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Topic: Starting Chemo October 2018

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Sep 18, 2018 06:41PM

Sadlynew2018 wrote:

So here is goes :-) just got my plan in place. First AC treatment is October 9. Starting this forum in the hopes others who are having treatment the same month can meet :-)

Dx 8/9/2018, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 8/27/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 9/5/2018, IDC, Right, 3cm, Grade 3, 1/15 nodes, ER+/PR+, HER2- (FISH) Surgery 9/9/2018 Lymph node removal: Underarm/Axillary
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Posts 481 - 490 (490 total)

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Dec 6, 2018 12:04PM PatriceL wrote:

All right, April, go and give Mr.T the business. I'll be meeting him tomorrow, armed with gloves and booties as well. It's gonna be so much easier than the AC, you'll see. Good Luck, don't forget to drink drink drink...

NotGIvingUp, you have every reason to be upset! It's another situation where we need to be told exactly what to expect, and what the worst case scenario is. If there was a chance that wasn't your last chemo, someone should have mentioned that. I hope your tests have good results, and that the bell cannot be unrung. I don't have my enzymes checked as far as I know, so I can't comment on that part.

Joules, I was just having a convo with my husband about how glad I am that my MO is willing to try all types of alternative medicines. She is relatively young and very open to things beyond what traditional Western medicine is able to address. The fact that she has someone on her staff who does acupuncture, nutritional supplements and so on speaks to her willingness to at least try to think outside the box, and I love that.

Dx 9/27/2018, IDC, Right, 4cm, Stage IIIB, Grade 3, ER+/PR-, HER2- Chemotherapy 10/11/2018 AC + T (Taxol)
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Dec 6, 2018 12:33PM Agd920 wrote:

Hi Everyone! I'm mostly a lurker when it comes to message boards but thought I'd chime in on the neuropathy question. My BS is big believer in treating the whole patient and working to prevent issues rather than reacting after they occur. She has a PT that she refers all of her Taxol patients to prior to starting. I'm doing 12 weekly and have a series of exercises to d at home in addition to seeing the PT every 3 weeks.

According to the PT neuropathy issues are less with the weekly vs dose dense and usually appear by week nine. Since starting the program very few of their patients experience any neuropathy at all. Those that do have minor issues that resolve quickly after treatment.

In addition to the pt exercises they've recommended

- keep knitting (assume crochet, needle work, etc. would also be beneficial)

- ballet, tendus and round de jambes were specifically mentioned for neuropathy

- if start to feel tingling squeeze a stress ball or putty, roll your feet on ball, rub fingers or toes against something with texture like corduroy

Good Luck!

Taxol - 12 weekly followed by AC - 4 every 2 weeks Dx 8/13/2018, IDC, Left, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 9/13/2018 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 10/23/2018 AC + T (Taxol)
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Dec 6, 2018 03:42PM Fritzmylove wrote:

Notgivingup my MO has been monitoring my liver enzymes very closely as I have a liver disease. Luckily my levels have stayed in the normal range throughout treatment. As someone who has had to deal with very highly elevated liver enzymes in the past, the side effects are not fun. But the liver is a very resilient organ, and I would imagine with a short break in treatment, should bounce back rather quickly. As hard as it can be to trust, our MOs typically have our best interests in mind.

CHEK2+ Dx 9/19/2018, IDC, Right, 6cm+, Stage IIIA, Grade 2, ER+/PR+, HER2- Chemotherapy 10/1/2018 TAC
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Dec 7, 2018 08:15AM Sadlynew2018 wrote:

Patrice, good luck today! I’m day 2 and feeling good so far. The booties weren’t too bad. The gloves were very cold. And not having use of my hands that long was tough. Lol. Next time, I will probably use the booties and then maybe hold something cold on and off. I’m sure you will do great. It was nothing like AC. Sending thoughts your way. We can do this!!!

Casey, how are you? Haven’t seen you post in a while?

Dx 8/9/2018, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- (FISH) Surgery 8/27/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 9/5/2018, IDC, Right, 3cm, Grade 3, 1/15 nodes, ER+/PR+, HER2- (FISH) Surgery 9/9/2018 Lymph node removal: Underarm/Axillary
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Dec 8, 2018 11:29AM RadagastRabbit wrote:

hello ladies just checking in. I start taxol week after next. The last AC wiped me out with fatigue it was ridiculous my last AC was Nov 8th, it took me til Monday of this last week to feel normal again. Oncologist here back home wanted to wait a bit so I’m strong going into last 12 rounds because my fatigue and nausea kept sticking around. Am able to function better now and get a few things done which is good for my spirits. Am on medication for depression/anxiety and seeing a therapist to help me get through the rest of my chemo and surgery and whatever else gets thrown at me. I’m sleeping well and enjoying this mini break.

