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Topic: Starting Chemo January 2017

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Dec 13, 2016 03:38PM - edited Dec 29, 2016 10:00PM by M0221

M0221 wrote:

I thought I would go ahead and start this group. I am actually having my first infusion of Taxotere and Cytoxan on December 28th, but with it being so close to the end of the month I figured I would be more on the same schedule as the January chemo group.

I had my port placed today...not nearly as difficult as I was anticipating. Very minor procedure. My throat is sore and my neck is a bit stiff but no pain at all. So thankful! I was actually dreading this more then my bilateral mastectomy I had October 25th.

Thankful to have the next week and a half to get ready for Christmas without the nasty side effects of chemo.

Wig shopping this Saturday with my daughter and my sister!

Wish we didn't all have to be here, but SO thankful we will all have each other. I have been brave for everyone around me, but it will be nice to have a place I can actually let people know that I am anxious and afraid.


We will all get through this together. This will be our marathon, not the sprint we would all like it to be.

Starting Chemo January 2017

M0221 - December 28th

Zolagirl - December 30th

Naniisscared1 - December 30th

IIIimae - January 2

sweatybetsy - January 3rd

Ang905 - January 5th

MexicoHeather - January 16t

ThisIsMe4No - tbd

showmama - tbd

Positive2strong - tbd

Provence - tbd

jbelcher - tbd

jadisn - tbd

Newt72 - tbd, port placement January 6th

Dx 9/29/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 10/24/2016 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 12/28/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Radiation Therapy
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Feb 3, 2017 09:13PM Illimae wrote:

honeybeaw, I have chemo on mondays and work Tuesday through Friday but if I need more rest, I just go in late. Luckily, my SE's haven't been too bad and I have a lot of support at work, plus I don't really have a backup, so they take what they can get. Also, I put a sign on my door telling sick people to stay away, it's worked so well, I should have done it before cancer, lo

Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab)
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Feb 4, 2017 09:37AM Westthebest wrote:

Heather,

You made me laugh-about hair, which isn't easy. Lost mine completely last time 5 years ago. Hope not this time with CMF. Good for you with such a take charge attitude!

Thank you,

Westthebest

Dx 10/2016, IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 2/1/2017 CMF
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Feb 4, 2017 10:08AM Westthebest wrote:

Hello Honeybeau,

My diagnosis similar to yours, had BMX in Dec. Started CMF two days ago. 5 years ago unfortunately did 4 rounds chemo. I tried to work thru most of it. That helped my mental state immensely. Hired a helper for some. Everyone's different, but work and being busy got me through it. At that time my whole office knew. I still have wipe canister on my desk. The receptionist would call me if someone came in sick. They don't know yet this time. It knocked me hard Thursday, trying to rally. I can tell already I'm also leaning towards some new distractions to also keep me sane. Journaling this time which I couldn't last time. Yes, for me, the work opportunity, distraction, and normalcy was a huge plus!

Best of luck to you.

Westthebest

Dx 10/2016, IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 2/1/2017 CMF
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Feb 4, 2017 11:27AM Illimae wrote:

Side effects question: I'm on Perjita and Herceptin every 3 weeks and Abraxane weekly. On day 4 & 5 after the 1st Abraxane dose, I felt some random muscle/joint pains. They seem to come and go and felt like the flu coming on, I'm guessing that's normal, maybe? Anyone else experience that type of delayed SE

Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab)
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Feb 4, 2017 11:31PM alc116 wrote:

hey ladies, I'd love to join this group too! I was diagnosed on 12/29 w HER2+++ 6+cm tumor w multiple lymph node involvement and a tiny spot on my sternum. I started TCHP 1/17 after much stress (had to push twice due to infusion rm scheduling, insured declined my PET, then showed up for chemo and my HP hadn't been approved, etc etc). I'm doing cold caps too which made the day go faster I guess. I felt great after, just a bit tired. I've been doing 15min of HIIT cardio a day per my onc and I think it helped a ton. I wonder how much worse the next one will be

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Feb 5, 2017 09:19AM Catgirl2 wrote:

Hi alc116, I'm sorry you have to join our group. I'm sorry that you had such a rough start. What type of cold caps are are you using? It does make the day go faster when you have that to focus on. However, I feel like it makes for a long, cold day! Have you checked out the Cold Cap user thread. I get a lot of great tips from the ladies on there.

