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Nov 17, 2019 06:51PM
Like UpstateNYer, I continue to think of you all often.
September 9 was my last chemo. I am not doing radiation as I will be having my prophylactic double mastectomy in January. I did start Tamoxifen on October 9. My last chemo treatment seems to have thrown me into menopause, not sure if temporary or not - will be permanent once I have my salpingo-oopherectomy and hysterectomy in the summer.
I am slowly regaining my energy, but do have to be careful not to overdo it or I am tired the next day. My main complaints would be hot flashes (which I started Gabapentin for on October 31), brain fog (slowly improving, but find it flares up at times - especially if I overdo it), and low mood/depression. What I can't determine is if these are from chemo or the Tamoxifen.
I am continuing to have sleep issues, which compound the rest of my problems. The sleep/insomnia seems to be linked to my anxiety. I dwell on things all night instead of sleeping.
My hair is growing back, but I still have distinct bald spots on my head. Stupid arm and leg hairs are back. That's a disappointment 😜
Like many of you, the fear of recurrence weighs heavy on my mind. The what ifs and irrational thoughts constantly plague me. I am also struggling with body image and feminity relating to the upcoming surgery.
DX at age 43. Weak staining ER, Oncotype score 50, BRCA1 mutation. Lost both parents to cancer in 2018.
4/17/2019, IDC, Right, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR-, HER2- (IHC)
5/1/2019 Lumpectomy: Right; Lymph node removal: Sentinel
7/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/20/2020 Prophylactic mastectomy: Left, Right