Posted on:
Jun 7, 2012 01:23PM
S
FL
Joined:
Dec 2011
Posts:
516
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Dec 1, 2017
Posted on:
Jun 7, 2012 01:23PM
Sissydi
wrote:
Hey there! I didn't see a separate group for weekly Taxol treatment; thought I'd start one just so we can compare notes with each other......I always learn so much from everyone! Just finished treatment #3 this week, and so far my side effects have been loss of taste and fatigue, especially day 3-5. This has been easier on me then A/C treatment so far.
What are your experiences?
Dx
12/23/2011, IDC, 1cm, Stage IIIA, Grade 3, 5/21 nodes, ER+/PR-, HER2+
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T
ThePrincess
Joined:
Mar 2015
Posts:
423
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Nov 13, 2018
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Jun 16, 2015 03:03PM
ThePrincess
wrote:
ok - Taxol/Herceptin/Perjeta #1 done - omg that took forever to infuse, and I didn't get the benedryl! My MO allowed claritin to be taken in the am. No allergic reaction, thank goodness. And I SEVERELY underestimated what cryotherapy feels like - yikes! But it was do-able so I will continue.
Does anyone NOT get diareaha with this regimine? My MO allows people to start Immodium preventively the day after the infusion just in case if one wants to. I hate to take extra meds if I don't need to?
Does it stay in your bloodstream 48 hours like the AC Treatments?
Dx
3/23/2015, IDC, Right, 1cm, Stage IIA, Grade 3, ER-/PR-, HER2+,
B
BBwithBC45
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Jan 2015
Posts:
725
Latest activity:
Jan 26, 2022
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Jun 16, 2015 03:07PM
BBwithBC45
wrote:
ThePrincess, I didn't have Perjeta, just Taxol/Herceptin so I don't know if it makes a difference, but I more often had constipation than diarrhea with these drugs. I don't know if I would want to take Immodium without needing it first.
Saved my hair with cold caps.
Dx
1/4/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes, ER-/PR-
Surgery
1/12/2015 Lumpectomy: Left; Lymph node removal: Left, Sentinel
Dx
1/17/2015, IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+,
Surgery
2/2/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement
Targeted Therapy
3/3/2015 Herceptin (trastuzumab)
Chemotherapy
3/3/2015 Taxol (paclitaxel)
Surgery
6/1/2015 Reconstruction (left): Tissue expander placement
Hormonal Therapy
6/8/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
9/30/2015 Reconstruction (left): Silicone implant
Surgery
3/8/2016 Reconstruction (left): Silicone implant
Surgery
6/6/2016 Prophylactic ovary removal; Reconstruction (left): Fat grafting
Surgery
10/10/2016 Reconstruction (left): Fat grafting
Surgery
7/17/2017 Reconstruction (left): Fat grafting
K
kbeee
Joined:
Jul 2013
Posts:
5,095
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Apr 10, 2022
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Jun 16, 2015 03:10PM
kbeee
wrote:
Taxol causes consipation but Perjeta is known for bad diarrhea, so that's why they are recommending Immodium.
Karen.
Dx
8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2-
Surgery
8/25/2013 Mastectomy; Mastectomy (Left); Mastectomy (Right)
Chemotherapy
9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Hormonal Therapy
12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
1/22/2014 Reconstruction (Left); Reconstruction (Right)
Surgery
1/28/2015 Lumpectomy; Lumpectomy (Right)
Dx
2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2-
Surgery
2/24/2015 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary
Dx
2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2-
Chemotherapy
3/30/2015 AC + T (Taxol)
Radiation Therapy
8/24/2015 Whole breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
Femara (letrozole)
B
BBwithBC45
Joined:
Jan 2015
Posts:
725
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Jan 26, 2022
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Jun 16, 2015 03:22PM
BBwithBC45
wrote:
KBeee, that explains it. I've learned something. 
Saved my hair with cold caps.
Dx
1/4/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes, ER-/PR-
Surgery
1/12/2015 Lumpectomy: Left; Lymph node removal: Left, Sentinel
Dx
1/17/2015, IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+,
Surgery
2/2/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement
Targeted Therapy
3/3/2015 Herceptin (trastuzumab)
Chemotherapy
3/3/2015 Taxol (paclitaxel)
Surgery
6/1/2015 Reconstruction (left): Tissue expander placement
Hormonal Therapy
6/8/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
9/30/2015 Reconstruction (left): Silicone implant
Surgery
3/8/2016 Reconstruction (left): Silicone implant
Surgery
6/6/2016 Prophylactic ovary removal; Reconstruction (left): Fat grafting
Surgery
10/10/2016 Reconstruction (left): Fat grafting
Surgery
7/17/2017 Reconstruction (left): Fat grafting
T
Trvler
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Jan 2015
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3,168
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Feb 24, 2021
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Jun 16, 2015 03:58PM
Trvler
wrote:
For once in my life, I am NOT constipated. Diarrhea is a side effect of one of my meds but I don't have it. I am actually pretty regular now. Yeah.
MJS: I am happy to hear your hair started after week 9. I check my scalp like 3x a day for any signs. I keep thinking it looks like the little hairs are just under the skin ready to pop and get easily discouraged that they don't yet.
