Topic: Chemo starting January 2019

Forum: Chemotherapy - Before, During, and After — Regimens, side effects, and support from others going through chemo.

Posted on: Dec 12, 2018 10:51PM - edited Jan 16, 2019 06:54AM by B74

Posted on: Dec 12, 2018 10:51PM - edited Jan 16, 2019 06:54AM by B74

B74 wrote:

I think I'm the first in this boat?? Starting 4 x AC then 12 x T on 4 Jan.

I'm keen to meet others starting their new year in a similar way!

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UPDATE: Our Jan (& almost Jan) starters group includes (in order of start date):

27 Dec - Netiseret (TCa + H)

2 - kaylajane (6 x TCa + H)

3 - Gigi71 (12 x Taxol + H)

3 - Ngai (4 x ACy + Taxol)

3 - Salsa_dancer_Shannon (4 x TCy)

3 - Kstinekd (4 x AC + 4 x Taxol)

3 - Sentha (TC)

4 - B74 (4 x ACy + 12 x Taxol)

4 - RdhJoy (4 x TCy)

7 - mnsotamom74

9 - Mariett (4 x ACy + 12 x Taxol)

9 - Mgm0712 (4 x TCy)

9 - MLAnne (Abraxane/Cy)

14 - Jenkins00 (4 x TCy)

15 - NO1FIGHTSALONE (12 x Taxol + H)

15 - Mylife42 (ACy + Taxol)

15 - Gkidsnana (ACy + T)

15 - Ruffian188 (TCa)

17 - Skygirl44 (4 x ACy + 4 x Taxol)

17 - Nanomom11 (4 x ACy + 12 x Taxol)

18 - Kathy03 (TCy)

18 - rrshannon (4 x TCy)

25 - ErinMFerrell (4 x ACy + 12 x Taxol)

25 - Caiti2067 (12 x Taxol + H)

31 - Mncteach (ACy + Taxol)


? - Imagine923 (4 x ACy + 12 x Taxol)

? - Rosie24

T = Taxotere (docetaxel)

Ca = Carboplatin (paraplatin)

H = Herceptin (trastuzumab)

Taxol (paclitaxel)

A = Adriamycin (doxorubicin)

Cy = Cytoxan (cyclophosphamide)


Dx 10/2018, IDC, 3cm, Stage IIB, Grade 2, 2/3 nodes, ER+/PR+, HER2- Surgery 11/13/2018 Mastectomy Chemotherapy 1/3/2019 AC + T (Taxol)
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Apr 6, 2020 11:57AM piperkay wrote:

Just an update, I decided not to schedule an appointment elsewhere. Not super certain about this decision, but I've trusted my MO before, and I'm going to keep doing it. She did say that patients getting diagnostic vs screening mammos would get priority scheduling, so hopefully I'll hear soon after they re-open. But if I don't, then I'll probably try this other place.

Dx 11/2018, IDC, Right, <1, Stage IB, Grade 3, ER-/PR-, HER2- Surgery 12/10/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Surgery 12/10/2018 Chemotherapy 1/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/17/2019 Other Radiation Therapy 4/24/2019 Whole breast: Breast Radiation Therapy 4/24/2019 Whole breast, Radiation boost: Right breast
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Apr 13, 2020 11:56AM fc2020 wrote:

PiperKay, I totally understand where you are coming from. Being TN myself I depend on the check ups because I feel like it's the only thing I can do since there are no meds or follow up treatment. I'm supposed to have my check in with my MO in May and wonder if it will happen. I know doctors in other specialties are doing virtual visits for patients, but how does that work in oncology? How is that supposed to check my labs and my breast? Usually they say the changes I feel are due to the radiation, but I worry about everything that feels different now. I rely on them to reassure me that what I feel is my "new normal".

I hope you are all staying healthy and weathering this crazy world we are in right now.

