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Topic: Starting chemo August 2017 - would love some moral support!

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Jul 15, 2017 11:32AM

Willow22 wrote:

Hi, I'd love to connect with others starting their chemo around the same time as me! I have day surgery to clean up a positive margin on 7/18 and will have an infusion port placed at the same time, then 4 rounds of Taxotere/Cytoxin spaced 3 weeks apart. I'm getting good info & support from my MOs office, but nothing can beat sharing tips and experiences with others on the same journey! Heart

Willow22 Dx 5/1/2017, DCIS, Right, 2cm, Stage 0, Grade 3, ER-/PR-, HER2- Dx 5/26/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Dx 5/26/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 5/26/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 7/18/2017 Chemotherapy 7/28/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 10/23/2017 Whole-breast: Breast, Chest wall
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Aug 29, 2017 01:11PM Cherry-sw wrote:

toughcookie_21, well, what can I say, we cannot choose our parents) My mom, who came to stay with us now, was not allowed to tell her sister, not until we knew what kind of bc it was and what kind of treatment I was getting. I told my brother after the month and a half. And of course everybody I told it to got so upset that I almost felt guilty and it was one of reasons I did not wanted to do it. Another crowd that is just curious about what was going on with me and why I stopped working, I did not want to tell anything to them, the bare thought of them just shaking their heads and thinking, cancer, how awful, thank God we are healthy, and sleeping well, this thought keeps my mouth shut. I have not landed in my diagnosis yet, no one has to know before I ready. I agree with you it can be very tiresome to listen to people's advice. I have another friend who I have been avoiding since the diagnosis and who is probably mad at me right now but I cannot bring myself to tell her because she has always been an adept of healthy life style and is absolutely sure that she is never going to get anything like this (and hopefully she never will) only because she doesn't eat any meat, only fish and very seldom, eats mostly vegetarian diet, no sugar, yoga, fen shui and she (!) follows some lady on the web who learns how to control your hormonal level with the help of food and plants. I just imagine her starting this lecture and I will ask her to .. off and walking away from there. This is just unbelievable how full of themselves some people can be, I do not remember being so myself but probably was since we all think that we will not get cancer, not when we are in our 40-es. But your mom means well, it is tough on her too, everybody has their own way to cope. Mine broke down only once when she told me she would happily traded it with me if she only could. Imagine something like this happening to your child, this is not a normal course of life, poor them when they see us like this. Hugs, Cherry

Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/18/2017 Lumpectomy: Left Targeted Therapy 8/21/2017 Herceptin (trastuzumab) Chemotherapy 8/21/2017 Taxol (paclitaxel)
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Aug 29, 2017 01:19PM - edited Aug 29, 2017 01:20PM by Littlemouse

love your picture illimae!! You definitely need to keep positive and still find something to smile about each day, as you did with your picture! Love it 😍

Best of luck!

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Aug 29, 2017 04:02PM - edited Aug 29, 2017 04:05PM by Leatherette

re: constipation-Senna with ducosate sodium has done the trick

I had my first day back at work today-I'm doing two days a week to start. It was just a meeting, but it was 8:30 to 3:00. I made it through, but was ready to leave at the end (but I always feel that way about meetings!). I had a different problem than others-I asked my bosses to tell the department why I was out, but they were conservative about it and did not, so I had to deal with lots of "How was your summer?" Questions (I work for a school district). I don't like to say "fine" unless it actually was-I feel like that keeps people from having a genuine interest in how others were doing. But at a certain point I did. I just said my summer sucked because I was going through medical treatment to the first few people who asked. No one pressed for more info. Several people said they really like my new haircut (wig, of course), so that made me happy with my choice of wig!



Age 45 at diagnosis Dx 5/2017, DCIS, Left, 6cm+, Stage 0, Grade 3, ER+/PR+ Surgery 6/19/2017 Mastectomy: Left Dx 6/23/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 7/25/2017 Herceptin (trastuzumab) Chemotherapy 7/25/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 7/2/2018 Reconstruction (left): DIEP flap
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Aug 29, 2017 05:26PM - edited Mar 16, 2018 08:52AM by Moderators

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Aug 30, 2017 02:47AM Clearpath wrote:

Hi - my doctors recommend Senokot with stool softener for constipation, and Miralax if that doesn't work. The Senokot (plus eatingprunes) has worked for me and it's gentle but can take a while to work.

I have my third AC treatment this morning. Having trouble sleeping tonight in anticipation although I know what to expect.

I told everyone about my diagnosis. I do not believe that having cancer is something I should need to hide or be embarrassed about. Every day I get calls from family, friends and/or work friends to check on me. Whenever someone asks what they can do, I tell them to call and keep me laughing. Of course people will make insensitive comments at times, but it's not usually because they are mean spirited - they just don't know what to say.