I am done with #4. Woohoo. Only 8 to go. I got the fabulous nurse today and I didn't think I was ever having her again based on seeing my schedule. She had switched me onto her schedule when she saw me on there and switched me for all of my remaining appointments on her day so yea! She is awesome. Not sure why she did that. I am guessing we have a lot in common to talk about since we both have kids around the same age. I think I am a bit high maintenance.
Allison
Dx
1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2-
Dx
2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2-
Chemotherapy
3/23/2015 AC + T (Taxol)
Surgery
8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Radiation Therapy
10/14/2015 Whole breast: Breast, Lymph nodes
Hormonal Therapy
1/1/2016
A
angiel
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Jan 2015
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222
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May 10, 2022
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Jun 16, 2015 09:48PM
angiel
wrote:
Oh, that makes sense KBee - about the diarrhea....I'm with BB, always constipated on the Taxol. I was getting Kytril as an anti-nausea premed and asked to go without it 2 treatments ago (Taxol #8) & have been better since. I also cut back on the other anti-nausea steriod (can't think of the name, starts with a D) last week by 20% to try & combat the acne it's been causing. I had no nausea so they said they will cut it a bit more at Friday's infusion. Too soon to tell if it will help clear my nasty face.
I wear the cold caps during chemo and so far I still have hair - pretty thin but still there. For those wondering about new growth, I can see lots of new hair sprouting all over my head - short, tight curly hairs growing out of my otherwise straight hair. My leg hair has returned and my brows have filled back in although lighter than before. I do use Latisse, so not sure how much that plays a factor. My lashes have returned after losing the bottom ones a few weeks ago. Not very full but enough not to be noticeable. I wonder if I will be like you MJ and lose them after Taxol. Time will tell, I guess.
I too take daily Biotin, Silica and L-Glutamine as supplements.
Glad you got the nice nurse today Allison! It's those little things that can make such a big difference in otherwise a yucky day.
Good luck Leigh and stay away from reading those boards until after you've had Taxol :)
Dx
1/7/2015, IDC, 4cm, Stage IIIA, Grade 2, 3/14 nodes, ER+/PR+, HER2-
Chemotherapy
2/9/2015 AC + T (Taxol)
Chemotherapy
4/8/2015 Taxol (paclitaxel)
K
kbeee
Joined:
Jul 2013
Posts:
5,095
Latest activity:
Apr 10, 2022
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Jun 16, 2015 09:54PM
- edited
Jun 17, 2015 10:19PM
by
kbeee
Allison, so glad you got a good nurse! We are Taxol twins I had #4 today too
Karen.
Dx
8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2-
Surgery
8/25/2013 Mastectomy; Mastectomy (Left); Mastectomy (Right)
Chemotherapy
9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Hormonal Therapy
12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
1/22/2014 Reconstruction (Left); Reconstruction (Right)
Surgery
1/28/2015 Lumpectomy; Lumpectomy (Right)
Dx
2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2-
Surgery
2/24/2015 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary
Dx
2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2-
Chemotherapy
3/30/2015 AC + T (Taxol)
Radiation Therapy
8/24/2015 Whole breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
Femara (letrozole)
C
crs003
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Apr 2015
Posts:
73
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Sep 27, 2016
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Jun 17, 2015 06:46PM
- edited
Jun 18, 2015 07:22AM
by
crs003
After my last treatment I experienced a few new side effects, this is week 7 for me, so I am wondering if it is accumulative. During the evening, I saw stars, (like when you where a kid and did flips, then saw bright white stars). It only lasted that night, but the next few days my brain felt foggy and like depressed activity, and like a different person. I had to call in to work. I know that neuropathy is a side effect, but does this include the brain also? The last thing I need now is depression. UPDATE: Last night I had the worst headache of my life, it felt like my head was splitting apart and something was trying to push through. I have not had any major reactions to Taxol, is it possible to have delayed reactions? I am going in to see the doctor today.
Dx
3/18/2015, IDC, Right, 6cm+, Stage IIB, Grade 3, ER-/PR-, HER2-
Chemotherapy
5/3/2015 Taxol (paclitaxel)
Chemotherapy
8/15/2015 AC
J
JenH2015
Joined:
Feb 2015
Posts:
31
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Aug 26, 2015
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Jun 18, 2015 12:00AM
JenH2015
wrote:
I had my 12th and final Taxol on Tuesday - hurray!!!. My bad day is usually Friday, but at least this time, I know that once I start feeling better, I won't have to take another hit. Overall, I tolerated the Taxol really well - minimal side effects,thin hair but no baldness, and some fatigue but still able to function. But I am so glad to be done. I still have 9 more months of Heraceptin and will start radiation in 3-4 weeks, but the chemo was definitely the part of the treatment that scared me the most.
Dx
1/22/2015, IDC, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+
N
ninjamary
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Mar 2015
Posts:
304
Latest activity:
Aug 14, 2016
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Jun 18, 2015 06:56AM
ninjamary
wrote:
Anyone get a rash with Taxol? I have a rash on my leg and I'm assuming it's from the Taxol. I finally recovered from my AC treatment rash and now this. At least it's on my legs so I don't have to cover up my arms all the time.
Dx
1/14/2015, IDC, Stage IIA, Grade 3, 0/6 nodes, ER-/PR-, HER2-
Surgery
2/5/2015 Lumpectomy: Right
Chemotherapy
3/11/2015 AC + T (Taxol)