I'm really dreading round 2 of my T/C on Wednesday.

I hope everyone has a good Superbowl Day! I pretty much watch for the commercials!

Dx 10/2003, IDC, Left, <1cm, Stage IA, 0/1 nodes, ER+/PR-, HER2- Dx 11/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR-, HER2- Surgery 11/30/2016 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 1/17/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 4/13/2017 Arimidex (anastrozole)
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Feb 6, 2017 07:22PM MexicoHeather wrote:

Hi. The shoulder where by port is under really hurts. I let my Oncologist know, we checked the area, and my lungs and spleen. I don't know, but tonight it hurts like an SOB and I had to dig up my pain pills from the surgery. I am going to an PT thing tomorrow. The oncologist said he will order an X-Ray.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Right; Mastectomy: Right Chemotherapy 1/18/2017 AC + T (Taxol)
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Feb 7, 2017 11:05AM Melinda0628 wrote:

Haven't been on in a while. Just finished my 2nd infusion on 2/3/17. Only 4 more to go yay! Ill be glad when this is all over with. Then on to rads. So far so good. I should be able to go back to work tomorrow. Bone pain from the Neulasta Shot has been thev worst for me and NO TASTE BUDS! Fatigue and losing my hair was hard but i dealt with it much better than I thought.

Dx 10/28/2016, ILC, Both breasts, 4cm, Stage IIIA, Grade 2, 13/13 nodes, ER+/PR+, HER2- Surgery 11/25/2016 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 12/14/2016 Zoladex (goserelin) Chemotherapy 1/13/2017 AC + T (Taxol) Radiation Therapy Whole-breast: Lymph nodes
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Feb 7, 2017 05:55PM Catgirl2 wrote:

MexicoHeather: I hope you got some relief and some answers on what is causing your pain!

Melinda0628: It's always nice to feel like you're one stop closer to the end!

I have my 2nd T/C of 4 tomorrow. I'll be half way there! Fatigue wasn't bad after 5 days on the first round. I've heard it gets longer with each round. I'm cold capping, so I just had my "Big Shed" the last couple of days. They say this should be the most I lose and the shedding will slow down. I'm sure my hair will be thin, but I have pretty thick hair. We will see if it's worth the cost and hassle. I will say that is is a major pain in the butt!

Dx 10/2003, IDC, Left, <1cm, Stage IA, 0/1 nodes, ER+/PR-, HER2- Dx 11/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR-, HER2- Surgery 11/30/2016 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 1/17/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 4/13/2017 Arimidex (anastrozole)
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Feb 7, 2017 07:29PM MKT1 wrote:

BG46TN...good to hear from you about port. I have already had surgery, so limited to chemo in one arm. Getting a port tomorrow, then chemo round 2 the next day. Hope that you are doing well

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Feb 9, 2017 09:01PM Melinda0628 wrote:

This has been a rough week, of course the first week following chemo always is Sad I worked yesterday and today, with yesterday being awful but today was a bit better. Tomorrow should be even better. I have to leave early tomorrow since I have my Gosserlin shot. I am just counting how many treatments I have left. I know it's killing whatever may be left but I am so tired. Its been a long 4 months since diagnosis and surgery and now chemo. I still had radiation but that will seem like a walk in the park compared to chemo.

Dx 10/28/2016, ILC, Both breasts, 4cm, Stage IIIA, Grade 2, 13/13 nodes, ER+/PR+, HER2- Surgery 11/25/2016 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 12/14/2016 Zoladex (goserelin) Chemotherapy 1/13/2017 AC + T (Taxol) Radiation Therapy Whole-breast: Lymph nodes
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Feb 9, 2017 09:02PM Melinda0628 wrote:

Hi there,


I also started my chemo in January, 1/13. I have had 2 now! Last one to be end of April....just counting down :)

Dx 10/28/2016, ILC, Both breasts, 4cm, Stage IIIA, Grade 2, 13/13 nodes, ER+/PR+, HER2- Surgery 11/25/2016 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 12/14/2016 Zoladex (goserelin) Chemotherapy 1/13/2017 AC + T (Taxol) Radiation Therapy Whole-breast: Lymph nodes
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Feb 14, 2017 08:32PM MexicoHeather wrote:

Checking in to say that Chemo AC#3 was yesterday and I had the nulasta injection today. My shoulder near the port stopped hurting. Perhaps the steroids given along with the chemo have helped?