Not giving up I’d be supremely irritated. I’d demand everythingbe upfront from now on. It’s hard enough dealing with this crap then to be blindsided by more crap just isn’t right. Thinking of you and hoping all things work out in the end and your given a upfront plan to move forward.

Casey, very curious how your MO appointment went, I love how direct u are, wish I coulda been a bug on a wall to hear how that exchange went. Hope your doing well!

Fritz, how jealous I am of you getting that big marshmallow as a visitor! Thank you also for the advise I’m following suit and feeling better. Hope the last stretch of ur chemo treats you kindly!

Patrice, I guess you’ll be the guinea pig now since you’ll be ahead of me in chemo going forward. Report back and let me know if mr. taxol is kinder than mr. Ac.

To all u ladies started on the taxol hope all is going well and continue to report back on how it’s going, 12 rounds sounds daunting but if it’s kind then I guess all is well! Once we get Fritz over the line we will have all conquered AC which is a huge accomplishment! March on brave ladies, I think of u all often.

9/27/2018 Hormone therapy: Zoladex 9/27/2018 Chemotherapy: AC+T. Gene testing negative. “What is Brave? Brave is Short for Brave-er-rey” - Luther Heggs Dx 7/30/2018 IDC 4cm ER+ PR+ Her2- Stage 2 Grade 2 Ki67 5% 36 yrs old. PCOS
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Dec 9, 2018 05:27PM Joules44 wrote:

Agd920, thank you for the info on neuropathy. I am at week 9 and I've had the beginning symptoms of neuropathy for the past couple of weeks. I will definitely look into physical therapy as a way to prevent it from worsening. My guess is that my oncologist will lessen my Taxol dose for these remaining weeks.

Hope everyone has had a great weekend!

Dx 4/2018, DCIS/IDC, Right, 1cm, Stage IB, Grade 3, 0/3 nodes, ER+/PR+, HER2+ (FISH)
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Dec 10, 2018 01:22PM Fritzmylove wrote:

Hi all. I'm finally crawling out of my chemo cave after tx last Monday. I'm struggling with horrible heartburn, but at the same time wanting to eat all the things. I'm starting to see how cumulative these SEs are. Fatigue is hanging around longer, and neuropathy is a little worse than last round. It went away completely before I had to have round 4, so I'm hoping that's the case again this time. It's more annoying than anything.

I'm trying to do everything that needs to be done around the house on top of everything that comes with the holiday season and caring for 2 young kids, and my body is just saying no. I'm glad I have 2 weeks of feeling mostly good ahead of me, and that I don't have to have chemo again until Dec 26.

I finish chemo mid-January, and then will be having my BMX. For anyone doing neoadj chemo, have you started talking to your BS about surgery? I haven't had any communication with mine since I was dx, so I'm wondering when I'll need to get that ball rolling. I still have no idea about what to do about reconstruction, and radiation apparently complicates that whole process.

I hope everyone is doing well. I can see the light at the end of the tunnel for most of us!

CHEK2+ Dx 9/19/2018, IDC, Right, 6cm+, Stage IIIA, Grade 2, ER+/PR+, HER2- Chemotherapy 10/1/2018 TAC
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Dec 10, 2018 08:49PM RadagastRabbit wrote:

hi fritz, sorry about the side effects but happy for you that you get a break before you get hit again with more chemo.

Yes already getting ready for surgery breast surgeon has me doing a breast mri between taxol 8 and 10 which will be about mid February to restage me before surgery. pathology following surgery will be final staging. Talking about surgery makes this more real for me because aside from hair loss the loss or change of a breast is something you can see. But in reality I’m looking forward to surgery because I get to get this dang thing outta me. I’ve been tossing back and forth between lumpectomy and mastectomy. I’d like to avoid radiation if possible. So many decisions to make. Thankful I still have more time to weigh my options and make final decision after breast mri and breast surgeon consultation. I’d definitely check in with your breast surgeon as they should be monitoring your progress.

Hope your doing well and get to enjoy some normalcy for a bit.

Thinking of you ladies!!