Dx 6/6/2017, IDC, Left, 6cm+, Stage IIIC, Grade 3, 15/19 nodes, ER+/PR+, HER2- Surgery 6/22/2017 Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 8/2/2017 AC + T (Taxol)
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Aug 30, 2017 06:29AM KByTheLake wrote:

Wow--the last few days have been rough! I'm starting to think doing chemo isn't going to be much fun!

Not being able to eat is probably the worst for me because I just kept feeling weaker and weaker. Either food doesn't sound good or it triggers the big D. Finally, last night I heated up some organic chicken broth and threw in some egg noodles. It tasted good and didn't have me running to the bathroom after eating it! Success!

I tell everyone I meet that I have cancer and that I'm doing chemo. Since I'm new in town and don't have family nearby, I don't want to be alone in my house with no one knowing what's going on. I want people to check in on me and make sure I'm okay.

Dx 6/16/2017, IDC, Right, 1cm, Stage IB, Grade 3, 1/2 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lumpectomy: Right Chemotherapy 8/22/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Mastectomy: Right; Reconstruction (right) Hormonal Therapy
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Aug 30, 2017 07:02AM PauletteK wrote:

KbytheLake - did you tell your doc you have Big D so he can give you something stronger for your stomach. I found myself a little weaker in my AC #3 but I bounced back after day 6.

Clearpath- I'm with you, having cancer is not something I need to hide beside most of my slibings have cancer.

Will be doing my AC #4 this Friday I hope my WBC is high enough to do.


Dx 4/1/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 2/8 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 7/20/2017 AC + T (Taxol) Hormonal Therapy 2/12/2018 Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast
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Aug 30, 2017 07:44AM marooshka wrote:

Clearpath - I agree, I felt better telling my main circle and even peripherals I need to deal with here and there and the support via texts, calls, emails has been great. It always felt nervy before I told someone but then it was just a huge relief to have it out there because I could say whatever I wanted. It was also helpful because almost every one of those people knew someone who had been through this so I had quite a few connections to reach out to which was good because I could then pick the most helpful contacts (for example, NO to the Aunt who told me the horrors of chemo and YES to the woman who had great advice on recovering from her mastectomy). I've been emailing with at least two total strangers (to me) throughout and they have been great. It has also been a good lesson to me in how I will deal with someone else's sickness/loss/crisis moving forward.

KbytheLake - I have found that certain foods might not sound good, but once I taste it, it works. My friend swears by sniffing fresh orange peel to get past the very intense oog. Good thinking to have a network you can keep informed. I ended up at the ER last night after a few days of relentless headache and sudden dizziness. They are still culturing my blood to make sure all is good, but I was released with everything looking ok. Today (day 7) I feel really good by comparison- I think the zofran was maybe the culprit. I would not want to have to go through that with nobody knowing what was going on!

Dx 5/2017, IDC, Left, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 7/19/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/23/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 30, 2017 01:42PM Cherry-sw wrote:

KbyTheLake, chicken soup is what I am having every day. I just boil slowly half of a chicken then add chopped onions, carrots, potatoes and some noodles or those small soup pasta. Maybe some parsley, laurel leave salt and pepper. I always liked it befor, but now I have to eat it every day, it tastes good, is easy on your stomach, it is fluid and the chicken is so good with some extra salt. Cherry

Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/18/2017 Lumpectomy: Left Targeted Therapy 8/21/2017 Herceptin (trastuzumab) Chemotherapy 8/21/2017 Taxol (paclitaxel)
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Aug 30, 2017 01:51PM PauletteK wrote:

Cherry - it sounds good maybe I do that with chicken breasts. So it has veges and meats.

Dx 4/1/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 2/8 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 7/20/2017 AC + T (Taxol) Hormonal Therapy 2/12/2018 Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast
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Aug 30, 2017 03:33PM - edited Aug 30, 2017 03:35PM by Cherry-sw

Paulette, it needs like skin and bones too so the broth will be a bit fat and tasty. I usually cut the breast part out and use it for something else. If you can find a real hen or rooster and cook it for a long time it will be even better. It has been my "flu" diet since I was small. You can also mix an egg with flour, salt and water, form some small dumplings with a spoon and let them cook in the soup a few minutes, instead of noodles. When you serve it you can add chopped fresh dill, parsley and basil, it is delicious. I also like to have some fresh estragon. Cherry.

Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/18/2017 Lumpectomy: Left Targeted Therapy 8/21/2017 Herceptin (trastuzumab) Chemotherapy 8/21/2017 Taxol (paclitaxel)
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Aug 30, 2017 05:34PM PauletteK wrote:

cherry - I'm not sure I want Fat in my soup, that is not healthy at all. I'm writing this chicken soup down so I can make some for my Friday chemo.

