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Nov 13, 2017 10:39PM
LTWJ so sorry the rug keeps getting pulled out from under you. I hope the doctors can work together and with you to get you the tests needed quickly. Hang in there.
Kim 6 MRIs at once-Yikes. Glad it's behind you and you treated yourself to some chicken.
HapB hope you are feeling better and your BP has settled down.
JuliaJazz Hope you had a great time on the water. Captiva and Sanibel are gorgeous!
T-Sue sounds like you are kicking butt. Keep on checking those boxes!
Lilsuzq WooHoo! Happy you got a clean MRI. Exhale.
My hair seems to be coming in a bit now. Still look bald from a distance but up close, there is definitely hair. I realized there is a bright side to having no hair right now. When I'm recovering from surgery, I don't have to deal with washing it! Silver linings.
Neuropathy is annoying. My toes don't seem to be getting any better--maybe worse-- but I'm trying to ignore it. My right hand woke me up the other night which was new. Wasn't just tingly..it burned. Kept me up for a bit before I could fall back to sleep. Didn't like that at all-especially since it was my right hand. Hmph. I took one of the Xanax earlier that evening as a 'test run' before surgery date as suggested by the nurse. I wonder if it was a coincidence or if it may have had something to do with the hand acting up since it hadn't happened before. I did not feel anything from the Xanax. Maybe because I wasn't experiencing any anxiety to calm but honestly, I forgot I took it because I didn't feel any different.
Quick question - How are you all keeping paperwork organized? I've been keeping mine in plastic pockets. It's organized but I feel like I need to get better about it. Do you use binders with tabs/labels? Does each procedure/results get its own tab? Do you have a 'master page' that lists everything chronologically?
4/27/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (FISH)
5/26/2017, DCIS/IDC, Left, <1cm, Stage IIA, Grade 2, ER+/PR+, HER2-
6/22/2017 AC + T (Taxol)
11/20/2017 Lymph node removal: Sentinel
11/20/2017 Mastectomy: Left; Reconstruction (left): Tissue expander placement
12/10/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/25/2018 Perjeta (pertuzumab)
1/25/2018 Herceptin (trastuzumab)