9/27/2018 Hormone therapy: Zoladex 9/27/2018 Chemotherapy: AC+T. Gene testing negative. “What is Brave? Brave is Short for Brave-er-rey” - Luther Heggs Dx 7/30/2018 IDC 4cm ER+ PR+ Her2- Stage 2 Grade 2 Ki67 5% 36 yrs old. PCOS
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Dec 11, 2018 08:58AM AntigoneResurrected wrote:

Hi all,

Trying to stay calm and stay away from "doctor google" and studies (even though I do FAR better with research in my hands than no research), but I just found the new letter in my online medical portal from my surgeon to my GP, and now I know I think I know why she was acting all squirrelly with me when I went to go see her last week. I went in because my tumor site was having sharp stabbing pains again (it's actually how I originally found it - sharp stabbing pains) and it felt...bigger. Actually, it was strange to be able to feel it easily at all, because two weeks earlier the surgeon and I were both commenting on how happy were were to be having difficulty finding it. And then I had my first round of dose dense Taxol, and a few days later, the intense stabbing pains at the tumor site started happening.

At first, I thought they were similar to the pains that happened with my first round with A/C, so I called into the nurse line, just to confirm and ease my worries. But they told me that it definitely wasn't normal, and scheduled an appointment for me. The onco nurse sent me up to the surgeon, who did an u/s, hemmed and hawwed a bit (which was odd for her - normally she's very forthright with me), and then told me she wanted me to have an MRI, which I'm having this evening.

Her letter to my GP just popped up in my portal, and at the very end, this is what she wrote: "The ultrasound measurements today were X.X cm tall by Y.Y cm wide, which is larger. There appear to be some cystic areas today possibly consistent with central necrosis. We previously planned on breast MRI near the completion of chemotherapy to re-assess the resectability of the tumor. I would like her to have that done sooner to make sure that she is having a response to chemotherapy and to re-assess the resectability of the tumor."

And now I'm incredibly worried and nervous. Has anyone else had something like this happen??? MTIA

Dx 8/2018, IDC, Left, 1cm+, Stage IA, Grade 3, ER-/PR-, HER2- Chemotherapy 10/5/2018 AC + T (Taxol)
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Dec 11, 2018 12:36PM PatriceL wrote:

HI all - Had my first meeting with Mr.T on Friday. Infusion took a long time because the nurse has to check blood pressure frequently during infusion and speed up or slow down the drip depending on results. There were steroids, benedryl, and zantac administered as well. I feel ok, just tired as usual. Nurse warned of se's like diarrhea, nausea, fatigue and neuropathy. So far the only se I have is my good friend constipation. I am starting to feel the emotional toll of all of this like I never had before, and I don't like it. I feel like I am either crying or angry at any given time. Good times at my house this week.

Jill, sorry you were suffering from the se's, but you're so much closer to being done. I haven't talked to my surgeon either, my MO was just mentioning what to expect after my last taxol at my last appointment, but that is at least 11 weeks away so it was very brief. I just don't think i can or should make any big decisions re: surgery at this time. I've done so much research on the various types of surgeries and reconstructions, and frankly, they all scare the crap out of me. I do think I will lose at least one breast, so decisions will have to be made. After chemo, scans will be re-done and we will weigh my options. I will have to get radiation at some point as well. I just need to focus on one step at a time for now, it's all I can handle emotionally. (boo-hoo, poor me, I know.)

Rabbit, good to hear from you, so glad that you reached out for help and got some meds to help you cope. The taxol wasn't bad, although I only had 1 treatment, I've suffered no se's so far. Worried about fatigue as I really really felt it after AC #4, but doc said that was AC related anemia. Trying to stay active to fend off the exhaustion, but it's cold here, so walking the dog is a bit of a challenge. Bundle up and go they say, and so I will tonight after work, supposed to be a balmy 40 degrees.

Antigone, I am sorry that I don't have any advice or answers for you, but i will be thinking of you and sending good vibes your way. I do know that if the chemo is destroying the tumors, they have to go somewhere and be disposed of by your body in some way, hence the necrotic tissue, which would take up space until it is destroyed by the body. Try not to borrow trouble, stay away from the Googler and let the docs explain it to you. Actually, demand that they do.

Hoping all of you awesome chicks are doing well, handing the poison like champions and knocking out the treatments. Take good care, drink it up and be as positive as this crap allows.

ThumbsUp

Dx 9/27/2018, IDC, Right, 4cm, Stage IIIB, Grade 3, ER+/PR-, HER2- Chemotherapy 10/11/2018 AC + T (Taxol)

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