There is no way around it, only through it! Dx 11/30/2018, IDC, Right, 1cm, Stage IB, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 1/8/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 1/31/2019 AC + T (Taxol) Radiation Therapy 7/3/2019 Whole breast: Breast
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Apr 13, 2020 04:53PM piperkay wrote:

FC2020,

Yes, exactly. I did have my quarterly follow-up with my MO in late February before everything got shut down here in Georgia - which took way too long in my opinion. And you're right, you can't do labs or do a physical exam with a tele-health appt, so I feel lucky to have gotten that done. The next one is scheduled for June and I'm hopeful that one won't be cancelled. My appt with my radiation oncologist for 4/23 was already cancelled a few weeks ago, but I'm not so worried about that because I don't expect much from it anyway except a "that's from radiation" kind of response. Even so, it's possible that not EVERY little change is due to radiation. Which is why I was so upset that the mammo was cancelled - that's the one thing that will actually show if something is there that shouldn't be. Sigh.

Good news is that so far I don't seem to have contracted COVID-19. Bright spot.

Dx 11/2018, IDC, Right, <1, Stage IB, Grade 3, ER-/PR-, HER2- Surgery 12/10/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Surgery 12/10/2018 Chemotherapy 1/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/17/2019 Other Radiation Therapy 4/24/2019 Whole breast: Breast Radiation Therapy 4/24/2019 Whole breast, Radiation boost: Right breast
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Apr 16, 2020 10:28AM fc2020 wrote:

PiperKay, you just made me laugh. It's like I made it through cancer treatment, I'll be darned if this COVID is gonna take me out!

You hit the nail on the head, I feel like everything I worry about the usual response is "that's from radiation". I wish that they had those fake boobs like they had in anatomy class. Only instead of a normal boob and a boob with tumors and cysts. I wish they had a normal breast before cancer and one that feels like a breast after surgery/chemo/radiation. Every medical professional says to be vigilant with the self exams, but then I keep feeling things that feel different than before treatment. Is that from surgery? From radiation? From the removal of lymph nodes? It scares the heck out of me because I can't go see anyone at this point. I'm supposed to meet with my MO at the end of May and I'm praying that doesn't get cancelled because they at least will look at/feel what i'm talking about and talk me down off the ledge if it is just my "new normal". God do I hate that phrase anymore! It makes me think of the Ibrance commercial which leads to thinking of MBC which makes me worry. Working from home due to the pandemic leaves way too much time to get in my head.


Stay strong ladies!

There is no way around it, only through it! Dx 11/30/2018, IDC, Right, 1cm, Stage IB, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 1/8/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 1/31/2019 AC + T (Taxol) Radiation Therapy 7/3/2019 Whole breast: Breast
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Apr 17, 2020 02:30PM piperkay wrote:

FC2020, you have expanded upon my thoughts exactly. Everything feels different in the cancer boob. AND it's higher than the other one now! Who knew radiation is better than a boob job at making at least one boob perkier! But I very much also wish I knew what was a normal result of treatment and what a tumor would feel like. Fortunately in most respects, my tumor was too small and placed in such a way that I couldn't feel it, but I don't know what it "felt" like. What I usually do now is feel both breasts at the same time - if the good one feels similar to the bad one, then I feel better. I have dense breasts to begin with which doesn't help because they've always been lumpy. Do fibrous lumps feel vastly different than cancer lumps?

And I REALLY get annoyed by all those MBC drug commercials especially when none of then apply to me with triple negative BC. What's up with all the MBC ads anyway? Do any of us really need TV commercials about any BC drugs? Do our doctors???

Dx 11/2018, IDC, Right, <1, Stage IB, Grade 3, ER-/PR-, HER2- Surgery 12/10/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Surgery 12/10/2018 Chemotherapy 1/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/17/2019 Other Radiation Therapy 4/24/2019 Whole breast: Breast Radiation Therapy 4/24/2019 Whole breast, Radiation boost: Right breast
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Apr 27, 2020 10:17AM fc2020 wrote:

I totally agree on the ads. I'm so sick and tired of them, especially since none of them apply to me. It makes me feel like my diagnosis just doesn't matter and no one is doing any research on TNBC. It makes me more scared to know that if it comes back I feel like there's nothing they can do.

Which brings me to today's post. I never felt my tumor and now I'm feeling freaked out because I feel something. It may just be scar tissue, God I'm hoping it's scar tissue or tissue change due to radiation - anything, but a recurrence. I reached out to my surgeon's office and they're getting me in today. I'm hoping it's just my fear and anxiety running away with me and that they'll tell me everything is okay. Of course it doesn't help that I couldn't sleep at all last night and ran across an old episode of Murphy Brown and it's one where she has breast cancer. I didn't even remember that in the series, but now I spiral thinking...is this a sign? Wish me luck!

