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Mar 11, 2018 09:59PM
Hope you all had a fabulous weekend. My daughter and her husband came in from out of town, and it was nice to have some bonding time. We visited some friends, too. Everyone has been fantastic even though I have to yell at them occasionally to quit treating me like I'm an invalid! While I'm having sleeping issues because I can't find a comfortable position while my chest is healing, I walked both days with my husband. Today, we completed our normal (old) route, which is about 3 miles long. I'm also going to call and start OT this week so that I can hopefully get some range of motion back quickly. So looking forward to being released to get in hot tubs and swim in lakes and oceans again, so that I can get back to living life.
Thanks for the explanation why some surgeons recommend against shaving your armpits, Agatha. I wasn't told this by my surgeons and have, in fact, shaved under my arms since surgery. And now that I mentioned it, I was also never told to have my blood pressure read on my non-cancerous side moving forward. I've read that this should be done to avoid lymphedema, but I'm a tad distressed that my team is dropping the ball on the communication end.
Jenn, you are so funny. After the initial shaving of my head, I haven't cut my hair again, either, even though from Day 1 I had some hold-outs that started to look ridiculous. No way was I going to shave them! I'm a long way from going without a hat, but my husband is supposed to ask his hair dresser tomorrow for coloring advice. It's almost all white and I think I'll be braver going commando if I can dye it brown.
I'm starting to see baby eyelashes again, but so far my eyebrows are still not filling in, and it's been a long time since they fell out. I just spent another half hour of my life painting them on again and am looking forward to the day when I can just fill them in. At the BS office the other day, one of the ladies asked me if I was interested in microblading. She gave me the name of someone she recommends. I was actually considering doing it before I got DXd, so I'm going to look into it again. I over-plucked as a teenager and they were so thin and scraggly that I thought microblading would be a great solution.
Tewks, I can't help you on the toenails. I have neuropathy in my feet, but no toenail damage, although they do get tender when I go on long walks. I made sure that I elevated and iced my feet during transfusion, but I have no idea if that helped at all. My fingernails, on the other hand, were pretty gnarled (I posted a picture of them in the Taxol thread) from those really strong Taxol treatments 1 thru 3, but thankfully the damage started halfway down the nail. One of the residents told me that if there's healthy nail between the cuticle and the damage, I probably wouldn't lose the nail. I just trimmed them again and believe in a month, all the damage will have grown out.
Hope your radiation burn heals quickly. :(
So...I'm getting a little concerned that my next MO appointment isn't scheduled until 4/4, which is more than a month after surgery. Did anyone else wait 5 weeks to meet with their oncologist? I went over the biopsy with the BS. I assume since I had PCR, I won't need radiation, but I don't really want to assume. I was also told by the chemo nurses that they'd be seeing me every couple of weeks to clear out my port, but no one has ever scheduled me for this or made me aware that I should do this every now and then. Anyone else gone back to clear out your port with saline?
I sent an email off to my NP asking if I could get the port removed sooner rather than later. I've read here that some MOs want it in for a year because they'll see us every 3 months and need blood draws, but no way do I want to keep a port in when they can draw blood 4x a year just using a needle. I used to give blood all the time, so I have no concerns about needle sticks. I don't know why else I'd need a port...
"Fear is not an option. Never be a victim." -Diane von Furstenberg's Mom, a Holocaust survivor. **Note: Stage is 1A (old method) or 1B (new 2018 method)
9/25/2017, IDC, Right, 1cm, Stage IB, Grade 3, 0/4 nodes, ER-/PR-, HER2- (FISH)
10/2/2017 AC + T (Taxol)
2/27/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant