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Topic: Tear duct issues after taxol?

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Aug 28, 2019 10:59AM

anotherNYCGirl wrote:

Hi,

I have been having eye problems the last few months, - eyelid bump, inflammation and very teary eyes. Steroid drops help, but those are a temporary fix and now I was told to have a procedure to open the drainage ducts in my lower lids.

Anyone else having eye problems after taxol? =/


Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Aug 30, 2019 02:44PM Symphony19 wrote:

Yes anotherNYCGirl!!

I was searching months ago when I did Taxol x 12 in the spring for someone else experiencing this SE.

I tolerated treatment well. My only nemesis was one eye that constantly had large bumps on the top lid due to blocked ducts (a problem I had never had in my 49 years).

I bought eyelid scrubs, washed my eyelids every day with baby shampoo and scrubbed them constantly. To no avail. I woke up the day before Easter Sunday with multiple clogged ducts that were close to each other and caused my eye to swell shut. Went to ophthalmologist who confirmed all was okay with the eye but for the fluid that was not draining. Gave me some tips, but they did not really help.

My MO was perplexed. It is not a common side effect apparently. I was thankful to not have any serious side effects. It was just such a nuisance. I wondered if I would have cyst-like bumps on my eyelid that would never go away. Fortunately, about a month after the Taxol ended, I had a smooth eyelid again. I went at it daily with a dollop of alcohol on a Q-tip (for the drying effect of the alcohol). Between that and constant warm compresses and lid massage, things got back to normal.

I am sorry you are dealing with this. Good luck!



Dx 2/2019 Age 49; IDC right 2cm; Stage 1B; ER+,PR-,HER2+; Neoadj THP; 6/19 BMx w tissue expanders; Micromet in sentinel node; A/C Chemo x 4; 9/2019 Axillary dissection right (13 nodes, all negative). Oct 2019 started Kadcyla x 14. Dx 2/2019, IDC, Right, 2cm, Stage IB, Grade 3, 1/14 nodes, ER+/PR-, HER2+ (FISH) Targeted Therapy 3/5/2019 Perjeta (pertuzumab) Targeted Therapy 3/5/2019 Herceptin (trastuzumab) Chemotherapy 3/5/2019 Taxol (paclitaxel) Surgery 6/19/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/22/2019 AC Surgery 9/23/2019 Lymph node removal: Underarm/Axillary Targeted Therapy 10/10/2019 Kadcyla (T-DM1, ado-trastuzumab) Surgery 11/13/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 31, 2019 06:25AM anotherNYCGirl wrote:

Hi Symph!

I am glad that your eye issues cleared up!

I had to use eye drops twice while on chemo, but that was quite a while ago. All was fine until last January when a bump appeared and eyes tearing. I, too, was advised to use warm compresses, lid massage and use steroid drops, and also start taking fish oil pills. The bump gradually disappeared, and my eyes are fine while using the drops, but they cant be used long term. Eye dr said that I have 'punctal stenonsis' (or something like that) and the only solution is to have the drainage ducts opened in some type of procedure. ugh

I am debating getting a second opinion before seeing the eye surgeon that my eye dr referred me to.

I hope you continue to do well!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Sep 1, 2019 06:17PM Symphony19 wrote:

Hang in there NYCGirl!

My doc had referred me to an ocular plastic surgeon. I am holding on to the referral just in case!

I’m sure once your ducts are opened /drained, you will be great

Dx 2/2019 Age 49; IDC right 2cm; Stage 1B; ER+,PR-,HER2+; Neoadj THP; 6/19 BMx w tissue expanders; Micromet in sentinel node; A/C Chemo x 4; 9/2019 Axillary dissection right (13 nodes, all negative). Oct 2019 started Kadcyla x 14. Dx 2/2019, IDC, Right, 2cm, Stage IB, Grade 3, 1/14 nodes, ER+/PR-, HER2+ (FISH) Targeted Therapy 3/5/2019 Perjeta (pertuzumab) Targeted Therapy 3/5/2019 Herceptin (trastuzumab) Chemotherapy 3/5/2019 Taxol (paclitaxel) Surgery 6/19/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/22/2019 AC Surgery 9/23/2019 Lymph node removal: Underarm/Axillary Targeted Therapy 10/10/2019 Kadcyla (T-DM1, ado-trastuzumab) Surgery 11/13/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Sep 3, 2019 07:18AM anotherNYCGirl wrote:

Thank you, Symph!

(I hope that you never need to use the referral for the ocular surgeon! )

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Dec 6, 2019 11:31AM Pawsome wrote:

It's been over 1 year after my last Taxol treatment and my eye tears constantly. Every 30 seconds. Opthomologist only suggests eye drops which do not help at all. Putting eye plugs in are only temporary and only work if your tear ducts are clogged which mine are not. PLEASE does anyone have an answer for this terribly debillating after effect? My nose also runs probably because of the tearing eye.

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Dec 6, 2019 02:29PM anotherNYCGirl wrote:

Pawsome,

I had the tear drains opened by an eye surgeon. It took seconds, didnt hurt, and made a huge difference. I had drops to use after, that i weaned off of for the 3 weeks after. I continue to use warm compress daily (once or twice a day) and also wash my eyelids with Johnson and Johnson baby shampoo.

I go back to the eye surgeon on Monday for a recheck, and if need be, I wont hesitate to have him repeat the procedure.

I hope you find a good ocular surgeon to help you, too!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Dec 6, 2019 02:50PM MinusTwo wrote:

I had taxotere for 6 infusions. I did go see my optometrist for teary eyes. She gave me several sample drops and said we might have to look at the duct drainage, but the problem resolved once I finished the taxotere.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014

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