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Topic: Damn. That water...

Forum: Chemotherapy - Before, During, and After —

Regimens, side effects, and support from others going through chemo.

Posted on: Dec 9, 2019 03:26AM

WC3 wrote:

I am 14 months PFC and sometimes I can still taste the dirt water. I don't think it's an actual taste alteration at this point. I think I am just more in tune to certain bad tastes that were prominent to me during chemotherapy.

Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Dec 9, 2019 06:38PM Spookiesmom wrote:

Probably. I couldn’t look at activa yogurt in the store isle for 2 years after red devil without wanting to barf. Try some of the flavor enhancer or some lemon in your water bottle. But keep chugged it!

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Dec 9, 2019 08:07PM ElaineTherese wrote:

I still hate water and I'm five years PFC! I drink flavored sparkling water these days. Also, I could only eat sweet things during Taxol + Herceptin + Perjeta; now, I never eat dessert.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
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Dec 9, 2019 09:33PM hapa wrote:

I know exactly what you mean. I drank some unfiltered water last week and had a flashback. I dumped it and drank OJ instead. I used to drink straight from the tap all the time but now it has that bad chemo taste

Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/28/2018 Perjeta (pertuzumab) Targeted Therapy 3/28/2018 Herceptin (trastuzumab) Chemotherapy 3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 12/21/2018 Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Nerlynx
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Dec 14, 2019 08:30AM ScatteredEnergy wrote:

What? Can someone explain what is the issue with the waiter? I love water. I would hate to lose that.

Mom of three, two boys 19 and 13, and the princess, 6 years old. Dx 12/9/2019, IDC, Right, 3cm, Stage IIIA, Grade 3, ER+/PR+, HER2- (IHC)
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Dec 14, 2019 09:18AM RosieRed wrote:

With chemo, your tastebuds get very dull and can make foods and beverages taste very odd or bland. I know the taste they are talking about. I used to equate it with drinking water straight out of a garden hose when I was a kid. A little metallic and definitely dirty tasting. During chemo I drank juice or tea or sometimes 7up or ginger ale. Water was just so blah that it was hard for me to drink a lot of it like you are supposed to do during treatment.

Dx 5/9/2018, LCIS/DCIS, Both breasts, 6cm+, Stage IIA, Grade 2, 8/9 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 6/14/2018 AC + T (Taxol) Surgery 11/14/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 11/30/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/7/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 10/1/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Dec 14, 2019 10:12AM ElaineTherese wrote:

ScatteredEnergy,

One of the things with chemo is that everyone reacts to it differently. If you do chemo, you won't necessarily have the same experience as me, who is not a big fan of water anymore. I still work to stay hydrated; it's just not with plain water anymore.

Chemo is doable; I worked full-time during chemo. But, it did change my attitude toward certain foods, and I'm OK with that.

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes

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