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Sep 13, 2018 10:18AM
PFC: Without looking it up, I made up that this meant Post Fu * * -ing Chemo, which is how I've been thinking of it (quite cheerfully in my head), but this probably doesn't match everyone's language use on this forum, so I'm glad to know that it actually has a polite, more repeatable word in the middle!
SLEEP: 2 Benadryl (OTC) can help, and I often use 1 Lorazepam (Rx) which is anti-anxiety but helps with sleep.
RADIATION AND FOOD: Eat a lot of protein and also antioxidants to help w/ cell repair (My MO's and Naturopath's guidance when I had radiation)
CHEMO AND FOOD: I was advised by Oncologist and also by Naturopath to eat 80-100 g of protein a day--helps with cell repair so body is less fatigued because fuel for rebuilding is available. This meant protein gram lists all over the kitchen, and a new way of planning food. I've had fairly good energy, and doctor has said it helped with the things he's checking on the blood panels, like hemoglobin and other things. Surgeon said same thing: eat a lot of protein and food with antioxidants--also helps with healing, also gives the body what it needs to heal that type of cell repair.
FATIGUE DURING RADIATION: Fatigue was cumulative. I had six weeks of radiation in 2003, felt the tiredest 2 weeks after it finished, and at about 4 weeks I started to need about 11 hours of sleep each night, at the end also a nap during those final weeks. Drinking water helps with this and also with cell repair. I remember that about 3 months after radiation finished, I returned to feeling like ME as far as fatigue.
I am now 10 days PFC, and dealing with a severe hives reaction. Im on mega-doses of steroids, which are working so far. Never a dull moment. This started on Day 9 of my #4/Final infusion. Same thing happened Day 8 after Infusion #3, so this final infusion time, I had a slightly different chemo med, (Taxol instead of Taxotere with my Cytoxan), and a huge amount of steroids before and during infusion day, but it has happened again despite those precautions. My game went into overtime on managing SE's, but I light glimmering at the end of my tunnel.
Warm wishes to all--I started chemo in June, but your group on this friendly thread has given me support and knowledge along the way.
3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2-
4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2-
5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)