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Mar 13, 2019 02:02PM
UCFKnights - your Mom is so lucky to have you looking out for her!!!! With her and I being on the same regiment I can tell you what my team told me will likely happen and when.
I was concerned with when I would feel badly as I have 2 kiddos, one of whom plays a ton of volleyball and it was important to me to be able to attempt getting to her games as much as possible. I was told that typically 3-4 days after is when you feel your worst for a few days.
I was told to be prepared that my hair loss will happen before my 2nd infusion - they told me roughly day 12-14.
I was told that either/or/neither could happen between constipation and diarrhea.
They talked to me about mouth sores and oral care to help prevent them. - no whitening toothpaste, brush with a soft tooth brush, biotene, water with salt and baking soda rinses
We talked about how taste buds can change and how to eat and hydrate properly (dietitian is involved here to help)
I was told our 1st phase is definitely much harder then the 2nd phase will be.
I was told more so with the 2nd phase that nails can have issues turning changing black/falling out.
I was also told 2nd phase has higher incidence of neuropathy occurring.
They gave me tips for everything as well I was given information from the pharmacist here at MDA on each of the drugs - If you would like I can try to print out the information online for you to look at.
Diagnosed at 41 with multicentric ILC 4 tumors and LCIS throughout entire breast
12/3/2018, LCIS/ILC, Left, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2-
12/9/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/30/2019 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right)
3/13/2019 AC + T (Taxol)