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Jul 16, 2019 06:50PM
Jul 16, 2019 06:53PM
Jjpope1 and UpstateNYer - when I first met my surgical oncologist, she used words like "highly curable" "highly treatable" and "not aggressive". I was also told chemo would be highly unlikely. In reviewing my biopsy, they didn't indicate grade but it did say estimate high Nottingham scale, so I don't know why the surgeon told me it wasn't aggressive when a) she didn't know and b) the biopsy hinted to aggressive. I may have made different choices otherwise (mastectomy instead of lumpectomy).
Even though my margins were clean and no cancer in the lymph nodes, I was blindsided when I found out it was aggressive and devestated when the medical oncologist told me she highly recommended chemotherapy. I requested the oncotypeDX test because I needed time to process the changes.
My score nearly knocked the wind out of me. 39% chance of distant recurrence in 9 years with chemo reducing that by at least 15%. Worst case, with chemo I still have an almost 25% chance of seeing this again. And I am still waiting for the results from my genetic testing that could make this even worse.
Truth be told, I have been dwelling on this alot the last few days. I'm scared. I'm too young for this $hit. I feel like I have this axe hovering over my head, and I will never know when it will drop.
DX at age 43. Weak staining ER, Oncotype score 50, BRCA1 mutation. Lost both parents to cancer in 2018.
4/17/2019, IDC, Right, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR-, HER2- (IHC)
5/1/2019 Lumpectomy: Right; Lymph node removal: Sentinel
7/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
1/20/2020 Prophylactic mastectomy: Left, Right
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)