Topic: Completed 4 of 6 chemo cycles and want to quit

Sep 1, 2017 01:36AM Swedish_Girl wrote:

I had the same treatment, except I didn't have the F in FEC. I agree the docetaxel is harder, but I found it manageable. If you really can't do it your oncologist might be able to change the treatment or just lower the dose. Docetaxel is very effective, but there are other alternatives. Talk with your oncologist, quitting chemo altogether is not necessary even if you choose to not go through with docetaxel. Docetaxel is very hard on you, but also on the cancer...

Chemo is hard, and my husband basically had to drag me to one of the treatments, I really didn't want to go. And I have been feeling quite well during treatments compared to many others. It's not uncommon to want to give up. You are almost there. Two more to go.

Sep 1, 2017 05:04AM NotVeryBrave wrote:

I was ready to quit after round 3. I remember just being so tired of all of the SE's and worrying about possible long term problems. Wondering if it was worth it, too.

Probably no one can answer your question. All of the regimens are based on studies. It's possible that 4 rounds is enough for you, but that's not what was scientifically proven.

I ended up completing what was ordered because I knew that I would be really hard on myself if I didn't and had a recurrence down the road. Of course - I still haven't started Tamoxifen due to my concerns about the benefit vs risk in my case.

Talk to your MO about your concerns. Maybe they have other insight - a change in the dose or infusion rate, a new option for managing SE's, anything. But at the end of the day - it's your body that you're living with both now and for the rest of your life. You do get to choose.

Sep 4, 2017 05:12PM Kicks wrote:

Talk with your Dr about how you feel and your concerns.

My TX plan was different than yours. (As was my DX.). I did 4 DD A/C neoadjuvant with no issues of concern. The 12 weekly Taxol adjuvant were not as nice. When I saw my Dr before my 10th Taxol, I complained about how completely and utterly EXHAUSTED I was - just existing either laying in bed or on the couch in front of the TV. He told me that the Chemo had done about 85% of what it could do, so it was up to me and he was putting in a order saying IF I wanted to quit - he was 'approving' it. Well - as I had done the 4 A/C and 9 Taxol already with only 3 more Taxol to get the max. of what it could do, how could I quit so close to the 'finish line'? If I didn't finish and mets happened, how could I tell my Husband (of 34 yrs at the time) and Son (31) that I quit and did not do all I could have? They had done everything they could (Hubby - all house/cooking chores and 'house critters', Son all barn/horse chores) so all I had to be fight the Monster.

Only you can decide what if best for you - not what anyone else has done or not done. Seek advice/input from your Dr - he/she is the one who can give you info based on your DX.

Aug 4, 2018 08:01PM hapa wrote:

Round 4 was mentally the hardest one for me. I don't know why. I think by round 5 I was on the home stretch so it was easier and when I went in for round 6 I was so freaking happy that it was the last round that I wasn't even thinking about all the crappy side effects headed my way. Dragging myself in there for round 4 was really hard though. I seriously considered quitting but I told myself that I just had to get through THIS round and then I could decide on the next one. That helped for some reason.

Aug 5, 2018 02:39PM couragement wrote:

Hi all,

I did have to quit TCHP. I made it through two rounds and had such severe neuropathy, hand foot syndrome, kidney stones, etc. etc. that we stopped infusions for 5 weeks while my primary MO spoke with MO's at several institutions and my second opinion MO at a research school agreed that I should go on Gemzar, which is usually used for metastatic BC. I was able to do 3 rounds of it so I got in a total of 5 rounds of chemo. Had to stop the last round due to low blood counts. I made it through all the Perjeta, but ended up in the hospital on the last round, and made it through 17 of the 18 Herceptin when my EJ from my last echo dropped to 50. I had all sorts of side effects on each drug, with Herceptin being one of the hardest for joint pain but I am now 2 years out, just had a PET and was all clear. Surgery showed I had an almost complete response, just a couple of micromets. I have yet to meet or hear of anyone who did Gemzar at this earlier stage. I was so grateful to have an MO who listened and worked with me to get me as much as we could given my wonky physiology. The neuropathy was our biggest worry, and indeed, now I have neuropathy in my gut from tongue to stern, which has been rough, even though Gemzar rarely causes it. It was the T and C that did the damage.

We can only do what we can manage and live with. I am thinking of you all with much love and care.

Aug 8, 2018 11:41PM msphil wrote:

hello sweetie u can do it you made it this far don't give up I know how rough it is I had hard time But its doable take it from me a 24 yr Survivor this yr. Praise God. Was planning our 2nd marriage when found the lumpBut thru Grace of God I made it thru.ms phil idc stage2 0\3 nodes 3mo chemo before n after Lmast got married then 7wks rads 5yrs on Tamoxifen. cytoxin 5fu adriamycin.

