; Lymph node removal: Sentinel
9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+
9/21/2021 Herceptin (trastuzumab)
9/22/2021 Taxol (paclitaxel)