Dx 4/1/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 2/8 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 7/20/2017 AC + T (Taxol) Hormonal Therapy 2/12/2018 Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast
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Aug 30, 2017 08:27PM KByTheLake wrote:

Cherry--dumplings sound really good! I'm going to make a few next time.

Paulette--a little fat is okay and it will make the soup much more flavorful

Dx 6/16/2017, IDC, Right, 1cm, Stage IB, Grade 3, 1/2 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lumpectomy: Right Chemotherapy 8/22/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Mastectomy: Right; Reconstruction (right) Hormonal Therapy
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Aug 30, 2017 08:44PM PauletteK wrote:

You gals are good cook I need to learn from you all. Will make some chicken soup tomorrow ready for Friday infusion.

Dx 4/1/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 2/8 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 7/20/2017 AC + T (Taxol) Hormonal Therapy 2/12/2018 Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast
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Aug 30, 2017 09:34PM Cherry-sw wrote:

KByTheLake, 1 egg + 3 t spoons of flour (maybe a little less) + some water or the broth itself, salt. My mom and granny used to make it.

Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/18/2017 Lumpectomy: Left Targeted Therapy 8/21/2017 Herceptin (trastuzumab) Chemotherapy 8/21/2017 Taxol (paclitaxel)
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Aug 30, 2017 10:10PM MakeupLover wrote:

Rebekah, my MO said that when we are close to finishing chemo I will get a breast MRI.

Cherry, my Ki67 is 60%, so yea I think that makes sense, I'm just glad the lump feels back to normal now!

I've been doing ok these past few days, the sore gums are manageable with tylenol. And i have random headaches every now and then.

Chicken noodle soup sounds great!

Dx 7/17/2017, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/21/2017 AC + T (Taxol) Chemotherapy 10/23/2017 Carboplatin (Paraplatin)
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Aug 31, 2017 12:08AM Cherry-sw wrote:

MakeupLover, my Ki67 is slightly lower, chemo should be effective, hang in there. It is hard to make an accessment when you touch it all the time, try not to feel it for a week. Cherry

Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/18/2017 Lumpectomy: Left Targeted Therapy 8/21/2017 Herceptin (trastuzumab) Chemotherapy 8/21/2017 Taxol (paclitaxel)
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Aug 31, 2017 12:56AM Cherry-sw wrote:

Paulette, just as KByTheLake said the fat is just for the flavour, chicken wings can make a great broth but I like to have some meat in mine, Cherry

Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/18/2017 Lumpectomy: Left Targeted Therapy 8/21/2017 Herceptin (trastuzumab) Chemotherapy 8/21/2017 Taxol (paclitaxel)
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Aug 31, 2017 03:17AM MakeupLover wrote:

Cherry, yea i'm gonna try to ignore the lump lol

have a great day everyone :)

Dx 7/17/2017, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/21/2017 AC + T (Taxol) Chemotherapy 10/23/2017 Carboplatin (Paraplatin)
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Aug 31, 2017 06:54AM marooshka wrote:

RE: Soup - Before I had surgery and again before starting chemo I made two big batches of Rebecca Katz' Magic Mineral Broth and froze it in batches. Sometimes I will thaw it out and simmer chicken in it as well and depending on appetite add matzoh balls, piles of veggies, or rice. It is a little sweet so the chicken really helps round it out, and it serves as a good base for all sorts of soups. Another option would be to get an organic, rotisserie chicken. I pick off the breast meat and simmer the bones, wings and legs with some carrots, onion and herbs to make broth. It is really a miracle food!

Dx 5/2017, IDC, Left, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 7/19/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/23/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 31, 2017 07:30AM - edited Aug 31, 2017 07:59AM by toughcookie_21

I will second that broth and soup really are miracle food. I got hooked on organic bone broth that a local health food store near my house sells in cups for sipping like coffee. It's so healing! Now I make my own with beef shins that I get from a local farm and chicken I get at Wegmans. I make it in large batches and freeze it in muffin tins so I can thaw one or two at a time

Dx 5/17/2017, IDC, Right, 2cm, Stage IB, Grade 3, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 7/18/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 9/8/2017 Herceptin (trastuzumab) Chemotherapy 9/8/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Aug 31, 2017 07:32AM marooshka wrote:

Good for you toughcookie_21! I too made a big vat of bone broth and decided to never do it again. It took about 2 days and I think I am better off finding it out there locally. But I am allergic to celery which makes buying broth a challenge!