I spent a bit of time talking to my husband about how to pay for all this fine medical attention without me making money😅. Florida Blue is my insurance, which I purchased as a personal policy(not through Obama Care ACA). It's expensive, but excellent.

And then there was Valentine's Day cake, so there you go. Life is beautiful. Keep going forward, ladies.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Right; Mastectomy: Right Chemotherapy 1/18/2017 AC + T (Taxol)
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Feb 14, 2017 08:38PM - edited Feb 14, 2017 08:39PM by Jessie_thatsme

Hi I'm Jessie!just started my first cycle of Taxotere and Cytoxan Feb. 7th and I was wondering if anyone else experienced back spasms? I Had one really bad oneon the night of day 6 and now I'm on day 8 and every time I stand up it's a shooting back pain and then it stops, then it comes back if I sit and stand again. My flu like symptoms went away after day 5 so in general I'm feeling better aside from the crazy spasms. My mouth feels like I drank a pot of scalding hot coffee and I have zero taste buds but I'm still so hungry lol anyways so nice to see there's is a huge support system here.

Dx 12/30/2016, IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2- Chemotherapy 2/7/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 15, 2017 01:29AM Catgirl2 wrote:

Hi Jesse, I am also having Taxotere and Cytoxan. I have now had two rounds of my 4. I did not have the back spasms. My mouth is like yours. Nothing tastes good for about a week and then it still doesn't taste quite right to me. I got pretty bad mouth sores the first round. This time, I'm trying to keep my mouth moist with Biotene. I hope your spasms go away!

Dx 10/2003, IDC, Left, <1cm, Stage IA, 0/1 nodes, ER+/PR-, HER2- Dx 11/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR-, HER2- Surgery 11/30/2016 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 1/17/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 4/13/2017 Arimidex (anastrozole)
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Feb 16, 2017 07:51AM MexicoHeather wrote:

Hi catgirl. I wanted to share with you and Jessie my success with mouth sores: Xylitol candy. It has the same ingredient as the expensive mouth moisturizer. You can make it yourself and it is easy. Tastes yummy,

like the Ice Chips brand candy! Here's the cooking result. 2.5 calories per gram, use in moderation.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Right; Mastectomy: Right Chemotherapy 1/18/2017 AC + T (Taxol)
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Feb 16, 2017 03:44PM Catgirl2 wrote:

MexicoHeather: That is cool! I would never have thought of doing that!

Dx 10/2003, IDC, Left, <1cm, Stage IA, 0/1 nodes, ER+/PR-, HER2- Dx 11/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR-, HER2- Surgery 11/30/2016 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 1/17/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 4/13/2017 Arimidex (anastrozole)
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Feb 26, 2017 09:59AM Illimae wrote:

Well, I am now half way through chemo after delays caused by severe allergic reactions to taxotere and taxol and the 3rd try (Abraxane) seems to be working. I had a mid point mammo and ultrasound a few days ago and I'm happy to say there's been shrinkage. The largest at about 5cm is now at 2.9cm, yay!!

Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab)
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Feb 26, 2017 09:52PM - edited Feb 26, 2017 10:12PM by Kinnie88

This Post was deleted by Kinnie88.
Dx 11/18/2016, IDC, Right, 2cm, Stage IIB, Grade 2, 2/20 nodes, ER+/PR+, HER2- Surgery 11/18/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 12/15/2016 AT
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Mar 2, 2017 04:42PM MexicoHeather wrote:

Chemo has sent me to Menopause Land. Since this cancer loves estrogen, t guess this is good, but it is Hot Flash all night and much of the day, too.

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Right; Mastectomy: Right Chemotherapy 1/18/2017 AC + T (Taxol)
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Mar 6, 2017 07:57AM BG46TN wrote:

MexicoHeather I"m popping over from Nov.....yup my last period was in Nov when I started my first chemo....and the hot flashes are nuts! they seem to be getting worse as my treatments go on, I used to be a person who slept in flannel pjs, now I am in boxers, a tank top, window open and a fan next to me! LOL During the day at work I have to wear layers so I can strip down and always have a small fan with me ha ha

But I guess the "silver lining" is no period for a whlie ha ha.....(hopefully she will stay gone for a while) I am going to be getting my ovaries out too so I dont think I"ll have to worry about it much anway....