There is no way around it, only through it! Dx 11/30/2018, IDC, Right, 1cm, Stage IB, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 1/8/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 1/31/2019 AC + T (Taxol) Radiation Therapy 7/3/2019 Whole breast: Breast
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Apr 28, 2020 04:02PM piperkay wrote:

FC2020, I do read about TNBC studies being done, and some are promising, but it seems that even those are being done with metastatic disease. I don't know the answer to this, but do drugs that work on metastatic disease eventually get tried on early stage cases? I should really look that up.

I hope you get/got good news on this most recent issue. I would never have remembered that Murphy Brown had breast cancer, but I had a similar experience last year getting a wax (LOL can't even think about that now!) where all they show are Sex in the City episodes and I saw one of the ones when Samantha was getting chemo-induced hot flashes during a presentation and she flung her wig into the audience. It was funny, but not funny, you know what I mean?

Dx 11/2018, IDC, Right, <1, Stage IB, Grade 3, ER-/PR-, HER2- Surgery 12/10/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Surgery 12/10/2018 Chemotherapy 1/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/17/2019 Other Radiation Therapy 4/24/2019 Whole breast: Breast Radiation Therapy 4/24/2019 Whole breast, Radiation boost: Right breast
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Aug 3, 2020 01:57PM fc2020 wrote:

Okay, so I decided to straighten my crazy chemo curls today for the first time in quite a while. I'm sad to say that I discovered that my hair is much thinner than it was prior to chemo. I'm trying to figure out if this is a permanent thing that I need to get used to or if this is going to eventually go back to normal. I don't go for my next check up until the end of this month. Do any of you have a similar experience?

There is no way around it, only through it! Dx 11/30/2018, IDC, Right, 1cm, Stage IB, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 1/8/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 1/31/2019 AC + T (Taxol) Radiation Therapy 7/3/2019 Whole breast: Breast
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Aug 24, 2020 04:32PM Jenkins00 wrote:

Hi Everyone! Sorry I haven't been on in a while. Life has been crazy but isn't that the new norm these days?! I was able to get all my testing done for my liver and well I hate this word "fatty" but that it what the doctors are saying is causing my high liver enzyme. I have a fatty liver and need to lose weight. I am doing intermittent fasting 16:8 and so far have lost 12 lbs. I was also referred to the weight loss clinic at UTSW since I am a complex patient. Lol!

I have developed an issue with my jaw, it pops only in the morning only. I believe it was caused by taking Pristiq which is a side affect and now no longer taking. I don't grind my teeth so working with my chiro on doing exercises and cold laser light therapy. I really don't want to add an specialist on my plate right now.

Otherwise, I graduated to 6 months with my oncologist and 1 year with my breast surgeon. My hair is still dark and curly. I am keeping it short for now.

Hope everyone is well!!!

Audra

Dx 8/2/2018, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/27/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/14/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/24/2019 Femara (letrozole) Surgery 7/24/2019 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Aug 28, 2020 05:32PM piperkay wrote:

Hi Jenkins00/Audra,

I feel like you that if it's not one thing it's another. Although I've been doing fine cancer-wise (clear mammos, etc.), everything related to it and not related to it seems to be bothering me! I still have trouble with lymphedema, numbness in my armpit (can't shave there without looking in a mirror!), some kind of nerve damage in the same arm, and as of January a rheumatoid arthritis diagnosis. Whaahh??? But my hair is super curly and growing like a weed. Had to cancel a hair appt in late March and haven't touched it since. Now I'm using some of the chemo hats and headbands to tame - or hide - this wild growth!

Be safe and well! Anne

Dx 11/2018, IDC, Right, <1, Stage IB, Grade 3, ER-/PR-, HER2- Surgery 12/10/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Surgery 12/10/2018 Chemotherapy 1/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/17/2019 Other Radiation Therapy 4/24/2019 Whole breast: Breast Radiation Therapy 4/24/2019 Whole breast, Radiation boost: Right breast

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