Aug 9, 2018 10:26AM couragement wrote:

Hi Buttonsmachine,

I am so sorry to hear that you also had a strong reaction to the Taxotere. Yes, all my docs (and I have many as I had many comorbidities prior to my breast cancer) are in agreement that it is a "variety of ANS." It is indeed quite uncommon, but it does happen. My tongue has neuropathy (tingling, numbness, mouth dryness, etc.) and my gut stops up quickly and severely if I use anything that might slow it down (ie: opiates, benzos, really almost any med). After taking one drug in particular to help with severe fatigue I had my gastrointestinal system stop working for 18 days. Nothing! The ER threatened NG tubes, etc. and as this has happened to me after every surgery I have learned to fast for a week or so and only have clear liquids until my system starts up again. It is very scary. I can use everything under the sun for constipation but the stool with just liquify in my intestine and then my intestines collapse around the stool and there is no motility or anything at all happening until my nervous system comes back on line. It is a neuromuscular response like folks with ALS or Parkinson's can get.

Unfortunately, we knew that the T and C would probably do this, as I have had shingles 8 times in my life, as well as being struck by lightning at an early age. My nervous system took the biggest hit it could! But we still have the T and C a chance but then called it off after two infusions. My MO didn't believe me when we started but after my very first infusion she was shocked at my body's radical response to things. Most doctors have very little experience with this type of response (or lightning strikes for that matter), so if you think you have it a neurologist could be a good bet, but they often want to do nerve testing which is painful. My docs know my pain is very severe so they just called it without doing the radical testing.

How are you doing? What do you experience?

Sending much love and care your way!

Aug 9, 2018 01:29PM couragement wrote:

Dear Holly,

I hear you. I am so sorry you are suffering so much with the TCHP. I also had such a hard time that I could not work, work out, or do much of anything. I basically was homebound and bedridden. I was able to do little tiny bits of movement up until my 4th round and after that it was all about just hanging on. Her2+ is something to really approach with everything you can. I have friends that were Her2+ before Herceptin and they are still with me (25= years), so the constant feeling of it returning and you might as well throw in the towel now is a very familiar mindset for us (and frankly everyone with cancer). I too was an incredibly active person, even with my life long illness' (distance ocean swimmer, surfer, kayaker, backpacker, etc.). Fortunately or unfortunately I have honest good friends with major illness' that they will not recover from and that do not have pharmaceutical options. When I complained around them they would roll their eyes and tell me "it is just a year of your life and you have a chance to beat it." When I really took to heart the time line of a year (even though it went a little longer) and saw how many people I know who have had to recover from more radical illness' or injuries I knew that I could manage a year. I just kept going to the next round of whatever (chemo, Herceptin) and told myself that I could stop after each one.

Emotionally it was rough. Just remember that depression and crying jags are also a response to the meds, it may not be organic to your mind. When I considered that the drugs would make me cry and feel desperate I just reminded myself it was the drugs, and not who I was at my core. Use what meds they offer you for symptom management, tell them every thing you are feeling. I found my oncologist's PA would address everything, as they really wanted me to keep going. Your younger age will hold you in good stead with strength. That life force will get you through! Yes, treatment sucks something awful, but this is what we have on offer for lifesaving, and lifesaving it does. If the emotional part is the worst for you I would suggest finding a good therapist. Mine was a lifeline for me. You can do this. I used to think I was tough, but now I can truly feel my inner strength. It is amazing how resilient we are.

Nonetheless, Vent on, I say! Do what you need to do to keep putting one foot in front of the other!

I send you love and strength!!

Aug 9, 2018 05:35PM BellasMomToo wrote:

ColoradoHolly: Yes, our QOL certainly can suck big time during TCHP. I had all the SEs you mentioned (except for neuropathy) for the same amount of time too. I wish I could say that it will get better, but it probably won't. I couldn't wait to finish. But I did.

Talk to your MO. Perhaps she/he can adjust your dosage. Have you tried counseling?

Aug 10, 2018 03:39AM WC3 wrote:

laralee1955:

I'm also on TCHP and had to deal with bad tasting water. I discovered that in my case it was from the anti nausea medication...IV Aloxi, and to a lesser extent, Zofran, not the chemotherapy. I am going to try Emend for my next infusion. Before I figured this out though, I found Lime flavored La Croix sparkling water tasted ok to me. It's typically too bitter for me when my taste buds aren't impaired.

Sep 12, 2018 12:02PM lulabella wrote:

hi toughcookie and everyone...

I'm also on 6 rounds of TCHP. It has been a bear! I think round 3 was a low point (I remember crying during that one) and after round four it took me a couple of weeks to recover to the point where I was considering not leaving my bed until finishing chemo. My doc lowered the T+C dosage by 20% because of the fatigue and burning in my hands and it has made a world of difference. It's been 4 days since round 5 and am feeling pretty ok. Still in bed but managed a shower and some emails. Feeling like I may actually be able to get through this! Today is "bitter tastebud day" and tomorrow "nose and face dry-out day", but I think I've made it past the worst of this round (knock on wood).

I hope you all get some relief soon.