Dx 5/2017, IDC, Left, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 7/19/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/23/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 31, 2017 08:55AM - edited Aug 31, 2017 08:59AM by Cherry-sw

Marooshka, thank you for the tip, it looks delicious, I will cook it tomorrow

https://www.rebeccakatz.com/magic-mineral-broth/

I do not know where to find those seeds though and I am not sure If those may interfere with the chemo, I will just go on without.

Matza balls)) I need to find a place where to buy those. Jamie Oliver has a great recipe of matzo ball soup in his book Jamie's America, the section on NYC food. Since I am of Russian origine and grew up in Ukraine until I moved here I have a killer recipe for bortsch, a Ukrainian beet root soup/stew, because it has to be very dense, that I have been making without any meat for at least seven years and with various vegetables and sour cabbage

Cherry

Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/18/2017 Lumpectomy: Left Targeted Therapy 8/21/2017 Herceptin (trastuzumab) Chemotherapy 8/21/2017 Taxol (paclitaxel)
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Aug 31, 2017 09:59AM Clearpath wrote:

I recommend the easy chicken noodle soup recipe on mrfood.com.  Easy, delicious and authentic New York chicken soup - just like my mom's.  I use a package of soup greens and a couple of extra carrots instead of the veggies listed and add three chicken bouillon cubes.  Also, dill is the secret ingredient (which is usually included with the soup greens but if not, add a few stems of fresh dill).  Cherry, you can always use egg noodles instead of matzo balls.

Feeling OK today after AC treatment #3 yesterday fortunately.  Had my remaining hair cut to 1/2 inch last night.  Hope everyone is doing well.


Dx 6/6/2017, IDC, Left, 6cm+, Stage IIIC, Grade 3, 15/19 nodes, ER+/PR+, HER2- Surgery 6/22/2017 Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 8/2/2017 AC + T (Taxol)
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Aug 31, 2017 10:12AM PauletteK wrote:

OMG you ladies are such a good cook I love it. Will check out these websites. Being Chinese we cook different kind of soup, my kind of soup is clear base my mom told me we don't eat the stocking because most of the soups need 3-4 hours simmering. When I have chicken noodle soup is from the CAN. 😂😂

Dx 4/1/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 2/8 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 7/20/2017 AC + T (Taxol) Hormonal Therapy 2/12/2018 Arimidex (anastrozole) Radiation Therapy Whole-breast: Breast
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Aug 31, 2017 10:17AM Cherry-sw wrote:

Clearpath, thank you, I am always up for a chicken soup. Chicken is actually my favourite protein, or any poultry for that matter. Cherry

Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/18/2017 Lumpectomy: Left Targeted Therapy 8/21/2017 Herceptin (trastuzumab) Chemotherapy 8/21/2017 Taxol (paclitaxel)
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Aug 31, 2017 10:28AM Cherry-sw wrote:

Paulette, I am up for any Chinease soup recipe, please feel free to PM me. Cherry

Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/18/2017 Lumpectomy: Left Targeted Therapy 8/21/2017 Herceptin (trastuzumab) Chemotherapy 8/21/2017 Taxol (paclitaxel)
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Aug 31, 2017 12:01PM marooshka wrote:

Ditto on asian soups. Paulette, we cook a lot of asian inspired food as well and I was sad to think I maybe can't have miso anymore- but that seems to still be an open debate. My naturopath says I should have soy and my friends who were hormone + said to avoid it. Ack!

Meanwhile, I made up a big vat of brown rice congee with mushrooms and broccoli to bring to my first round of chemo and ate the rest for dinner. I missed not having any chile oil or fried shallots on it, but it was really comforting and easy to eat that day. Once you master your broth, maybe congee is something to try!

Dx 5/2017, IDC, Left, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 7/19/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/23/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 31, 2017 01:27PM - edited Aug 31, 2017 01:30PM by Cherry-sw

Marooshka, my oncologist told me that miso soup and soy to sushi are ok. When they say reduce the consumation of soy products they mean stop eating soy beef three times a week. Tofu has also a quite complicated and not very healthy manufacturing process. I am scheduled for a meeting with dietitian in my clinic in September, I will come back with the report. I want to learn how to make congee, I heard the name before. I have also been into ramen earlier this year. Cherry

Dx 6/28/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery 7/18/2017 Lumpectomy: Left Targeted Therapy 8/21/2017 Herceptin (trastuzumab) Chemotherapy 8/21/2017 Taxol (paclitaxel)
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Aug 31, 2017 02:05PM - edited Aug 31, 2017 02:19PM by Walkingintheclouds

PauletteK - Being a Chinese as well, I was told to put some herb into the soup, such as goji berry, Chinese date... Happy


Also, I've lost 9/10 of my hair ... sadly in about 4 days, starting from the 12th day of my first chemo.

7/28/2017 IDC right breast, imaging 2.5 cm , ER+PR+, HER2 - 8/15/2017 Chemo

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