Becky ~BARD1 gene positive Dx 10/24/2016, IDC, Right, 3cm, Stage IIA, Grade 3, ER-/PR-, HER2- Chemotherapy 11/16/2016 AC + T (Taxotere) Surgery Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Mar 17, 2017 10:21AM Illimae wrote:

Jessie and Catgirl, are you using a baking soda rise for the taste buds? Does it help?

Mexicoheather, I have joined you in menopause land. So far the hot flashes are just to the back of my neck, like someone is standing behind me with a blow dryer, very strange and annoying.

Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab)
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Mar 17, 2017 11:22AM MexicoHeather wrote:

Taxol #1 was Monday. It's been a different experience, with more mouth issues and an odd all over ache. At about 4 am I took one benedryl and put Aveda Stress Fix moisturizer on my feet and ankles. It seemed to help and I woke up energized.

I am trying to find things that will emotionally relax me. Unfortunately my husband is away for two weeks, so I have our 16 year old and church friends checking in.

Here is my beloved, whisper quiet Dorcy camp fan. I am using it for hot flash relief.


Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Right; Mastectomy: Right Chemotherapy 1/18/2017 AC + T (Taxol)
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Mar 20, 2017 06:20PM Melinda0628 wrote:

Just had my 4th ACT out of 6 last Friday. I am so ready for this part to be over. Anyone have hot flashes with ACT? No tastebuds also suck.

Dx 10/28/2016, ILC, Both breasts, 4cm, Stage IIIA, Grade 2, 13/13 nodes, ER+/PR+, HER2- Surgery 11/25/2016 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Hormonal Therapy 12/14/2016 Zoladex (goserelin) Chemotherapy 1/13/2017 AC + T (Taxol) Radiation Therapy Whole-breast: Lymph nodes
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Mar 20, 2017 07:08PM Illimae wrote:

Melinda, several of us are having hot flashes, I'm on Abraxane instead of taxotere or taxol (due to severe reactions) but it's still a taxane drug and a cousin to those with many similar SE's. I've been dealing with the taste buds problem from a week or two and yeah, it really sucks.

Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab)
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Mar 27, 2017 03:07PM - edited Mar 27, 2017 03:08PM by MexicoHeather

Hi. Back from the 2nd of 4 Taxols. I'm feeling good and I'm jazzed up on steroids. ¡Ole! My husband has been out of the country, in a rather dangerous area, for two weeks. I let the church put me on the meal train. Husband returns Tuesday.

May I say the stress still gets to me? I call it prolonged distress. I have been taking long Epsom Salt baths, attending to the weird mouth feels with 3/daily brushes, and using an ambient sound machine and a mini-fan pointed directly at my head.


Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Right; Mastectomy: Right Chemotherapy 1/18/2017 AC + T (Taxol)
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Mar 28, 2017 02:11PM Illimae wrote:

Mexicoheather, You can definitely say you still have stress, I assume we all do and will continue to for years to come. Nice you see you out enjoying the day, hope you husband returns safely and soon :)

Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab)
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Apr 5, 2017 02:47PM Lordhelpmetoo wrote:

newt72

Im from feb board but would like to join your fb group. I'm Sylvia on FB. Will send request now

Dx 12/5/2016, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Chemotherapy 2/16/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lumpectomy
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Apr 5, 2017 02:58PM Lordhelpmetoo wrote:

catgirl,

I'm also on taxotere and cytoxan. Just finished my 3rd march 31. My last is April

21. Please tell me how it's going

Dx 12/5/2016, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Chemotherapy 2/16/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lumpectomy
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Apr 5, 2017 03:02PM Lordhelpmetoo wrote:

hi Jessie,

I also started on February 27. Just had 3rd march 31. My last infusion is April 21. I didn't have back spasms but definitely had muscle and bone pain. As if I had a bad flu. My tongue had a white film on it too. Food is not appealing to me at all

Dx 12/5/2016, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Chemotherapy 2/16/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lumpectomy

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